In 2005 I was diagnosed with Pure Autonomic Failure. In Holland there are, as far as I know only about 5 patients with PAF. And it looks like I am the only one who has more problems during stress periods. The doctor can not tell me where this PAF is coming from, while I have the feeling that it comes after a long period with trauma and to much stress. What I would like to know is, do you know more patients with PAF, what their treatment is (now I take Fludrocort as well as Gutron, but it still hard to get/feel stable) - can it be healed, is there a forum with people with PAF and how do I get the latest news on PAF (about research, medicin, treatment, etc.)?