Aa
A
A
Close
Avatar universal
In need of help!
My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions twice a week and occasional blood transfusions. I've been on my menstrual period since October of 2015. They have not found anything that has stopped my bleeding. I've tried Lysteda, Stimate, Humate-P and multiple other coagulants. Since I get infusions so often my family doctor suggested I get a surgically implanted port or a picc line. My hematologist thinks I'm too unstable. I bruise like a peach and my joints are constantly in pain. I have no idea what else I can do.
Cancel
2 Answers
Page 1 of 1
Avatar universal
2014! not 2015! my Bad
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
My daughter has type 3 Von willebrands disease and she takes a hormone replacement called aygestin. It has stopped her period.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
von Willebrand Disease Community Resources