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Rare diseases- breaking down the barriers
Posts on rare disease support groups (1898)
Interferon-Ribavirin support groups - Hepatitis C Community
- Feb 13, 2012
I am a single parent of a beautiful talented daughter, and I was recently diagnosed with HC...
?'s about your local Hep C Support group - Hepatitis Social Community
- Mar 15, 2009
I've been a bit puzzled by the really low attendance at my local Hep C support group. I li...
Behcet's group? - Autoimmune Disorders Community
- Jul 13, 2011
hi i am new here, so pls forgive the ignorance... i hv not been able to find a group for Be...
How rare is MBL deficiency? - Autoimmune Disorders Community
- 4 hours
I have two immune diseases: autoimmune urticaria and an innate immune system deficency call...
Question of the group - Ovarian Cancer Community
- Jan 25, 2008
I am a 30 year old female and recently had an ultrasound done on a cyst found on an MRI. I...
THE RARE FORMS OF M.S. - Multiple Sclerosis Community
- Jan 09, 2011
ID LIKE TO HEAR FROM MS PATIENTS THAT HAVE THE RARE FORMS OF MS. INVOLVING KIDNEYS,LUNGS. ...
Is MS really that rare? - Multiple Sclerosis Community
- Nov 17, 2009
I've been wondering why if there are only 400,000 cases of MS in the US, do I know so many ...
Sudden Irreversible Disability - Rare? - Multiple Sclerosis Community
- May 12, 2010
I have to admit I am annoyed by the Marshfield Clinic study showing that the chance of a pe...
Need Support... - Ovarian Cancer Community
- Apr 07, 2008
I need your support...I need your prayers. This is what I come here for. I get my CT scan r...
Just Diagnosed with a rare form of MS - Multiple Sclerosis Community
- Nov 12, 2008
Well, I had my appt. with the new Neurologist today and received a partial diagnosis. He t...
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