rare disease support

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Posts on rare disease support (4588)
rare diseases-are we alone? - Rare diseases- breaking down the barriers Community
- Oct 17, 2009
Every story is unique, but as rare disease sufferers, we share common challenges. Your stor...
MS or other rare disease? - Multiple Sclerosis Community
- Oct 12, 2009
I have had back pain for no apparent reason starting in March. A month later, I was develop...
How rare is MBL deficiency? - Autoimmune Disorders Community
- Mar 18, 2009
I have two immune diseases: autoimmune urticaria and an innate immune system deficency call...
THE RARE FORMS OF M.S. - Multiple Sclerosis Community
- Jan 09, 2011
ID LIKE TO HEAR FROM MS PATIENTS THAT HAVE THE RARE FORMS OF MS. INVOLVING KIDNEYS,LUNGS. ...
Is MS really that rare? - Multiple Sclerosis Community
- Nov 17, 2009
I've been wondering why if there are only 400,000 cases of MS in the US, do I know so many ...
rare kind of tumor-sarcoma - Cancer Community
- Sep 11, 2009
My mom has a very rare kind of cancer called myxoid fibro sarcoma in her left temporal (hea...
Sudden Irreversible Disability - Rare? - Multiple Sclerosis Community
- May 12, 2010
I have to admit I am annoyed by the Marshfield Clinic study showing that the chance of a pe...
Thanks for support - HIV Prevention Community
- May 06, 2008
Thanks for the support Lizzie and others. Sadly I now have other symptoms - + 9 days. Nigh...
Need Support... - Ovarian Cancer Community
- Apr 07, 2008
I need your support...I need your prayers. This is what I come here for. I get my CT scan r...
Seeking Support - Congestive Heart Failure Community
- Apr 28, 2010
I am a 41 year old female recently diagnosed last month with CHF. I am having a hard time t...
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