rare

Posts on rare (8)
by Shay312, Aug 27, 2008 05:11PM - 2 Replies
My symptoms started in June/July 2004, the skin on my right a...[more]
by Tenia, Aug 19, 2008 04:33AM - 3 Replies
On July 15/08, I was diagnosed having rare, rapidly progressi...[more]
by rushfivefour, Aug 06, 2008 03:23PM
My 23 year old son has homozygous for the H63D mutation and O...[more]
by Hand2Hand, Jun 10, 2008 01:54PM
Phoenix Children’s Hospital has produced an interesting and...[more]
by Goldieluvsstuff, May 22, 2008 09:50AM
This all started with my primary care in September 2007 when ...[more]
by martikadragoon, May 08, 2008 05:40PM - 21 Replies
Ok, well as you know my son was diagnosed via amnio of having...[more]
by chksjnll, Apr 17, 2008 10:13PM
My son recently had an EEG and the neurologist said it showed...[more]
by faiths_mommy04, Nov 30, 2007 10:42AM - 5 Replies
In 1995 I had a tumor removed from my left ear. It was a chol...[more]