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Tuberous Sclerosis

Information, Symptoms, Treatments and Resources

What is Tuberous Sclerosis?

Tuberous sclerosis is a group of two genetic disorders characterized by problems with the skin, brain/nervous system, and kidneys. There is also a predisposition to tumors. The diseases are named after a characteristic abnormal growth in the brain, which takes the shape of a tuber or root.

Alternative Names:

Adenoma sebaceum

Posts on Tuberous Sclerosis (118)

I have had many surgeries for facial angiofibromas caused by the genetic disorder Tuberous ...
My son was diagnosed with Tuberous Sclerosis very mild. He has the calcium deposit in the ...
Our daughter had her first syncope episode at 18 months that was explained as everything fr...
2 years ago my 6 year old daughter had what was agreed by ped and neuro to be a nocturnal S...
I have had ongoing neurological symptoms suggestive of ms for 4 yrs. I am currently undiag...
In a child with a possible diagnosis of tuberous sclerosis, with only 3 areas of hypopigmen...
we have 2 children with "probable" tuberous sclerosis. they both have a shagreen patch a ca...
My 4 year old daughter has a possible diagnosis of tuberous sclerosis. She has 3 areas of ...
My daughter (4) has very recently been diagnosed with probable tuberous sclerosis. There i...
Dear Doctors, My 5 yr. old daughter was diagnosed with tuberous sclerosis. We are most f...

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