porphyria
Information, Symptoms, Treatments and Resources
What is porphyria?
Porphyrias are a rare group of disorders passed down through families in which an important part of hemoglobin, called heme, does not develop properly. Heme is also found in myoglobin, a protein found in certain muscles.
Alternative Names:
Acute intermittent porphyria; Hereditary coproporphyria; Congenital erythropoietic porphyria; Erythropoietic protoporphyria
Posts on porphyria (410)
There are two tests I was informed of when I finally found doctors willing to test me. The ...
porphyria???? - Liver Disorders Community
- Aug 24, 2009eating disorder or porphyria? - Neurology Community
- Feb 25, 2009abdominal pain after eating - Liver Disorders Community
- Jan 28, 2009
I have been experiencing these "episodes" for exactly one year. Out of nowhere,my heart wi...
I am hoping that someone knows about porphyria testing and diagnosis. I have read differen...
Upper abdominal pain - Gastroenterology Community
- Sep 19, 2008Porphyria - Neurology Community
- May 28, 2008
Hi,I'm a 43 year old woman with
1985 Stabbed in head in right temple/6" drain got blood p...
Journals about porphyria(1)
my husband has acute intermittent porphyria, or the the ALA one. Which is the rarest. ...
