porphyria

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Posts on porphyria (37)
Fall of 2011 I was on Interferon and Ribavirin, never did get to the Victrelis (13 weeks). ...
I have read all of your posts. My son has had horrible daily abdominal pain for 13 months w...
I am asking the experts, please! Peripheral Neuropathy is only one of the many symptoms of...
Anyone know of an expert on AIP in the Northeast? I am quite sure my daughter has this, sh...
Does anyone know what can cause erythrocyte protoporphyrin levels to be more than twice wha...
Sorry my story is some what lengthy please read it and let me know what you think.... I ...
There are two tests I was informed of when I finally found doctors willing to test me. The ...
Hi Last year in April I was diagnosed with severe gastritis and I did everything I coul...
My niece is being tested for porphyria. I have read up on the disorder, but could not find ...
My niece is being tested for porphyria. I have read up on the disorder, but could not find ...
Journals about porphyria(1)
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by pattypuss, Sep 13, 2008
my husband has acute intermittent porphyria, or the the ALA one. Which is the rarest. ...
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