porphyria - Symptoms, Treatments, and Resources

Posts on porphyria (26)
by 34Miami, Dec 01, 2008 09:15PM - 5 Replies
I have been experiencing these "episodes" for exactly one yea...[more]
by nobodys listening, Oct 18, 2008 02:23AM - 7 Replies
I am at my wit's end with Doctors and havent been to one in s...[more]
by Lilybee, Sep 23, 2008 07:17PM
I am hoping that someone knows about porphyria testing and di...[more]
by Lilypad83, Sep 19, 2008 03:42PM - 1 Reply
I wasn't sure which topic to put this in because I think this...[more]
by Beth E., May 28, 2008 11:42PM - 6 Replies
Hello. I have all the signs of porphyria. I have absolutely n...[more]
by Trinity4, May 20, 2008 07:15AM
Has anyone been diagnosed with Porphyria Cutanea Tarda? I de...[more]
by curedmaybe, Mar 02, 2008 10:21AM - 2 Replies
Hi,I'm a 43 year old woman with 1985 Stabbed in head in rig...[more]
by Trinity4, Oct 27, 2007 02:45AM - 2 Replies
Jim, I read the posts and you know a great deal about thi...[more]
by Beth E., Oct 25, 2007 12:57PM
Hello. I have all the signs of porphyria. I have absolutely n...[more]
by Trinity4, Oct 24, 2007 10:25PM - 2 Replies
I asked this question a week or so ago and no response. Just...[more]
Search results for "porphyria"
by Lilybee, Sep 23, 2008 07:17PM
I am hoping that someone knows about porphyria testing and di...[more]
by catgir, Mar 31, 2008 07:35AM - 1 Reply
When plasma coproporphyrins are elevated and porphyrin urine...[more]
by BJP, Jun 08, 2001 12:00AM
Does anyone who post here have porphyria or ahve you been tes...[more]
by Trinity4, Oct 24, 2007 10:25PM - 2 Replies
I asked this question a week or so ago and no response. Just...[more]
by entdoc, Jan 19, 2008 11:26AM
Can anyone give me the names of doctors who are knowledgeable...[more]