porphyria

Information, Symptoms, Treatments and Resources

Blank
Posts on porphyria (17)
Fall of 2011 I was on Interferon and Ribavirin, never did get to the Victrelis (13 weeks). ...
Does anyone know what can cause erythrocyte protoporphyrin levels to be more than twice wha...
My niece is being tested for porphyria. I have read up on the disorder, but could not find ...
Hi,I'm a 43 year old woman with 1985 Stabbed in head in right temple/6" drain got blood p...
Jim, I read the posts and you know a great deal about this disease. Tested positive fo...
I asked this question a week or so ago and no response. Just wondering if anyone has ever ...
Hello. I have all the signs of porphyria. I have absolutely no doubt that I have this disea...
Can anyone give me any info on this procedure?
I am at my wit's end with Doctors and havent been to one in six years until last week. She...
HI- I am a 32 year old female that has recurring burning sensations in abdomen-now in sev...
Journals about porphyria(1)
Avatar universal
my husband has acute intermittent porphyria, or the the ALA one. Which is the rarest. ...