Holoprosencephaly

Information, Symptoms, Treatments and Resources

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Posts on Holoprosencephaly (14)
Hello, I have a 3 month old daughter that was born with multiple congenital anamolies---...
what is the percentage of having a normal or living baby having holoprosencephaly, can thos...
Today we found out our little girl has Trisomy 13 and Holoprosencephaly. We have opted to b...
My question: Some people with angenesis of the corpus callosum suffer from serious disorde...
Hi I just want to introduce myself to everyone. My name is Jess and I'm 24. Just took a pr...
I recently had an MRI which showed I had no septum pellucidum and my anterior horns are fus...
Patient 9 year old male. No signs of motor functions problems or development concerns at...
My 4 yo son has congenital scoliosis. His pediatric orthopedic dr had us do a MRI of the b...
My daughter is 5 months with a complicated medical history, including lobar holoprosencepha...
I have recently had an MRI and discovered that my septum pellucidum is absent and that I ha...