It was 1987 that I was diagnosed with fibromyalgia. I dealt well with the symptoms with Ibuprofen and a tricyclic antidepressant to help with sleep and some of the pain. It was hard but I completed a two year degree in medicine raising two kids by myself. I ended up having to stop Ibuprofen in 92 due to a duodenal ulcer. In 1999 I was diagnosed with hepatitis C and underwent treatment for nine months ending on the very last day of the year 2000. My symptoms for the fibromyalgia went into remission within a month of starting the treatment, so I considered that the symptoms may have been the hepatitis all along. Entering into the year 2001 and receiving the good news, that my numbers were less than 100! I was a responder. I felt better on the treatment than I had in years. So, I thought it was time for my five year partnership with a great guy end in tying the knot. We had a small ceremony in our home on January 27, 2001.
Within approximately a month, I started noticing symptoms. They were the same fibro symptoms I had dealt with for 13 years! However, by two months AFTER TREATMENT, all of the symptoms from the fibromyalgia were back; but this time the pain was worse by tenfold. I was in tears daily due to the pain. The inability to concentrate (which was a symptom I acquired more intensely during treatment) is disabling me, now, from doing the documentation that is a MUST as the owner of an Adult Family Home! The fatigue, the sleep problems and all the rest of the crazy symptoms from fibromyalgia were back but with a vengeance.
Or..., maybe, the fibro is back with the added benefit of post hepatitis C treatment symptoms. Or, perhaps it is all due to the nine months of injecting chemicals into my belly and popping handfuls of drugs!
What ever the case, I feel like I'm in both boats... I responded to the treatment and feeling great, I celebrated my WIN by getting married. Then I'm slammed with more misery then I have ever before experienced. How do I tell my new husband that I'm not sure I can keep running this business that he just bought a house for because we were going to lose it to the landlord selling! This is just crazy! I'm better but I feel worse than ever! What is worse, I am not able to take Ibuprofen or, now, Tylenol because of my all ready compromised liver.
That was 2001. I started on chronic opioid therapy in the summer of that year or I was going to have to shut down a loving care home and turn my back on several people who loved living here and whom I loved. Thank God I researched chronic opioid therapy thoroughly before even talking with my doctor about it; and, I have remained completely compliant with dispensing my medications!
By the grace of God and a few good employee's, I was able to hang in there for a few more years. I closed my business on the last day of 2005 but continued caring for one gentleman who had been there for ten years until he died in 2010 and my mom spent her last year with me in mid 2007
to mid 2008. Believe me though, it has been an extremely hard life and I have neglected many of my own needs and now Social Security doesn't think I have earned my right to disability. Forty years of working. Often carrying a full time job and a part time job just to make ends meet while raising my kids and almost NEVER calling in sick unless I thought it would be harmful to other's or I simply could not get my head out of the toilet.
Here it is, 2014, I can hardly function. I can't stay focused on the task at hand. I have all the above symptoms, severe osteoarthritis, severe colitis, and some neurological symptoms that make me drop things constantly. I am very shaky I can't stand for more than 5-10 minutes, sit up for more than ten minute to a half an hour without becoming too uncomfortable and I never sleep more than two hours at a time without needing to sit up quickly due to pain. So I don't ever feel rested. Camping, fishing, gardening, dancing not even an option even though I am no longer tied down to caring for anyone. Hell, I can’t even get my dishes caught up!
So, responder or not, fibromyalgia or not, I think there is something there concerning the issue of post treatment symptoms. I also think that fibromyalgia is a stealth virus that was introduced in the form of a polio vaccine that was tainted with the cytomegalovirus found in the monkeys that they grow the vaccine in. A virus that affects the brain which accounts for the variety of symptoms depending on which part of the brain that is most affected. A virus that is sensitive to the antiviral drugs that are involved with the treatment of Hepatitis C.
That is my story, and I am sticking to it!
Strong supporter of Dr. W. John Martin!
(He isolated this “Stealth Virus” in his research of vaccinations that he was paid to research. The Government had him research vaccinations but stripped him of his license when he found something that pointed the finger straight at the Government!!)