Mar 19, 2009 -
comments
3/19/09 Start the taper tonight. Will do 1/2 a shot of peg and lower riba to 1000. My bloodwork this week shows wbc tanking, but that was expected as I took 2 doses of peg in 1 week. (last week). One last little push before the taper. Tired this week and mild flu symptoms. ALT at 23 and AST at 31 which is the lowest it has ever been. As the peg is now reduced, I will up the lactoferrin, whey protein, shark liver oil, olive leaf., siliphos. 3 wks on taper and then hit the rivers with the kayak!
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3/20/09 Lightheaded and tired. Headache and aches. Havn't experienced this at weeks end before. My immune system is working on something. 1/2 dose tonight.
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3/27/09 Was in rough shape the last week. Took 1/4 dose last night and feel as if I took a full one. So worn out, but nearly there. Lactoferrin increased from 200 mg to 400 mgs daily.
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3-28-09 How weird. Took a 1/4 dose on 3-26 and have had the worst run of sx since I DD at start of treatment. I have been in bed for the last 24hrs. FLUlike, aches, URQ pain, headaches, and nightmarish cramping! Thought those who dose reduced felt quite good. I am concerned here, this doesn't make much sense to me.
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4/7/09 Been off the drugs for a week now. I expected to feel instantly better as this was case last tox. Nope. I have some problems, fatigue, insomnia, very light colored smelly stools. Smells like ammonia or acidic. (gross) Perhaps I have Steatorrhea: Steatorrhea is the passing of fat in your bowel movements. The presence of fat in the stool makes the stool smell particularly bad. or maybe Bilirubin is low, or maybe my immune system is just freaking out. I am taking the supplements and have increased the lactoferrin. Took 1/2 dose of Neupogen and Procrit last night. I will go get a blood draw tomorrow. Hopefully, I am worrying for nothing.
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4/10/09 Felt pretty good yesterday, but back to awful today. Waiting on blood test results.
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4/15/09 Tests look ok, but I feel so fatigued and spaced. Not bouncing back off this tox.
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4/28/09 3 good days in a row. I may have turned a corner here. Ultrasound and endoscopy show no change in varices and damage from a year ago; good enough. Putting on weight which is bad, but if continue to feel good, will start diet and exercise.
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5/4/09 Definately recovering now. Feeling good for a week. Spent the weekend in the campground getting familiar with the 5th wheel. Lot of fun work. Dawn and I thinking of bailing on the house and becoming full time RVer's.
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5/25/09 Taken 5-17. 6 wk post. HCV Qual RNA by PCR Negative, No HCV RNA detected.
Reference range: < 50 IU/mL. (smile)
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7/20/09 14 WEEKS POST AND STILL UND!!!!!! Bloodwork looks good except PLTS at 88.
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9/21/09 6 mos PCR. Negative. I beat it!
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10/1/09
From mrmeet
"Way to go gauf! I knew you'd make it. Seems like it was just yesterday you were pondering treatment and things seemed dire and uncertain. But you stuck to your guns and investigated every nook and cranny, intelligently weighed your options and adopted unique and innovative strategies. Looks like it paid off for you, and it pulled you back from the precipice in just the nick of time. That's the best kind of victory; savor every moment. You earned your battle stripes that's for sure. Take care of that liver and enjoy a long life my friend."