lisaob1's Profile
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Feb 20, 2013 - 0 comments
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my daughter has been with alderhey from birth..and my elder daughter i lost was also...so for nearly 20 yrs i had a little faith..my daughter has done the transition from child to adult care....AND WOW...the total lack of care and help is quite unbelieveable.....we live in the uk...im still fighting for help for my daughter.....had words with her neuro consultant surgeoun the other day....! pardon me for being blunt people...but if you have a few pounds in your pocket..then people are willing to listen,......
Dec 13, 2012 - 5 comments
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i love medhelp..its so supportive...but my daughter is struggling with her rare syndrome....and i cant find anwsers anywhere anymore...i dont know where to turn....think iv had enough now....she got a rare genetic syndrome..rare muscle disease..searched high and low for many many years......dont know how far i can take this.....with getting no answers.......a tired mum x
Nov 20, 2012 - 1 comments
if there is one thing iv learnt..its no matter what you have to deal with things on your own...no matter what its only you that can get you out of the situation your in...by all means accept help..any way shape or form...but its you an only you that can make your life what you want it to be
Nov 08, 2012 - 7 comments
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what do you do when doctors cant tell you what the future is?..what do you do when it affects your relationship with your partner...so again..you cant see the future with this?
what do you do when you feel like you have just given up altogether...but because..you cant see any future?
when you family go distant,and your friends although there..but afar,
an is it then you realise! you have pushed everyone away?.....
what do you do when you feel like you have just given up altogether...but because..you cant see any future?
when you family go distant,and your friends although there..but afar,
an is it then you realise! you have pushed everyone away?.....
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