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Trying to Recover!!!

Apr 14, 2011 - 3 comments
Tags:

recover

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Insomnia

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surgery

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Chiari



So I had my surgery on March 16th and all went well  I  suppose, except when I got home I couldn't cough, sneeze, breathe deeply, laugh or even fart (seriously) without having a massive pain shoot right thru me.  So I went to the ER of the hospital and was admitted and put on antibiotics, two days later went back into surgery to have my wound washout and omg, the pain was horrible the second time around.  I have since been recovering and trying to remember my limits.  Not exactly sure how long the process takes.  I get my stitches removed on April 21.  I am sometimes feeling good and then BAM its like I'm not, still taking muscle relaxers and suffering from serious insomnia. And I'm not even napping in the day...The headaches comes from me not remembering my limits but I'm dealing with it...idk..I know that it was the right thing and the thing I had to do because I was suffering but now idk how to cope with these new limitations.  I am a workaholic, must be doing something and now I have been stopped in my tracks and trying to find something to occupy my time and failing miserably....I suppose in time it will work itself out but until then I need some suggestions starting to feel swallowed up by what I now call my handicap.

"Hmmmm"

Mar 05, 2011 - 3 comments
Tags:

Pain

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test

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family

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surgery

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MRI

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lupus



Hmmmm... I have been experiencing so much pain and so many symptoms was told I was a hypochondriac and there is no way I can possibly be in pain everyday and then a diagnosis...I have had so much blood drawn and ct scans and ekgs and still no clue.  Finally and MRI to check for MS and we find Arnold Chiari.  This journey has been a long one and continues to be, I have 3 kids and I am not certain of the outcome of surgery.  I know I need it because my symptoms are getting progressively worse, yesterday I was unable to walk or get off the couch.. Some time before that I was unable to open my eyelids on my own, such weakness and pain is unreal, yet I try to be strong and be normal for my kids and family...On the inside I am quivering and feeling like no one understands so I grin and bear it...My twin brother has been wonderful even though he is a bit bossy he listens to me and supports me and doesn't just say everything will be okay because even if I will it to be okay it doesn't mean it will be.  Just so confused and having an out of body experience and wanting to cry...there is also a positive lupus test I have to deal with my plate runneth over and I am trying my best but not sure of my success...