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Life Post-Incivek

Oct 31, 2011 - 8 comments
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incivek



I am now 3 weeks post-incivek and wow what a difference.  Although I am still anemic (waiting for procrit to kick in), I feel so much more like my old self.  The itching is all but gone and all anal issues are gone.  I love being able to sleep more than 8 hours straight and not force-feeding myself.  I have experienced a more pronounced metallic taste in my mouth.  This definitely makes drinking and eating more difficult and I have lost a little over 5 pounds.  Personally I am delighted in the weight loss, but I know I still have to drink.  I have started taking an anti-anxiety pill at bedtime and this helps me sleep.  I think if I could just get the hgb level up, I would feel like I could run a marathon.  Other than this, I am so very happy to report that life has gotten better!!!!

For those of you still duking it out with the incivek-demon, hang in there.  I swear the closer you are to the end the harder it is.  But keep your eye on the prize.  You can do it!!  

Will I make it....3.5 days to go

Oct 10, 2011 - 7 comments
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Fever

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body aches

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incivek

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nausea

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Itching

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Week 12



Three and a half days of incivek to go and I slammed into the wall at full speed on Saturday.  I'm feeling really bad.  I have started running a fever again usually in the evenings but all day today.  It's about 100 but enough to kick my butt.  I think I have thrush and started with a rinse on Sunday.  My mouth is a mess.  No sores but it hurts and my bottom lip seems to have little red dots like pin pricks and it burns.  I am itching on the palms of my hands, my hips, around my neck and areas under my bra.  I am having a very hard time eating and drinking anything.  Vomited last night.  My body hurts and I feel like I can hardly walk.  Bad, bad, bad.  I called the doc and am going to see her tomorrow morning. How can the last few days be this bad when I was doing so well?

Week 10 - Feeling Good

Sep 26, 2011 - 6 comments
Tags:

Week 10

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Feeling good

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triple treatment

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incivek



Week 10 of triple tx.  Thanks to neupogen my wbc are back in normal range and hemoglobin in hanging between 9.2 and 9.4,  I feel better than I have since I started treatment I think in large part to the neupogen and also starting an immodium regime.  Diarrhea or should I say "fiarrhea" for 8+ weeks was the worst.  I have a metallic taste in mouth and even water is hard to drink.  But I've been flavoring it with lemon and lime.  I know how critical it is to stay hydrated so I still shoot for nothing less than 64 ounces per day.  My sense of smell is on overload and every little smell can send me into a fit of dry heaves.  Even with all this I feel pretty good.  Knowing that I am in the final stretch also makes things easier.  I am looking forward with great anticipation to my last dose of incivek.  If anyone reads this journal, I hope it gives you hope.  We can do this!!!

Shot 8

Sep 10, 2011 - 0 comments
Tags:

week 8

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triple therapy



Started week 8 yesterday.  All in all, I think I'm doing pretty well.  Despite starting neupogen I think I am struggling to keep wbc and platelet counts up.  I've started having afternoon fevers again.  I guess my 8 week blood tests will tell that story.  It's getting harder to eat and I'm struggling with the dry heaves.  Sometimes it's very difficult to take my pills.  Unless I am in the grip of the fevers, I remain upbeat and positive and I try to rest as much as possible.  I'm very much looking forward to finishing the incivek.