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Aug 7, 2012 - rheumy appt

Aug 08, 2012 - 0 comments
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Dr

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Pain

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Back pain

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Knee

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burning

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med change



I saw Dr  this day.    I was suffering from severe burning in my lower back, left side that eventually radiated to my right lateral side and felt under my pelvic girdle.   Worse when laying down.    I also was experiencing severe burning in my upper back, shoulders and neck.    I have been off plaquenil since the first of June and my joints have steadily gotten more inflamed.    I also stopped savella a few months ago because of side effects but the pain I was experiencing was mostly FM and the dr wanted me to try savella again and see if I tolerated it better this time because it did help a lot when I took it.    For the first time in a long time my right knee is very inflamed and my feet are painful to walk on and my hips, wrists, and finger joints are all affected now.    Dr said this proves I need all three drugs because anytime I have to go off of one, this happens.   I correct myself, it's now all four drugs.   My gums have not been bleeding lately and that is due to a decrease of mtx, I believe.   I stopped the plaquenil in June because of reactions I get from the sun.    I get pins and needles all over that are continuous and very uncomfortable and I can't sleep or get any relief from this.    Stopping plaquenil helps greatly.   But it also made my RA flare.   My doc advised me to start glucosamine to try to slow down OA.    My left thumb has a huge painful knot on the joint and my right one is developing one.    

Worsening symptoms

Jul 30, 2012 - 0 comments
Tags:

burning

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worsening symptoms

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Neck

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Back



For about one week my joints have become tender and painful as they were when I first got RA and the drugs were working and reducing the swelling but the there was still pain and burning.   It is even in my finger joints.   Plus, the pain in my muscles, upper back and neck and lower back are primary.   It is the intense stiffness and burning in the muscles.  I took savella for a few months and quit it about two months ago.   The drug really worked well but I felt as it it was affecting my mood drastically.    I was extremely irritable and angry so I stopped it.    My muscle pain has pretty much remained calm until now.     I will be seeing my dr next week but I am going to call him about taking steroids until I see him.    I stopped plaquenil the first of June because of the ins and needles it causes when I am out in the sun.        He will probable make me restart that or up my mtx which I take 7.5mg a week now along with humira.  

Autoimmune Disorder Tracker

Better today.  Blue hands.  

Mar 02, 2012 - 0 comments

Yesterday I started having burning from my upper spine all the way down and the area with shingles was starting to burn.   I went through the day with back and neck stiffness but the pain decreased through the day with NSAIDs and a lortab.  I woke up this morning with a big I provement in my back.   My back does this intermittently.   I have Raynauds's and my hands have been colder and bluer than usual and at times I have some numbness and tingling to a couple of fingers.  My left wrist is becoming more inflamed.   My rheumy said I could start my humira in a week and also start back on my mtx because of the shingles.   I listed dr visit on my tracker because I was in contact with him for advice onmy treatment and meds.  

Autoimmune Disorder Tracker

Fibromyalgia!     savella

Mar 02, 2012 - 0 comments

I suffered with muscle pain for a few years and thought it was part of the RA but now I realize that I have FM.   After going to my pcp a few times with pain not explained by RA he had me to try Savella.   I skeptically filled the rx.   Within a week I noticed that my muscle pain was noticeably improved.    It flares at times but it has helped a lot.