At last we have a diagnosis for what's wrong with Dillan he's got Cri Du Chat syndrome/ minus 5p syndrome going to look up what it is. At the moment his reflux is v bad and has started with diarreha oh joy of joys don't you just love those stinking nappies.

FEEL LIKE I'M WORKING ON AUTO PILOT DILLAN DIDN'T GO OFF TO SLEEP TILL AROUND 3AM. HE WAS REALLY HIPER. GETS UP AT 7AM AGAIN HIPER.DOESN'T WANT TO EAT TODAY JUST WANTS TO PLAY ALL THE TIME STILL REFUSING FOOD AND NEARLY BEDTIME. NOT HAD MUCH MILK TODAY ABOUT 200MLS SO LOOKS LIKE I'M GONNA HAVE TO KEEP FEEDING HIM DURING THE NIGHT. CAN'T WAIT TILL I CAN STOP FEEDING HIM AT NIGHT AND HAVE A DECENT NIGHTS SLEEP AFTER 27MONTH OF BROKEN SLEEP BEGINNING TO WONDER IF I'LL EVER SLEEP THE WHOLE NIGHT EVER AGAIN.

Had sleepless night with Dillan again his reflux was v.bad .omeprazole, domperidoe and 2 lots of infant gaviscon later he fell asleep. Tried to get hold of his consultant but she's on annual leave someone will ring me back they said still waiting. Health visitor due next week then off to see child develpement specialist on 22/04 ,on the 30th seeing genetics for more results. Still waiting for date for peg feed to be fitted. Still keep on smiling have paperwork through for nursery place at specialist nursery that deals with children with eatin/communication/developemental problems.If they can get him to even start to talk or eat i'd be overjoyed well fingers crossed all goes well i'm off to bed now to try and get some sleep.