All Journal Entries Journals
Sort By:  

Losing Hope!!

Jul 30, 2012 - 3 comments
Tags:

Chiari Malformation type 1

,

losing hope

,

treatment

,

symptom

,

Kids



I was born with Chiari Malformation Type 1. Some go all their life with no symptoms how ever I started showing all signs and symptoms when getting pregnate @ the age of 19. They say pregnancy triggers the Chiari, and that's what happened in my case. I had been sick for 5 yrs doctors couldn't find anything wrong they said i was too young to have something wrong with me. I was driving down the road with my 2 daughters and woke up in the grass, That was the scariest time of my life. They done some test at the hopital and told me I had Chiari Malformation type 1. I was relieved  excited & thankful that they finally figured out what was wrong with me and I thought I was finally gonna get the help I needed. Little did I know That 4 yrs later I would still be waiting to get treatment answers and relief from this agony I am in. I have done so much research continue to see my neurologist, and am losing hope at ever having a normal life. My neurologist proceeds to tell me that there is something else going on and keeps testing me yr after year. So my life continues to stand still and I'm always in agony. Not the way I pictured my life at all. It's hard to go on but my kids are constant reminders that I have to keep going even when I can barely move. I want to think that one day I will get some answers and finally feel alive again but it's slowly fading away from me. Sincerely, Losing Hope!!!