Dec 03, 2011
I am not doing well. I finished 12 weeks of Incivek last Saturday, did ok for a couple of days, then I started having anxiety, did not sleep Mon,Tues,Wed, Thursday I slept for a couple of hours.
Last night was pretty bad but I tried melatonin and it helped. Will try to write more when I get some sleep
Update, Today is Dec 12th close to midnight, what a time it has been since I first wrote the above Dec 2012. I have really suffered sinc Nov 29th 2012. when I finished the Incivek. I already described the panic I was feeling in a post half in CAPS, and I did not realize. I am really embarrassed by that post. I was having a panic attack due to medication interactions when I wrote the post.. I had a choice to remove it but thought it might help someone else.
I finished Incivek for the first couple of days I was ok, not great but ok. Then, a few days after, all of a sudden I could not read...could not write, could not express a coherent thought. I was very afraid I was having a stroke. My husband took my blood pressure and pulse. He said I was ok. I still wonder to this day if I did have a stroke.
New information regarding Incivek and drug interactions have come out since I started tx Sept 1st 2011. I have written up a time line to hopefully cut and past tomorrow. I am exhausted, my husband has been sick since last week and since it is just the two of us it is difficult so we are leaning on each other. . I let my docs office keep telling me that it was the medicine. Yes, of course it is the medicine however I did a triple trial in 2008 and when I stopped the trial drug at 16 weeks continuing on with peg/riba to 43 of 48 weeks I did not notice any difference so I knew something wasn't right.
Today I was told that when any new drug is approved by the FDA there are always side effects which do not become obvious until many many months or years later. It made sense to me. Why did I rush into treatment? I thought they had researched this for years, drug approved May 23, I started Sept 1st As my friend NYGIRL(7) posted, they have been studying this for years why don't they have something for the rash and the horrible itching? (this was not what she said verbatim but I caught the drift) :) .
Update 11/17/13 There was some new information presented at the EASLD conference of 2013. I will get it bring it back here.
I was looking for help with tx for another member here and came across this. It is a poster from the EASL 2013. It was s a small study