May 14, 2008 11:13PM
-
comments
Timeline
Health Issues
This is an attempt to put into order a timeline of the health issues that have accumulated over the years and have led me to where I am now.
1977: I left home at 15 and moved in with an alcoholic that was many years older than me. I drank heavily for the eight years that I was with him. I started noticing a "numb pain" on the front of my right thigh that came and went. I gave up alcohol in January of 1986 with no treatment or problems.
1978: At 16 I had a UTI, bladder infection, and yeast infection at the same time, with blood in my urine.
1979 – present: I have HSV II and have outbreaks on my face and had ulnar nerve damage from lesions on the hand that has since resolved. I have not had any outbreaks other than on my right hand or the left side of my face.
I have had multiple injuries to my back, shoulders, and knees, resulting in a great amount of pain and surgeries, attempts to control the pain, and disability.
I have a history of PSVT, had an ablation that was partially successful and had pericarditis after the procedure.
I had a rheumatologic work-up that was negative in the 90's
I have had multiple episodes of vertigo, the most severe being in
1988
2006
2008
I have a history of cold intolerance.
2001: I started having a tingling on the lower right side of my abdomen. It came and went over the years, but has progressed to where it is tingling pain, wrapping around from front to back. It is too painful to wear underwear or clothes that aren’t loose and have a lot of give.
I also began having wrap-around pain from the middle of my thoracic region, usually from back to front. It has been recurrent; sometimes one side or the other, sometimes around my whole ribcage. I cannot wear a supportive bra because of this pain.
Since February of this year I have had a series of symptoms that are not like the ones I’ve been battling since your 20's. It is not like the arthritis or any of the problems I have had previously except the paresthesia on my thigh, the pain and sensitivity around my back and chest, and vertigo.
PRESENT PROBLEMS:
2008, February 6: I woke up with tremors in my hands and head/neck, and an intense occipital headache. Over the next couple of days, it had involved my trunk and legs, culminating in a fall on the 11th. Extreme fatigue also was a part of the package of symptoms. I saw PCP on the 18th, who did a neuro exam, took history, and scheduled brain MRI for the 22nd. Saw her again on the 25th, and the MRI showed lesions that could possibly be MS.
February 27: I saw my optometrist, being concerned with the floaters that had showed up with my tremors, after a brief episode of blurred vision. He said that although my vision had worsened a fair amount, he couldn't see any damage, but told me to call if I had any more problems. I got a new eyeglass prescription, with bifocals.
March 12: I scheduled an appointment with a neurologist. My tremors were not as obvious but still a problem with me. He dismissed them, disagreed with the neuroradiologist's report, and told me that my brain was atrophied from alcohol consumption during my youth. He seemed to think the lesions were from microvascular disease, though I made it clear to him that I had no predisposing factors; my BP and cholesterol have been good for years, no diabetes; my glucose is always like 61 or 80.
April 4: I had an outbreak of herpes virus on my face. I caught it early and doubled my Valtrex, but it still had a crust after a month, though the nerve pain was not as intense as it has been in the past.
April 8: I had scheduled another appointment with another neurologist; earliest available was two months after onset of symptoms. She noted "with fatigue of eye movements she may have a subclinical INO with rapid saccades"and "LE there is some vibratory loss on right more than left", "some trouble with tandem"gait.
After I left my appointment with her, I started having sharp pains in my bladder, and my normal frequency became more urgent, and I started having a buzzing/tingling sensation between my legs. One evening the buzzing wrapped around my left thigh and tingled for a few hours. The bladder symptoms decreased after several days. I saw my PCP on the 10th, (two days after bladder symptoms started) and she ordered urinalysis and culture, which both came back clear.
April 11: After my Lumbar puncture I developed a spinal headache that required a blood patch on April 15, which resolved the headaches. I developed more floaters, including my left eye, after the LP
April 18: I saw an ophthalmologist on, who said my optic nerves looked very healthy, and that the floaters often happened because of the pressure difference after the LP, and they are nothing to worry about, and that my vision was the same. It seems blurry to me. I'm scheduled for a visual field test on May 14.
My LP and blood work came back essentially normal, though I'm concerned that perhaps more obscure causes for my symptoms may not have been tested for. I wonder if the patchy areas on my thoracic spine could have been there since my old Judo injury, and are lesions of another sort that cause some of my symptoms.
My PCP ordered other blood tests, and my thyroid levels are good.
Tremors and dizziness continue to be a problem. I often drop thing or lose my balance. I often wake up with tremors more active, and then ease up. They are also worse after I do physical exercise.
May 11: I woke up once again with the intense occipital headache and much increased tremors; my head going back and forth rapidly, and my hands jittery. I am also having a difficult time walking straight, or keeping my balance.
May 15: Follow-up with neuro; significant exam findings: "she has a head, vocal, upper body tremor. It is variable frequency and fluctuates during the interview from not being present to being more obvious". "Today she has a distractable Romberg". She put her hand on my chest and then my back, stopping my swaying, as soon as I began to sway while tapping my fingers together, after about 10 seconds each time.
May 17: While watching a live basketball game, my vision became very jittery; I couldn't focus, my whole field of vision was jumpy for several minutes. I then became so tired that it was hard to sit up, to hold my head up.
Balance issues continue to be a problem.
May 22: Saw PCP; she thought May 17 event was a seizure, scheduled EEG.
May 27: EEG
June 1: I was laughing and talking with my roomate while in the bathroom, and lost my balance and fell face-first into the half-wall between the tub/toilet area and the sink/vanity of the bathroom. Got paint on the lense of my glasses, bruised my left eyebrow, cheekbone, even gums hurt.
June 2: Difficulty keeping my balance; run into wall while turning corner into kitchen, bathroom, etc. Catch myself on walls, chairs, or shelves while in public. Use shopping cart for balance when only buying few items.