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SOV/RBV GT2 Post Treatment Journal July 16, 2014 Latest Update

Jul 07, 2014 - 2 comments
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post treatment

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journal

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update

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July

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sleep

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surgery

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Exercise

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Music

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positive

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HCV

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Hepatitus C

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active

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mediation



Finished treatment on June 25  hgb 11.8 a little low  VL undetected EOT (end of treatment).  Still feel fatigued from RBV.    I try to nap 30 min once or twice during the day if needed   I am focused on staying active as much as possible.

I went camping over the 4th of July weekend at the Great Blue Heron Music in Sherman, NY  country rock, Cajun, folk, Roots, Zydeco, Bluegrass music  etc.   Didn't get much sleep Friday night was in the dance tent till 2 am then back up at 5 Am till 7 am then 4 more hours of sleep.  Sleep real good Saturday night in my tent with 18in high great air mattress. 3w Am till 11 am . Temp was about 55 late at night great sleeping weather . Kept well covered and used bug spray to protect against possible tick Lyme or mosquito born West Nile and other possible diseases.
The music and fellowship was amazing.  

Going to bed now it's midnight Monday night and have to get up at 6:30 AM for cataract eye surgery for my other eye. I love being so busy i don't have much time to thing about being tired or not achieving SVR.   Damn it's summer and doing my best to enjoy it without overdoing it.  I exercise, use mediation, try to eat healthy and be socially active.  I will nap if needed but then focus on doing something positive no matter what.

July 16, 2014 Latest Update, cataract eye surgery went well since I had to limit my activities for about 10 days like running lifting etc. I've spent a little more time commenting in the Hepatitis C community the past week.

Planing on heading to Trumansburg, NY near Ithaca for the Grassroots Festival of Music and Dance  grassrootsfest.org so will give an update next week.

SOV/RBV GT2 Treatment Journal July 7, 2014  Latest Update

Apr 03, 2014 - 5 comments

April 3, 2014 I started treatment  Last update July 7, 2014
1. Treatment Overview
2  Latest Update - Treatment Log (Daily log discontinued updated only when important events occur)  in reverse order   First 2 weeks info moved to comment due to text limitation
3. Pre Treatment Blood Labs
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#1. Treatment Overview
GT2 F3/F4 Class A compensated Sovaldi/Sofosbuvir 400 mg 1x,  Ribavirin 3x200mg 2x =1200 mg/day  12 Weeks
Other journal link HCV  History, other medical conditions etc. Also detailed lab tests results in the past year.
http://www.medhelp.org/user_journals/show/993621/My-Hepatitis---History---Biopsies---Blood-Test---Other-Conditions-?personal_page_id=2876859
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Latest Update - Treatment Log in reverse order

Update posted July 7, 2014  
July 2  EOT VL undetected as expected  My tx Np was going to wait foir 12 weeks post for VL but i talked him into doing it in 6 weeks post EOT when my CBC including hgb are going to be checked.

Finish tx on June 25. HGB and related still a little below normal but should return as the RBV gets eliminated from my body.    My biggest side effect was greater fatigue especially during the last 4 week of treatment.  this should improve over time. expect that the VL EOT will show undetected next week.  12wks SVR expected end of Sept.

May 28 2014 wk 8 labs lucky HGB stabilized and was 12.2 so no RBV dose reduction.  Platelets down to 111 Low.

I have been very busy and traveled 400 miles to camp out at a music festival for the Memorial Day weekend.  My only real side effect is a little more fatigue as expected. A short nap or two during the day helps a lot.

May 14 2014 wk 6 labs
platelets 123 Low  HGB 12.0 Low (drop of 2.3 from wk 4 to wk 6 as much as the first 4 wks and was hoping they wouldn't much lower and have to reduce RBV
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May 9, 2014  Great News Results from week 4 VL test  undetected!!!
April 30, 2014 4 week blood test results
ALANINE AMINOTRANSFERASE 21 units/L 10-55  (down from 150 pre treatment)
ALBUMIN 4.0 g/dl 3.4-4.5
ASPARTATE AMINOTRANSFERASE 20 units/L 6-32 (down from 109 pre treatment)
BILIRUBIN 1.0 mg/dl 0.1-1.0
HEMOGLOBIN 14.3 g/dl 13.5-17  (down from 16.7 pre treatment)
ERYTHROCYTE DISTRIBUTION WIDTH 15.9 High % 11.7-14 (first time High)
PLATELETS 127 Low K/mm3 140-375   up from 88 pre treatment
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April 25, 2014 Report received
DAY 14  VL Results results Great news, undetected expected at week 4
HCV RNA LOG10* (V2) 1.1 LOG 10
HEPATITIS C VIRUS RNA  <12 IU/mL
Target Detected
The quantitation range of HCV RNA RT-PCR is 12-100,000,000 IU/mL.

See my comment below for first 14 days Note DAY 14  VL Results posted in COMMENT reply BELOW is incorrect and can not edit. The results above are correct.

My Hepatitis C  GT2 - History - Biopsies - Blood Test - Other Conditions Before Treatment

Jan 05, 2014 - 3 comments
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Hepatitis

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history

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test

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years

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biopsy

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Blood



Starting from 1980 Non A Non B acute exposure up to treatment start on April 3, 2014
Includes My Hepatitis C  GT2 - History - Biopsies - Blood Test - Other Conditions

Treatment Journal link SOV/RBV 12 weeks
http://www.medhelp.org/user_journals/show/1050903/SOV-RBV-GT2-Treatment-Journal-April-3--2014-?personal_page_id=28768590.

Update March 5, 2014   Waiting for Pharmacy ok and hope to start 2nd week in April.

Updated Feb 12, 2014
My VA doctor has approved me for Sovaldi 7 Riba for 12 weeks. But the VA is only providing Sovaldi for the most critical need patients at this time.  I was told hopefully treatment can start within the next 2 to 3 months.

I was infected in 1980 non A non B with strong acute symptoms which lasted about a week
1999  diagnosis HCV
2000 biopsy Stage 2 Grade 1  
!st Genotype showed 2a  second test showed 2a 2c

biopsy 27 Jun 2012
2 needle biopsies of tan to
yellow-tan, soft tissue each measuring less than 0.1 cm in diameter,
and ranging from 1.4 cm up to 1.6 cm in length.
Batts-Ludwig GRADE: 2 (Mild interface and/or lobular activity
involving some or all portal tracts, with little hepatocellular
damage/necrosis).
- Batts-Ludwig STAGE: 2 (Periportal or rare portal-portal septae).
- Other features: Steatosis: not identified.
Granulomas: not identified.
Iron accumulation: 1+ (minimal), in Kupffer cells.
- INTERVAL CHANGE: Comparison with previous biopsy SP-00-1402,
procedure date 05/03/2000 :
- ACTIVITY: no change.
- FIBROSIS: minimally increased.

2013 test
Date/Time Collected: 16 Jul 2013
ALANINE AMINOTRANSFERASE 111 High IU/L 0-55
ALPHA-2-MACROGLOBULIN 322 High mg/dL 110-276
APOLIPOPROTEIN A-I 139 mg/dL 110-180
BILIRUBIN 0.4 mg/dL 0.0-1.2 Details
FS-ACTIVITY GRADE* (V2) A3 - Severe activity "A0 - No activity"
FS-ACTIVITY SCORE* (V2) 0.73 High 0.00-0.17
FS-FIBROSIS SCORE* (V2) 0.64 High 0.00-0.21
FS-FIBROSIS STAGE* (V2) F3 - Bridging fibrosis many septa "F0 - No fibrosis"
GAMMA GLUTAMYL TRANSFERASE 48 IU/L 0-65
HAPTOGLOBIN 72 mg/dL 34-200
ALPHA-1-FETOPROTEIN 7.1 ng/ml (0-8.7) Final
ALBUMIN 3.2 Lowg/dl (3.4-4.5) Final
PLATELETS 94 Low K/mm3 (140-375) Final

December 23, 2013 Blood test results
ALANINE AMINOTRANSFERASE 185 High units/L 10-55
ALBUMIN 3.8 g/dl 3.4-4.5
ALKALINE PHOSPHATASE 74 units/L 50-136
ASPARTATE AMINOTRANSFERASE 118 High units/L 6-32
BILIRUBIN 0.6 mg/dl 0.1-1.0
CALCIUM 9.1 mg/dL 8.4-9.8
CARBON DIOXIDE 25 mEq/L 22-32
CHLORIDE 106 mEq/L 97-109
CREATININE 0.82 mg/dl .7-1.4
GLOMERULAR FILTRATION RATE.PREDICTED >60 mL/min >60
GLUCOSE 95 mg/dl 70-115
POTASSIUM 3.6 Low mEq/L 3.8-5.1
PROTEIN 8.0 g/dL 6.3-8.0
SODIUM 140 mEq/L 135-145
UREA NITROGEN 25.6 mg/dl 9-26
COAGULATION TISSUE FACTOR INDUCED 10.1 sec 9.0-12.0
COAGULATION TISSUE FACTOR INDUCED.INR 1.0
ERYTHROCYTE DISTRIBUTION WIDTH 12.8 % 11.7-14
ERYTHROCYTE MEAN CORPUSCULAR HEMOGLOBIN 33.1 High pg 27-33.0
ERYTHROCYTE MEAN CORPUSCULAR HEMOGLOBIN CONCENTRATION 36.4 High g/dl 32.6-34.7
ERYTHROCYTES 5.23 M/mm3 4.3-5.5
HEMATOCRIT 47.5 % 38-50
HEMOGLOBIN 17.3 High g/dl 13.5-17
IPF* (V2) 5.6 % 0.9-11.2
LEUKOCYTES 5.6 K/mm3 4.4-10.7
MEAN CORPUSCULAR VOLUME 90.8 fl 83-98
PLATELET MEAN VOLUME 11.5 fl 9.0-12.6
PLATELETS 95 Low K/mm3 140-375
ALPHA-1-FETOPROTEIN 8.1 ng/ml 0-8.7

I am treatment naive  -was offered 2008 but declined treatment and again in 2012 after biopsy. I had friends who had real bad experience with iNf and riba. I live alone and didn't want to deal with it

My doctor is a Gastroenterologist at the Buffalo VA and a Clinical Professor at University at Buffalo.

2012
Mar 1 cataract removed
April Also had a 1 parathyroid removed
Aug 4 stents put in my heart  

2013
Sept Stress test  I reach 11.1 mets 139 % of a normal 66 year old
Using and compliant CPAP for sleep apnea  7 hours daily ave use.
On blood pressure meds hydrochlorothiazide  usual range below 140 /80

More recent blood test in comments to this journal