Apr 25, 2009 -
comments
As my disease becomes progressively worse,(Congestive Heart Failure) I have noticed that I am having a very difficult time accepting the end result. Being close to death is nothing new to me, having done so at the age of 9 month (according to my mom) with major surgery to correct the cleft palette I was born with. Then, being pushed off a third floor window ledge and shattering my right femur and left wrist had pretty much the same result. Having three perforated ulcers in my stomach and the surgeries to save my life again brought me to the brink of death. And then the five near fatal heart attacks has made it so that, according to myth, I am S.O.L having used up my nine lives. Guess I"m living on borrowed time now. But to be told by my doctor that I should get a hobby and enjoy it while I can has really sent me into a tailspin. I read about the 5 stages of grieving, and would guess I'm still in denial. I cannot believe this is happening, my ejection fraction has gone from 40% following the heart attack in August 2007, to 15% following the heart attacks last year. I bounce back and forth between denial and anger, lashing out at any little thing that goes wrong. If I turn on my computer and it doesn't start fast enough, I get angry, If I'm cooking something and it does not turn out the way I expect it too, I throw it away and do not eat. Doesn't matter that I never feel hunger pain anymore, not since 1986 when nerves to my stomach were severed to try and slow down acid production as well as losing 1/2 of the stomach anyhow. I don't get angry at people except myself, blaming my body for screwing me over,(how does one justify that?, is the body separate from my consciencesnous?) I get very angry with God for making me suffer the indiginities of my body. I can no longer lay down, my cough gets so bad I vomit, I hate to eat because the pain that I get afterwards from my digestive track doubles me over and brings sweat pouring off my face, I cannot walk or exercise, my right hip and left knee are damaged and cause excruiating pain even when I sit. I have no pain medicine, no insurance, cannot afford medication or doctors' visits. the IRS wants to garnish my Social Security Disability payments to pay off back taxes (which, truthfully, I do owe - it's just extremely difficult to file a return when you're sleeping in a homeless shelter in downtown Houston ). I get sad and depressed cause I think I have suffered enough already and why does God want me to hurt more? It all makes me very very sad. I know there is no cure for CHF short of a transplant but I am not a viable candidate for that procedure. Sometimes I wish my former cardiologist (lost him when I could not pay and stopped seeing him) would have spelled things out a little better. I don't know how long I have left, but am dying (pun intended) to know.