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Hep C Journey

Oct 18, 2008 - 0 comments

Well, so far the pain meds are working and hooray for that as my dad, fresh out of surgery just a couple of weeks ago (age 74) starts feeling better, so he gets the bright idea the stand on a chair in his socks, no less, and work on the smoke detector in his apartment (which maintenance would have fixed had he called them, but that darn male ego.....) and he slips off the chair and breaks his rib but really really good.  He was feeling so great too.  So, heeeeeerrrrreeee we go again!  So, guess I'm fighting off depression as usual.  Sometimes I get really tired and just want to do what I want to do. Wah Wah Wah.  What a crybaby, huh?  I should just be glad that my parents and I are very close and they're still here, so that's what I'll go with.  I so like getting on this site and seeing what others have to say about what they're going thru.  I don't always have as much time as I would like to really get in and read some of the things I'd like to.  Last nite my husband and I went out w/another couple for about the 2nd time in two years.  We had such a great time.  I was sooooo tired by 9:00 that we had to call it a nite as I started gettig vertigo and weaving around like a drunk.  Barely made it home before throwing up, but the evening was worth the punishment after.  That's the way it goes with me....get too tired and all sorts of weird things start happening.  Sometimes my body just decides to check out and I pass out cold right on the spot.  Fortunately for MY ego, that hasn't happened in public yet, but my husband's found me passed out at home several times.  Oh yes, I forgot--no medical reason--it's all in my head!  Oh well, I guess it's off to the races.  Go pick up Mom from the nursing facility to take her so my Dad's so they can spend a couple of days together.  Good for them and good for me.  That way I won't worry so much about Dad being alone and in pain.  The pain meds have worked so well, but my shrink says that it's just the initial euphoria from taking a narcotic and that it will wear off.  What a drag.  I don't feel euphoric.  I just feel glad to be out of pain.  I hope it doesn't go downhill from here.  Just when you think you've got something going they come along and pop your bubble.  Well, off to parent care!

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Hep C Journey

Oct 13, 2008 - 1 comments

I have started pain meds and they worked well day 1.  Day 2--NOT.  Day 3 and 4 Did okay.  Improved mood (It does help when you're not in excruciating pain every second).  Husband commented that I wasn't as irritable as usual.  I know I get irritable and he understands that constant pain can make you that way.  I try not to be too grumpy and he tries not to take my irritability too personally.  Works out well.  Anyway, today I'm hurting pretty fair by 10:30, so I'll try the pain meds again and see how I do.

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Hep C Journey

Oct 09, 2008 - 1 comments

Too bad that I didn't find this site when I could track my symptoms daily.  Nevertheless, I have so very many post tx symptoms that I have decided to track them, so that I can see the progress as I make it.  It is difficult sometimes when one is in the throes of a bad situation to be objective enough to see if there is a difference between, say, last month and last week. I have spent the last year trying one med after another, some with horrifying side effects, in an effort to get myself to the point where I can just go for a relaxing walk without having to come home and go to bed for the rest of the day.  At this point in time, I am waiting for the last drug to clear my system, and in a great deal of pain.  The bones in my legs hurt so badly that I can't sleep for more than fifteen minutes at a time when the excruciating pain awakens me.  I toss and turn all night with the same results.  I have fluttering and pain in my chest.  I have mouth ulcers and throat sores from the last med.  At first I thought it was a virus, but this week I figured out it was all linked to the med.  Fatigue is very heavy, and have been in the house all week.  Last night I called my psychiatrist who has been an absolute precious gem in working with me to get the post tx side effects under control.  Last night I caved.  I have been under the stress of so much pain for so long a period of time that I absolutely lost it, both physically and mentally.  I called her and asked for pain meds, some type of opiate, which is the one family of drugs that doesn't affect me too negatively, and she called some in.  This morning I feel real again after having taken my pain meds.  I don't get any "buzz" off of them, just a feeling of normalcy.  It doesn't take away all of the pain, but at least about 65% of it, which at least puts it in a range that I can manage.  My mom is 70 and in a nursing facility and I don't know how much time I've got left with her.  She's one of my best friends. I can tell her anything, and I know I'm really fortunate to have that.  I have been missing her a lot lately but haven't felt like I could make it to go see her.  Along with the pain comes incredible depression.  Since I've taken the pain meds I feel like I can finally have the ability to get out, so I think I'll go see her today.  My dad is elderly too.  74 and just last year had an aortic aneurism repaired.  Had the most horrendous surgery that the body can tolerate and nearly died.  One year later, (last week) he had to have a new vessel put in as the bypass that was done was not allowing the blood to flow to the back of his head and he's had over 30 falls this year from balance problems due to lack of blood flow.  This week he is like a new man!  What a relief.  I think he'll go another 10 years at this point.  Maybe while I'm feeling better I can go help him out a little too.  Anyway, that's where I'll start my tracker

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