Jun 01, 2010
It is 4:30 in the morning and I am sitting in front of my laptop, bawling my head off because I am so scared and so worried for my husband. I have been searching all night for an answer or a hint to what could possibly be causing his condition.
For 3 years now Jasen has suffered from severe swelling in his hands and right foot. The swelling never seems to go away! It first started with the right foot, around the time we discovered our room-mate had a mold-tropolis growing in his room!
Jasen started complaining that his foot seemed a little swollen but he didn't think anything of it at the time. Suddenly when he wasn't able to fit into this boots anymore we realized we had a problem. But it was only the right foot, the left foot was fine, and still is. Then about a year later his right hand begins to swell, little by little until it is twice the size of the other. Then, just this last April, after our move to our new apartment, his left hand decides it's going to join in and swells to the size of the right as if over-night, and none of this swelling has gone down!
We have been to numerous doctors, all of which say the same thing, "Well that's weird! I don't know!"
Not what we want to hear at this point!
He has been tested for cancer (using a blood test to count his white blood-cells. I'm not even sure if that covers testing for all types of cancer in the body?) blood-clots in his leg, x-rays on his foot. He's been bandaged and covered for tendinits/ carpel tunnel but neither has helped his predicament.
I'm reading up on everything I can, trying to find an answer or at least a clue to point me in the right direct. Everything seems to negative and I can't help but bawl my eyes out! What if he's dying? What if there is nothing we can do? Sure as hell seems that way!
I'm scared, he's scared, but we both put on this brave face for each other.
Trying to get him to go back to the doctor is nearly impossible! Without insurance it has been one hell of a struggle to pay the bills. Now he feels so disheartened and doesn't see the point in going back, especially if the doctor is going to shrug it off.
I don't know what to do. We have no support network, nothing to help ease us and assure us that there is a reason for this and we can get to the bottom of it. His family looks the other way, doesn't want to think about it I guess. My family never seems to remember he's got this medical mystery. No one here wants to listen, no one here wants to help.
We could really use a friend right about now.