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Update on post treatment

Oct 14, 2008 - 0 comments
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post tx

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Recovery

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recover

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update

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testosterone



Reaching my 2 1/2 year post tx point.  Unbelievably, I am still recovering from tx.  Only within the last few months has my stomach returned to normal.  I had terrible upper gi problems from tx.  These are completely gone although I am still on protonix.  Blood pressure issues being treated by Norvasc.   BP issues arose after tx as well.

My sex drive is OK as I am taking testosterone.  Trying to get those numbers settled.  Been on that for a year or so.  I am not able to perform as well as I once did.  Dont know if this is from BP meds or not but it is a fact of life for me.  Luckily I have a very accepting and understanding partner.  Having had performance problems as a young man allowed me to come up with stategies that minimize the problem.  If I had been a stud I really would have been upset.  

I have been working out for about 6 months, lifting weights and aerobics.  I do feel stronger and I am making progress.  Lost 75 pounds after tx, on purpose, using Jenny Craig.  Still have a ways to go but what I appreciate now with SVR is that a a progressing on all fronts and not falling back like when I was sick.  That outweighs all of the problems I now have.  I do not have the disease any longer and my biggest problem remaining is accepting that fact.  

Follow up on post tx

Jun 09, 2008 - 0 comments
Tags:

IGF-1

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post tx

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Recovery



My last post had me checking my IGF-1 numbers.  Well I did and they were low normal - 85 I think.  My testosterone was plain old low - about 200.  Everything else is fine.  Got to see the endocronologist about this and he dismissed the idea of treating the pituitary problems.  He said that I was low normal not low and didnt see that treating this would do any good.  He did address the low testosterone which he prescribed androgel to treat at 10mg per day.  I have been using this for a week and must say I am feeling better.  The feelings of doom and gloom seem to be waining.  I am having none of the strange sides that I had when I took the androgel last year.  Perhaps the sides last year were more from tx issues than from the androgel.  Goes to show, sometimes its not what you take to help your recovery but when you take it.  I will check in later.  

Journey continues

Mar 18, 2008 - 0 comments

Checking back in to comment on post treatment issues.  I am approaching the two year post treatment mark which is quite unbelievable.  Still SVR.  Still working through some issues that started with treatment.   For the good news, the upper back pain has left the building.  Along with it went the buzzing and dizziness.  That took a good 18 months to get over.  My blood pressure is still high but controlled with meds - Norvasc - which brought its own issues and sides.  Just switch over to Altace to see if headaches and mouth problems improve. I continue with my dieting having lost 80 pounds over the last year.   That has helped a lot.   My mood has improved a bit but still feel like I am recovering from the trauma that is treatment.  In my review of the discussions, I have been most intrigued by the comments regarding the pituitary gland and the effect of treatment on it.  It seems like the symptoms that most folks are having post tx could be as an effect of damage to this gland.  I too have low testosterone, lower sex drive, ed, metabolic issues and the like.  I am thinking about getting tested for the IGF-1 to see if this is the culprit.  It seems logical.  It would be nice to find the source of the problems rather than running around trying to address the symptoms with more drugs that have their own sides.  It is easy to get lost in that struggle and simply throw up your hands and say - well this is good enough for me and better than the alternative and besides it will get better eventually.  I am close to that.  

Post treatment journey

Nov 06, 2007 - 0 comments

Seemed like a good place to start writing about the recovery from treatment.  I am blessed with SVR after 48 weeks of combo tx.  Post treatment has been both a boom and a bust.  The good news is that I continue to improve even 18 months AFTER finishing tx!   I continue to see things getting better.  It is WAY slower that even I imagined but the progress is there.   Little things like reaction to foods and medicines.  My stomach was killed by tx and I ended up in emergency room a couple of times with severe stomach pain.  Glad to say that is over with now.  I pretty much have my old iron constitution back.  I can eat just about anything and the liver handles it.  That has improved over time and I believe is an indication that my liver is healing over time as well. I continue to tx my low testosterone but it is quite tricky.  I take it for about a week or two and then start to get rather annoying sides - flushing, mood swings etc.  I stop and feel better but after a week or two start sleeping badly, getting anxious, having general body weidness.  In between these two swings I am quite happy.  I am continuing to watch diet carefully, havent added a lot of exercise yet but have an appt with trainer tomorrow.   Handing this mess over to the experts.  At any rate, I feel quite blessed by the SVR and still dont quite believe it.