Suzie9's Profile
Date for tests
May 03, 2008 06:12AM
- 4 comments
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I have just received a letter in the post for an appointment for another MRI scan on a 3T machine this time[Which i have heard by being on this site is the most powerful scanner] and a Visual Evoked Potential [VEP] test.Both on the 20th of May'08.
I'm glad things are finally happening but i'm a bit nervous.I less than enjoy MRI scans so not looking forward to that plus it just makes me think about things more where as day to day i can sometimes put it all to the back of my mind.
This is mainly because i don't seem to have any symptoms so i can sometimes forget about it. I had Paraesthesia around my spine area for over a year but since taking up yoga i hardly ever get it.I mainly just get stiffness in the same area.As for other sensations i do sometimes feel my arms and sometimes my legs feel a little strange or tingly but i really can't be sure if this is physcosamatic or not.I also have little pale white patches on my arms but have never heard of this in MS.I'm definitely more down in mood and stressed but this is probably just the worry of it all.I am more tired than i ever used to be but i have two children under 3 so i put tiredness down to running around after them.I often try to get an afternoon nap when by little boy has his and my little girl watches childrens TV.
I worry too as i'm a Viola player and i if i do have MS how many years of playing i might have in me and what else i could do if i couldn't play anymore.I'm only good at music so i have no idea what else i could do.My partner would tell me i am jumping the gun a bit but i really can't help it.I feel i really need to start getting my head around the possibility of having MS.
I had a good long think as to weather there was anything in my past that could be connected and yesterday something came to me.About 7 years ago not long after my Dad died suddenly in an accident, i started having funny spells.I discribed them at the time as dizzy spells or a feeling like almost fainting.It was happening quite a lot but only really when i was either in orchestra when reading the music or when i was driving.I did go and see my Doctor at the time but he just made me feel stupid and later down the line when they seemed to have stopped i put them down as being anxiety attacks due to the stress of losing my Dad.I now wonder if it was possibly mild virtigo.I could be way off but that is the only thing i can think of in my past that may be connected.
I will probably write again when i get my test results.
I'm glad things are finally happening but i'm a bit nervous.I less than enjoy MRI scans so not looking forward to that plus it just makes me think about things more where as day to day i can sometimes put it all to the back of my mind.
This is mainly because i don't seem to have any symptoms so i can sometimes forget about it. I had Paraesthesia around my spine area for over a year but since taking up yoga i hardly ever get it.I mainly just get stiffness in the same area.As for other sensations i do sometimes feel my arms and sometimes my legs feel a little strange or tingly but i really can't be sure if this is physcosamatic or not.I also have little pale white patches on my arms but have never heard of this in MS.I'm definitely more down in mood and stressed but this is probably just the worry of it all.I am more tired than i ever used to be but i have two children under 3 so i put tiredness down to running around after them.I often try to get an afternoon nap when by little boy has his and my little girl watches childrens TV.
I worry too as i'm a Viola player and i if i do have MS how many years of playing i might have in me and what else i could do if i couldn't play anymore.I'm only good at music so i have no idea what else i could do.My partner would tell me i am jumping the gun a bit but i really can't help it.I feel i really need to start getting my head around the possibility of having MS.
I had a good long think as to weather there was anything in my past that could be connected and yesterday something came to me.About 7 years ago not long after my Dad died suddenly in an accident, i started having funny spells.I discribed them at the time as dizzy spells or a feeling like almost fainting.It was happening quite a lot but only really when i was either in orchestra when reading the music or when i was driving.I did go and see my Doctor at the time but he just made me feel stupid and later down the line when they seemed to have stopped i put them down as being anxiety attacks due to the stress of losing my Dad.I now wonder if it was possibly mild virtigo.I could be way off but that is the only thing i can think of in my past that may be connected.
I will probably write again when i get my test results.
Hi Suzie9.I think people waiting to see if they have MS are living a nightmare. They have no control over their life, they are in limbo. They don't know half the time if they are having a flair up or are they just making some of this up. They have flair ups and hope the doctor realizes it and believes them. Whether you want to or not ,until you are told yes you have MS or no you do not have MS it controls you in thought. Some people, friends, relatives look at you and see a healthy person because nothing shows most of the time so you must be making it up, need a new doctor. or wanting attention.I live for the day these people can find out in a week if they have MS or not. Until then these people today are the tires that are driven and pushed till they have no tread left, trying to hold on without crashing to see the answer.Some day people wll find out in a week with some new, wonderful machine if they do or don't. maggiesue
Let us be thankful for these people,I remember polio as a child.We went to visit a lady in her twenties, oh she was beautiful. Her skin was like silk. She had long black hair, it was kept softly curled, laying around her face. Her mother would put the light blush on her and the red lipstick looked so good on her. Each of her hands would lay beside her on little pillows. Her fingernails were painted red and kept perfect.She always had a smile for us. I thought she was so beautiful, it just took my breath.Then her two small girls would come running in the room happy, with dandylions in their little fists saying mommy, mommy these are for you. I never saw that mommy unhappy.Her husband always came in the bedroom right away with a smile and hug her.She died four years later. We've come so far from that but it will never leave my memory and I wanted to share. Incase some of you didn't know, some people with polio did not have to spend every hour in the iron lung, and at times, some people could stay out a while if their bed had a machine that would tilt the head then the feet up. It was a way to help the lungs work a while.I am so sorry I have gone on and on, have a blessed night, maggirsue
hi suzie
hope things are progressing ok. My hushand got told yesterday that his symptoms are consistant with ms and he has to get a lumber puncture to confirm things a bit more. So he is trying to get his head around it now. Being young and so much happening in life with kids and work and mortgages its a bit of a kick in the teeth to get this news, but I suppose thats life, and we have to deal with it. I hate for him how things are so uncertain, this disease doesent have a certain path just takes along everyone in a very different manner, he's terrible with uncertainity!! Needs to know everything! So all I can say is mind yourself for now, and thanks for invite, I'll be keeping an eye on how things go for you, Sammie.
hope things are progressing ok. My hushand got told yesterday that his symptoms are consistant with ms and he has to get a lumber puncture to confirm things a bit more. So he is trying to get his head around it now. Being young and so much happening in life with kids and work and mortgages its a bit of a kick in the teeth to get this news, but I suppose thats life, and we have to deal with it. I hate for him how things are so uncertain, this disease doesent have a certain path just takes along everyone in a very different manner, he's terrible with uncertainity!! Needs to know everything! So all I can say is mind yourself for now, and thanks for invite, I'll be keeping an eye on how things go for you, Sammie.
I'm sorry for his news and hope that things go ok for you.The uncertainty is awful and i imagine even when someone is told they have MS it is never certain what kind of course it will take as it is so different from person to person so you have to get your head around never knowing.Not an easy thing for anyone.
Let me know how things go.
Love Suzie.x
Let me know how things go.
Love Suzie.x
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