Lacosomide Working  on Tardive Dyskinesia, Tardive Psychosis, Tardive Dysphrenia and Tardive Dysmentia: Continuing to Work with the System

   Today I saw my neurologist who is a movement disorders specialist. He is very satisfied with the results of the Lacosomide. Its a medical first. The first time to treat tardive dyskinesia. And the first clearly clinical definition of tardive dysphrenia, tardive psychosis and tardive dysmentia. As well, although it may never be officially clinically used for this purpose, it is as my psychopharmocologist agrees is working as a mood stabilizer in me. My neurologist was quite helpful today in many regards. His assistant who is new to the field didn't understand how although I had extreme neurological deficits and could hardly communicate I was mentally rational. But I re-explained it in front of my neurologist when I spoke to her. And that was with the courtesy one speaks to any doctor. What she thought was a "panic attack" was a dysphagic choking spasm accompanied by dissociation set off by seeing a standard painting of a fall landscape. Sure its an emotional trigger point as it reminded me of Hawk Mountain where I first noted tardive psychosis but it was clearly neurological. When I discussed further issues with my neurologist she understood that. And the case study fell back to him and my psychopharmocologist. It is their province but as I had provided (from my end) clearly written documentation even if I couldn't physically communicate it that would not be written by someone who was psychotic so yes the glycine has promoted a full recovery in me.
   And perhaps I will be able to communicate tomorrow as the dosage of Lacosomide was raised. Which is neccessary. Today just seeing a standard instrument to examine my mouth set off dysphagic choking spasms. His assistant couldn't use it. And tomorrow I have to see the dentist.  But I had documented for the dentist what I needed in the way of physical accomodations. And he accepted them. Sure I'll be speaking about my dental health not my mental recovery or tardive conditions. But he will understand more about how to treat someone with dysphagia. And my neurologist wrote up documentation on accomodations, on my request, for a standard physical hospital if I ever need to go. It will take research to understand what tardive psychosis, tardive dysphrenia and tardive dysmentia is. But in the meantime, the question is how to treat a person with it. And if that person is me, the psychomoter agitation ranging to dissociation is not "behavior". A person can be entirely rational and experience extreme variances such as in certain forms of epilepsy. Once they understand they know what to do. The Lacosomide did bridge the gap as regards mood stabilizers which the glycine like all known antipsychotics is needed in addition in a person with schizoaffective disorder. So during the day (before I take the glycine it is short acting) hearing the phrase "Houston we have throttle up" may have been from standard schizophrenia. It is a referential delusion to the Challenger disaster. I was worried the case study wouldn't be "launched". My fears were unwarranted. But last night before the Clonidine patch was applied, there was this strange looking character like that girl on the Adams Family (but more like those Victorian post mortems, quite unpleasent) "pushing me". I would jump forward. But the movement was completely physical. I could not stop it. Let's look back. The movement was tardive tourrettecism as it was a sudden uncontrollable jump. The hallucination dysphoric mania. And it clearly had obsessive aspects. The 3 categories together meet a listing for tardive dysphrenia. And I didn't "believe it" at the time. So in working with the system, we've found what tardive dysphrenia, tardive psychosis and tardive dysmentia are. And a totally new treatment (Lacosomide, its only use now is for epilepsy) for it. And with the glycine and the glutamate antagonists a new class of medication that will never cause the synaptic disruption that is tardive dyskinesia. They were researching that before but now they can see the results in front of me. And the rest was completely unknown to science. The question is how I should be treated and helped. I can work with them to address that. And the other binding question is where are all the other people with my disability and how could they be treated and potentially recover. And I believe a lot of researchers will be asking that question on a higher level..