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Neuro visit & E/R visit..what an ordeal!
Jul 02, 2009 11:46AM
- 15 comments
I saw the neurologist finally on Tuesday. I didn't get alot of results as he hadn't received my records but he is ordering another MRI as soon as I can find a way to pay for it! He filled out the paperwork for MSAA's free diagnostic MRI & also told me to see about getting a spend-down card(???). He came iut & got me from the waiting room & did all the vitals , ect himself. I don't relly know anymore than I did except for that I'm $175 poorer for that 15 min. I guess his hands are tied though until the MRI & medical help comes through. I then got up yesterday morning with a killer headache (had one for a week but had gotten worse). I was laying on the couch playing with my dog & watching tv when I felt this burning feeling slowly from my head to my toes, then got nauseated & threw -up violently, then I started tingling all over& felt like I was fighting to stay concioius(however its spelled), Then all at once my whole left side went completely dead & I couldn't move it at all which was scary since my R side has given me the most trouble. My hubby took me to the E/R & by the time I got there my forehead was twitching really bad (never happened here before just everywhere else), my throat felt like it was having spasms & my R side was getting number( I couldn't move at all. They take me in a wheelchair & had to lift me( I'm still fighting to stay alert but couldn't talk at this point , only slurring my words) Oh yes at home I had had a bowel movement on myself before I forget,. The E/R Dr. comes in & asks my hubby what drugs did I do & what I'm on to which my hubby told him that I didn't do drugs(he ask 3 different times) my hubby informed him that I hate meds & am allergic to loratab ,codeine, & have had bad reactions to pain meds in general & if he didn't believe him do a blood test or check my records. Then the Dr. told me to smile ( I couldn't),to move my toes (only could barely on the R side), stick out my tongue (couln't even wet my dryed out lips with it), raise my L arm & move my toes on L side( couldn't) then he ordered catscan & alot of tests until he found out I'm uninsured then I got nothing but standard blood tests & the catscan & everyone disappeared, I guess being uninsured I was no longer human. All this time I was struggling to communicate & ven when giving me instructions it sounded like he was way off in the distance & I was struggling to hear. The rest of the ordeal my hubby told me about as I was out of it , he siad the Dr. told me to move my arms or he would hae to pinch me, I didn't so he pinched theinside of my arms & thighs ( I have huge bruises with a big know in them now) I still didn't move. the he raised my arm up & let if fall ( hubby says it fell lifeless to the bed) & the Dr. replied , see her brains still protecting her body???< so what does that mean? After about 3 hrs I started coming to a little more, some feeling had returned in my R hand but still nothing in L side, my head pounding & my stomach churning. I still couln't raise my head up & could only move it to my R side & had to throw up again so my hubby (since no-one would help him even raise the bed) had to hold my head up while I threw up violently again. The dr comes in after this & says I can't have anything till the catscan comes back. It Another Hr later he come back & says the bloodwork is fine, the catscan is fine & finally gives me something for nausea. He said he wanted to do a LP to which I asked if he could test for MS so that I didn't eventually have to go through that twice & he says he would have to consult my neuro since I was uninsured to which I told him that I had only saw that neuro the 1st time the day before. He comes bach another hr. later & says the neuro had only seen me 1 time (duh!!! I told him this) & that it was most likely an anxiety attack or conversion disorder & that he had a lady recently with that but that the brain protects the body & that lady still had control of her bowels to which I replied I lost control of mine, he siad the only difference between me & her was that I was more sleepy acting & she was alert. He said I should talk to a shrink about my anxiety & sent me home. I still cant move my left side (just barely in my toes) & my R side is still weak, still have the headache & nausea,my eye is killing me, I still tingle & burn all over & of course the twitching still remains, I have lost my bowels twice this morning but I guess since its all in my head I'll stay here & wonder whats wrong. I have been dealing with depression & the anxiety (mostly frustration) of knowing something IS wrong but not knowing what . So now I'm left hear wondering did I have a stroke, seizure, is it MS (although the E/R dr says what happened wasn't a sign of MS), or am I just crazy? I did try (to no avail) to make the E/R dr. understand that although I'm dealing with this frustration & depression that it was the sickness that came 1st & the rest is a result of that. He also said that I was on the 3rd. neuro & that looked bad on me & starting from scratch wasn't a very good decision & that it made the DRs. question me more. What was I supposed to do, I lost my insurance with the 1st neuro, the 2nd one lied on my report saying she performed tests that she didn't & when your sick you just want to be well & have to find someone to help you. Any thoughts?? All your prayers will be appreciated. My hubby is sick of doing most of the typing & I can only use my weak R. hand so I'll shut-up for now.
I just got off the phone with family services & I don't qualify for a spendown card because I'm not yet considered disabled. SS denied my disablility about 2 weeks ago & I'm going to appeal it but what to do in the meantime is the problem. I need help but I guess I'm between the proverbial rock & a hard place! UGH!!!!
Tammy,
First of all thank your dear husband for doing all that typing. My hubby only types with one finger on each hand so this would take hiim hours to accomplish! :-)
now for you - this is absolutely ridiculous. whether you have insurance or not, you should be treated liked everyone else. Does some of this sound like MS? Not really to me , but I'm not an expert. Bits of it does and other parts don't. Does this sound like CD? Absolutely not. The illnesses we have as a side effect of chasing a dx are very real - anxiety, trauma, and I would even guess post traumatic stress disorder fits in with some of us who go through dehumanizing ordeals. Your vomiting and loss of control of your bowels doesn't fit any of those. Soemthing is wrong, and it is their job to find the answers - that's why they are doctors and have those reserved parking spaces at the hospital.
S crew them if they don't like it that you have seen a third neuro. Sorry to be crass, but that's exactly how I feel. You should be able to see as many doctors as you want until you find one that you are comfortable with to trust you life to.... that isn't always the first or second doctor. My response to them would be "it doesn't look good on any of you that I'm here in this ER sick as a dog, unable to function, despite having seen multiple doctors. Can't any of you get this right?" Of course that attitude would get us no where but shown the door.....
For the disability - did you hire an attorney to represent you? I know they work on contingency and only get paid if you are approved and take a healthy chunk of the first check or so, but it well might be worth it. Many people here have gone that route to get approved and say it is worth it to hand over the case to the experts who know how the system works.
I am so sorry you are suffering like this - please take a few days to rest and try to regain your strength a bit. Then go back out there fighting for everything you deserve, but especially some answers about your health.
lots of love and hugs to you,
Lulu
First of all thank your dear husband for doing all that typing. My hubby only types with one finger on each hand so this would take hiim hours to accomplish! :-)
now for you - this is absolutely ridiculous. whether you have insurance or not, you should be treated liked everyone else. Does some of this sound like MS? Not really to me , but I'm not an expert. Bits of it does and other parts don't. Does this sound like CD? Absolutely not. The illnesses we have as a side effect of chasing a dx are very real - anxiety, trauma, and I would even guess post traumatic stress disorder fits in with some of us who go through dehumanizing ordeals. Your vomiting and loss of control of your bowels doesn't fit any of those. Soemthing is wrong, and it is their job to find the answers - that's why they are doctors and have those reserved parking spaces at the hospital.
S crew them if they don't like it that you have seen a third neuro. Sorry to be crass, but that's exactly how I feel. You should be able to see as many doctors as you want until you find one that you are comfortable with to trust you life to.... that isn't always the first or second doctor. My response to them would be "it doesn't look good on any of you that I'm here in this ER sick as a dog, unable to function, despite having seen multiple doctors. Can't any of you get this right?" Of course that attitude would get us no where but shown the door.....
For the disability - did you hire an attorney to represent you? I know they work on contingency and only get paid if you are approved and take a healthy chunk of the first check or so, but it well might be worth it. Many people here have gone that route to get approved and say it is worth it to hand over the case to the experts who know how the system works.
I am so sorry you are suffering like this - please take a few days to rest and try to regain your strength a bit. Then go back out there fighting for everything you deserve, but especially some answers about your health.
lots of love and hugs to you,
Lulu
Tammy,
First of all I want to say what a loving and truly supportive husband you must have. Please tell him that we all appreciate how much he took care of you and even helping you write up your journal to share with us.
OK, so what you went through and what I went through over a year ago has so many parrallels that it is almost like looking in a mirror after reading your journal. I am so appalled and disgusted with your neuro and the ER doc that I am about to loose my lunch right here and now. I could swear that you and I must have been seeing the SAME neuro. Too weird.
So, while you were in the ER did they even bother to do an MRI of your spine? I ask because it sounds like you might have had a case of transverse myelitis, which is what I initially diagnosed with in the ER. My symptoms started out very similar to yours. I had a sudden feeling of nausea, motion sickness nausea not the nausea you get from eating something that didn't agree with you. I also go severe eye pain and the weakness/njmbess in my legs caused me to collapse. When the paramedics came (to my office) I recall hearing their voices from a distant too. It was weird because my husband who was also there to take me home, said they were yelling at me in loud voices. Also, like your situation I couldn't respond to them. I couldn't get the words out.
The care you got in the ER was negligent and criminal in my opinion. I don't know if you could have asked for another doctor to evaluate you, but maybe next time that is a possibility. I don't know how they could send you home bsed on what the neuro told them. What a crock of you know what e.g. the whole conversion disorder. I had a doctor tell me recently that doctors who can't find a quick answer to your diagnosis almost want to blame you for your illness by calling it anxiety, conversion disorder, or whatever will ease their conscious when they don't want to take their valuable time to work through the diagnosis. That came from a DOCTOR.
I hope you are looking for another doctor. You appear to not have insureance and that is a serious barrier to getting an answer. I hope the MS society will come through for you and at least help with the MRI. You certainly have a neurological issue and from the sounds of it, it needs to be addressed and followed closely right now. I hope again that MSAA can help you and may even help with funding a doctor's appointment too.
Hang in there. We all care what is happeneing to you.
Julie (Sarahsmom)
First of all I want to say what a loving and truly supportive husband you must have. Please tell him that we all appreciate how much he took care of you and even helping you write up your journal to share with us.
OK, so what you went through and what I went through over a year ago has so many parrallels that it is almost like looking in a mirror after reading your journal. I am so appalled and disgusted with your neuro and the ER doc that I am about to loose my lunch right here and now. I could swear that you and I must have been seeing the SAME neuro. Too weird.
So, while you were in the ER did they even bother to do an MRI of your spine? I ask because it sounds like you might have had a case of transverse myelitis, which is what I initially diagnosed with in the ER. My symptoms started out very similar to yours. I had a sudden feeling of nausea, motion sickness nausea not the nausea you get from eating something that didn't agree with you. I also go severe eye pain and the weakness/njmbess in my legs caused me to collapse. When the paramedics came (to my office) I recall hearing their voices from a distant too. It was weird because my husband who was also there to take me home, said they were yelling at me in loud voices. Also, like your situation I couldn't respond to them. I couldn't get the words out.
The care you got in the ER was negligent and criminal in my opinion. I don't know if you could have asked for another doctor to evaluate you, but maybe next time that is a possibility. I don't know how they could send you home bsed on what the neuro told them. What a crock of you know what e.g. the whole conversion disorder. I had a doctor tell me recently that doctors who can't find a quick answer to your diagnosis almost want to blame you for your illness by calling it anxiety, conversion disorder, or whatever will ease their conscious when they don't want to take their valuable time to work through the diagnosis. That came from a DOCTOR.
I hope you are looking for another doctor. You appear to not have insureance and that is a serious barrier to getting an answer. I hope the MS society will come through for you and at least help with the MRI. You certainly have a neurological issue and from the sounds of it, it needs to be addressed and followed closely right now. I hope again that MSAA can help you and may even help with funding a doctor's appointment too.
Hang in there. We all care what is happeneing to you.
Julie (Sarahsmom)
Tammy that was indeed an awful experience. I know you had to be terrified. I am no doctor but I would have been worried about a stroke. Maybe that is why they did the CT. I was given an MRA and an MRI to rule out stroke as the cause of my symptoms.
Any hospital that excepts any type of government funding must provide reasonable care to any patient regardless of their ability to pay.. Any hospital that takes gov funds also must have a financial aid counselor to assist you with procuring medical care, as in testing MRI etc. or hospital stays.
What you describe sounds borderline if not negligent. I would be tempted to find an ambulance chaser to determine if my legal rights had been violated.
Where is your GP in all of this? Has he been contacted?
AS to being crazy, hey we have all been there, most of us have at least one doctor pull that c r a p . However, he probably put everything he said to you in his notes. I would recommend you do see a clinical psychologist, LCSW or psychiatrist, although I am leery of the last. It never hurts to have a good counselor on your side. Then the next time someone says something like that to you you can say, I have an excellent counselor who doesn't agree with you and offer to have your counselor contact them. That should shut them up. Also either dx or seeking a dx a lot of stress goes along with it. A good counselor is a blessing....speaking from experience.
Don't give up on your neuro yet. You have only seen him one time and he didn't have all the info he needed. Can you get your copies and take them to him before your next appt?
My prayers are with you. terry
Any hospital that excepts any type of government funding must provide reasonable care to any patient regardless of their ability to pay.. Any hospital that takes gov funds also must have a financial aid counselor to assist you with procuring medical care, as in testing MRI etc. or hospital stays.
What you describe sounds borderline if not negligent. I would be tempted to find an ambulance chaser to determine if my legal rights had been violated.
Where is your GP in all of this? Has he been contacted?
AS to being crazy, hey we have all been there, most of us have at least one doctor pull that c r a p . However, he probably put everything he said to you in his notes. I would recommend you do see a clinical psychologist, LCSW or psychiatrist, although I am leery of the last. It never hurts to have a good counselor on your side. Then the next time someone says something like that to you you can say, I have an excellent counselor who doesn't agree with you and offer to have your counselor contact them. That should shut them up. Also either dx or seeking a dx a lot of stress goes along with it. A good counselor is a blessing....speaking from experience.
Don't give up on your neuro yet. You have only seen him one time and he didn't have all the info he needed. Can you get your copies and take them to him before your next appt?
My prayers are with you. terry
Hello & thanks to you all for your support. Yes, I'm fortunate to have a supportive hubby! He says he feels so helpless in what to do for me. I contancted an attorney & will most like find out Monday if he will take on my disability case.T answers some questions you had, no I did not have an MRI barely got them to do a catscan & basic blood tests. Sarahs mom you hit the nail on the head talking about the nausea, I told my hubby 2 nights before the E/R visit that this was unlike any nausea I had ever had with a virus, migraine, flu ect. I have some feeling back this afternoon in my L side but its very weak & shaky, my R side feels weaker to than it did. I'm having this tingling feeling, almost vibrating & burning sensation all combined (weird huh). I can barely type this with my R hand (numb) & I also can't grip my cane with my R hand & still nothing in my L hand. The hospital called to do a survey a little while ago & man, did they get a mouthful (if they understood it , still slurring a little).I thought of a stroke too when it started (seem to get worse while I was vomiting). Thankfully I haven't vomitted today but I haven't eat either but my twitching has also gotten worse especially my eyes. Like I said before if this happens again I guess I'll stay home & die or whatever comes, I can't go through this again. My GP is in another county so I don't know if he was contacted since he doesn't practice at that hospital & I can't blame my new neuro just yet since he knows nothing about me. I called the 700 club today for prayer & I'm trying to find a counselor I can afford just to put to rest all the bull anxiety crap! For some reason my eyes are swelled almost shut but I do have 3rd stage kidney disease & still don't know whats causing that. I've blamed most of theis on my back (degenerative disc disease) all these years but now my other side, my face, arms & hands seem to be suffering so who knows at this point.I guess I'll drag my leg behind me until I can get some sort of medical help. I don't understand what has changed though, my left side was weak but the R side weaker, both hands have given me trouble but now my L side is completely haywire?? Only God knows I guess! Again thank you all, your support for me right now is well , I can't think of a word to express how grateful I am! God bless you & I'm going to drag (literally) myself back to bed!
OH MY GOOD LORD...TAMMY, I AM SITTING HERE SPEECHLESS...JUST ABSOLUTELY OUTRAGED!!!!!!! It really HURTS my heart SOOO much to see how you have been treated by healthcare 'professionals.' As a nurse in training, I am absolutely appauled! Just wow.....wow wow wow!!!!!!!!! It honestly sickens me to hear so many stories of people being MIS treated in hospital settings when they don't have insurance. I tell you what, one of my VERY many goals in life is to change the course of healthcare, where those without insurance are MORE easily able to get it and it becomes a RIGHT, not a priviledge. I'm just so upset about your post right now...so upset.
A good healthcare professional seeks out all other causes of symptoms first based on the patient's wants/needs...we are taught in nursing school to listen to the patient, and keep patient's rights and dignity at the TOP of our priority list. This ER doctor apparently did NOT do this...you NEED the MRIs thats just absolutely outrageous. My Aunt is on disability and she hired an attorney to get hers...that's the only way she got it. I know stress can do crazy things to our bodies, but I'm sorry, this is not anxiety related, there is NO way in God's glory that anxiety/stress is to blame for this. You are presenting with neurological symptoms...not being able to smile, stick out your tongue, going numb, falling, losing control of your bowels, and the burning sensations really do seem like nerve pain to me etc.
I agree with the comment above about getting ahold of your GP...have him/her fax all the records that this neurologist needs. It took me a few weeks to get everything I needed to get to my 2nd neuro. and he wouldn't see me until he had everything.
I wish to GOD i was a nurse already and worked at that hospital and could have been there to extend to you the compassion you deserve!! You deserve to be HEARD, listened to, and respected and not dismissed and the nurse advocate who helps me has taught me that. Even in not having insurance, that does not make you less deserving of PROPER healthcare, and may God do a work and provide everything you need. I trust Him and will continue to pray that He takes care of you. Our God is the Great Physician and His love is always abundant, as He cares for us daily.
I echo many of the other comments here, and do hope you get in to see the neuro. again soon. Also, even update your GP about what happened. She/he needs to know about this trip to the ER. And after all is said and done, I would write a letter to the hospital you went to and express your disappointment. I am still just in shock, and just know that I am thinking and praying for you.
Love and hugs,
Aleah~
A good healthcare professional seeks out all other causes of symptoms first based on the patient's wants/needs...we are taught in nursing school to listen to the patient, and keep patient's rights and dignity at the TOP of our priority list. This ER doctor apparently did NOT do this...you NEED the MRIs thats just absolutely outrageous. My Aunt is on disability and she hired an attorney to get hers...that's the only way she got it. I know stress can do crazy things to our bodies, but I'm sorry, this is not anxiety related, there is NO way in God's glory that anxiety/stress is to blame for this. You are presenting with neurological symptoms...not being able to smile, stick out your tongue, going numb, falling, losing control of your bowels, and the burning sensations really do seem like nerve pain to me etc.
I agree with the comment above about getting ahold of your GP...have him/her fax all the records that this neurologist needs. It took me a few weeks to get everything I needed to get to my 2nd neuro. and he wouldn't see me until he had everything.
I wish to GOD i was a nurse already and worked at that hospital and could have been there to extend to you the compassion you deserve!! You deserve to be HEARD, listened to, and respected and not dismissed and the nurse advocate who helps me has taught me that. Even in not having insurance, that does not make you less deserving of PROPER healthcare, and may God do a work and provide everything you need. I trust Him and will continue to pray that He takes care of you. Our God is the Great Physician and His love is always abundant, as He cares for us daily.
I echo many of the other comments here, and do hope you get in to see the neuro. again soon. Also, even update your GP about what happened. She/he needs to know about this trip to the ER. And after all is said and done, I would write a letter to the hospital you went to and express your disappointment. I am still just in shock, and just know that I am thinking and praying for you.
Love and hugs,
Aleah~
The fecal incontinence is enormously significant and requires emergency care from a real emergency doctor. Someone needs to do a spinal MRI on you, NOW. This is not something to screw around with. Be sure to keep all of the above documentation because you may need it when you have to sue these doctors for malpractice.
You've got 3rd-stage KIDNEY DISEASE, but he said your bloods came back NORMAL? That makes NO sense whatsoever. I'm concerned about your eye symptoms in this context. You need medical intervention ASAP.
Is there any other acute--care facility in your area you can go to? Or can you CALL your GP now? You need care, and you need it now. This is too bizarre.
Bio
You've got 3rd-stage KIDNEY DISEASE, but he said your bloods came back NORMAL? That makes NO sense whatsoever. I'm concerned about your eye symptoms in this context. You need medical intervention ASAP.
Is there any other acute--care facility in your area you can go to? Or can you CALL your GP now? You need care, and you need it now. This is too bizarre.
Bio
Tammy, after reading your response I am in agreement with Bio. You need to be in a hospital right now, not at home. Tomorrow might be a holiday for a lot of people including doctors offices. If you can't get in touch with your GP, please don't be deterred by that ER. Seek out another ER if you need to but you need a legitimate evaluation now.
A cat scan will not show anything in the brain MS related or demyelinating related that would possibly account for your symptoms. It would show a tumor or swelling of the brain or other trauma, but not something that could explain what you are going through. An MRI is the most appropriate study and not jsut of the brain it has to include the entire spine.
And you think this is possibly due to your degenerative disk diesease. I don't know how bad your disk problems are, maybe it is because of your kidney disease, but at your age we wouldn't expect to see such damage that could account for your symptoms unless you just got in a traumatice accident or have a disease process that has hit your spine.
I don't know what you should do Tammy, but know that your bowel incontinence as Bio said is not a symptom that can be dismissed. You need help now. Please try to find an alternative medical facility, ER, to go to as the one you went to was entirely inadequate.
Please keep us updated on how you are doing.
Julie
A cat scan will not show anything in the brain MS related or demyelinating related that would possibly account for your symptoms. It would show a tumor or swelling of the brain or other trauma, but not something that could explain what you are going through. An MRI is the most appropriate study and not jsut of the brain it has to include the entire spine.
And you think this is possibly due to your degenerative disk diesease. I don't know how bad your disk problems are, maybe it is because of your kidney disease, but at your age we wouldn't expect to see such damage that could account for your symptoms unless you just got in a traumatice accident or have a disease process that has hit your spine.
I don't know what you should do Tammy, but know that your bowel incontinence as Bio said is not a symptom that can be dismissed. You need help now. Please try to find an alternative medical facility, ER, to go to as the one you went to was entirely inadequate.
Please keep us updated on how you are doing.
Julie
One more thought, sorry. The neuro giving your a "conversion disorder" at your first appointment is very, and I mean VERY inappropriate. First of all, and this comes from my brother-in-law who is a practicing psychiatrist, a CD diagnosis is something that is rare and only comes after every other possibility has been explored and ruled out - not at the beginning of the evaluation process. So please find another neuro one that is not going to slap you with that type of diagnosis at first glance. You deserve better.
Julie
Julie
Tammy,
And, I 2nd Bio -- you absolutely need proper care and you need it right away.
I don't have kidney disease, but have experienced the horrifying vomiting and sickness associated with blockage (was from stones). It's simply toxic and I can't imagine what this must be like for you at this level.
I'm so sorry you are going through this, and I'm sure you don't want to go back there but I'm going to be a nudge and press you to do so. Were you dx'd by a nephrologist? Please call him or her if you can.
be well,
shell
And, I 2nd Bio -- you absolutely need proper care and you need it right away.
I don't have kidney disease, but have experienced the horrifying vomiting and sickness associated with blockage (was from stones). It's simply toxic and I can't imagine what this must be like for you at this level.
I'm so sorry you are going through this, and I'm sure you don't want to go back there but I'm going to be a nudge and press you to do so. Were you dx'd by a nephrologist? Please call him or her if you can.
be well,
shell
Hello, I'm attempting to still type one handed! Thank you all so much for your concern & support! I was awakened by yet another weird headache. Its hung around over a week now & from time to time gets worse. It doesn't feel like a migraine (I've had those!). My L side is moving a wee bit more but with this headache getting worse I'm going to call my GP when the office opens & see what to do. I thought the headaches were a side effect of the requip but now I don't think so. To answers sllowes question I was diagnosed by a nephrologist( i have to see him every 6 months) however, I had this for years & no-one ever said anything about my kidneys until last year when I was raced to the hospital by ambulance in shock(almost dead b/p was 40/25)& the nephrologist looked at past records over a 5 yr. pereiod & said he was suprised that I was never told. I stayed in the hospital 1 week that time & they removed my gall bladder. I only found out when I gathered my medical records that I was admitted with metabolic acidosis, they only told me that it was my gall bladder poisoning me but the surgeon said my gall bladder was almost dried up & didn't even bleed when he took it out....who knows?? Right now my bladder is working & my urine doesn't appear to be dark but I have to strain to urinate unlike my bowels that have a mind of their own so ...go figure huh.My eye is still hust killing me & I'm suprised I don't have liver damage with all the excedrin migraine( I can't take ibuprophen or imitrex due to my kidneys). They wouldn't give me anything for the pain at the E/R because I guess not only am I crazy but a suspected drug addict. I was also wondering how my blood tests came back normal since my creatine level generally stays at 1.8-1.9 & has for the last 6 months, my potassium levels are also usually high even with watching my diet. I just don't know what to do. Evidently I can't get the spend-down card until I fight with SS disability again sooo.... If I get any worse I will have my hubby take me somewhere ( I don't drive anymore either), I haven't been able to drive but only a couple of times in the last several months with my eyes acting so bad(blurry at times & depth perception is way off) & the last time I did I coudn't pick my foot up off the gas so I give it up. Thank you all again for your advice & especially your kindness. God bless you all!
Tammy
I hope the GP was able to sort you out and send you straight to the ER. I had a few thoughts i read a book about a english lady who suffered from transverse mytis cant spell! and she had the headaches nausa she lost bowel control and as well the sx you had plus her eyes hurt and she had to wear sun glasses she nearly died from it many times and went on to have flares for 8 yrs till God healed her she spent mths in the hospital but they found it out from a LP which i feel you need and a MRI as it went on to destroy her CNS she had to fight to get dx and got awfull treatment like you at times. with your creatine levels this indicates inflamation in the body doesnt it? and that could be a number of things and with potassium maybe your kidneys with the damage are not obviously not working probly and your getting possioned through your blood system, both indicate some autoimmune disorder.
I can not believe that you were treated this way in the ER i dont know you but i am going to be praying for you thank god for your husband God will find a way through this for you.
sam
I hope the GP was able to sort you out and send you straight to the ER. I had a few thoughts i read a book about a english lady who suffered from transverse mytis cant spell! and she had the headaches nausa she lost bowel control and as well the sx you had plus her eyes hurt and she had to wear sun glasses she nearly died from it many times and went on to have flares for 8 yrs till God healed her she spent mths in the hospital but they found it out from a LP which i feel you need and a MRI as it went on to destroy her CNS she had to fight to get dx and got awfull treatment like you at times. with your creatine levels this indicates inflamation in the body doesnt it? and that could be a number of things and with potassium maybe your kidneys with the damage are not obviously not working probly and your getting possioned through your blood system, both indicate some autoimmune disorder.
I can not believe that you were treated this way in the ER i dont know you but i am going to be praying for you thank god for your husband God will find a way through this for you.
sam
It is absolutely negligent to diagnose a conversion disorder without an MRI with your symptoms. For starters you should have a glucose test, sed rate, CRP, ANA CBC, and a full metabolic panel. For starters.
You have an absolute right to be treated for pain. We no longer live in the dark ages.
People with conversion disorders may pee themselves, but losing control of the bowels is a whole "nuther story.
Please go to another emergency room. You may very well have transverse myelitis. It is Friday and you should get yourself to an MRI machine ASAP. There are a number of things you could have. Encephalitis is a possibility and should be ruled out by a lumber puncture. A CT scan is limited in what can be seen, as stated above.
I am worried about you.
You have an absolute right to be treated for pain. We no longer live in the dark ages.
People with conversion disorders may pee themselves, but losing control of the bowels is a whole "nuther story.
Please go to another emergency room. You may very well have transverse myelitis. It is Friday and you should get yourself to an MRI machine ASAP. There are a number of things you could have. Encephalitis is a possibility and should be ruled out by a lumber puncture. A CT scan is limited in what can be seen, as stated above.
I am worried about you.
I hope you get some answers to this...it's not that simple and they should never just send you away like that... It's horrible and I would contact the head of the Hospital... Good luck dear and let us know how things go..
take care
wobbly
undx
take care
wobbly
undx
Tammy, I am in shock as I read this whole saga. You were treated shamefully and negligently at the ER. You should have been admitted. You should contact the administration of the hospital. You werte treated like a second-c;ass citizen because you don't have insurance. The CT scan only ruled out a brain tumor and maybe a stroke, but was useless to see the kind of lesions that MS might cause. I agree with everyone above. You need an MRI of the brain and spinal cord and a spinal tap. Yes, encephalitis and transverse myelitis are among the things you could have.
Yes, you still should go to another ER. Many of the Catholic-origin hospitals have programs to see very sick people with no insurance. Your doctors need to know about your headache.
Conversion Disorder is very uncommon and is a diagnosis of EXCLUSION! Throwing that label at you from one visit is irresponsible, lazy, small-minded, mean-spirited, and the product of an inadequate mind. Can your husband intervene for you in outrage and as someone who sees what you are really going through? You need adequate medical care NOW!
Is someone monitoring your BP and your electrolytes?
I am really worried.
Also, the neuro appears to be the one who cursed you with this anxiety label. Since he can't work you up (no insurance) he'll just tell everybody the problem is in your head. He definitely needs to be reported to the Medical Board in your state. But, first you have to get some care.
Please, keep us posted!
Quix
Yes, you still should go to another ER. Many of the Catholic-origin hospitals have programs to see very sick people with no insurance. Your doctors need to know about your headache.
Conversion Disorder is very uncommon and is a diagnosis of EXCLUSION! Throwing that label at you from one visit is irresponsible, lazy, small-minded, mean-spirited, and the product of an inadequate mind. Can your husband intervene for you in outrage and as someone who sees what you are really going through? You need adequate medical care NOW!
Is someone monitoring your BP and your electrolytes?
I am really worried.
Also, the neuro appears to be the one who cursed you with this anxiety label. Since he can't work you up (no insurance) he'll just tell everybody the problem is in your head. He definitely needs to be reported to the Medical Board in your state. But, first you have to get some care.
Please, keep us posted!
Quix
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