Jul 08, 2009 07:44PM
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Just like anyone else here I keep track of my recovery. I have since 2003 on a daily basis. But since much is just starting to be known to science, as I keep track of progress and set backs, its news to them as well and one that they incorporate and understand. Naturally they know far more than me as clinicians but a lot is new to them as well. When I use to work part time (before my physical disability) I kept track of my recovery from schizoaffective with glycine by seeing how my thinking was when I walked by the local cemetary and if I developed psychotic thoughts. Naturally they began to diminish as the glycine started working but some of them wouldn't. There was something different about them. Perceptual and dissociative hallucinations. But what were they? Well now we know they are tardive psychosis/tardive dysphrenia. Things had gotten hectic today and I didn't manage to take one of the ginkgo pills. And I had a long walk and had horrifying hallucinations of figures grabbing me and choking me (and a fair amount more but I won't detail..) when I passed by there. But let's think back. Firstly, I did literally have choking spasms and my head snapped back. So that's neurological. The "walk" was an attack of tardive akathesia. The dissociation and dysphoria was tardive dysphrenia as well as the head snapping back and choking (as my neurologist defines it tardive tourretism). And clearly there was an obsessive element. All 3 meet the listing for tardive dysphrenia. Why detail something so horrifying? Well as soon as I got back I took the ginkgo (as supervised by my neurologist) and it began to stop it. And more importantly the Lacosomide put it to a complete halt. So in other words I was correct. When I first realized I had advanced tardive dyskinesia (after having mentally recovered) I was horrified but then I said I just had another set of recovery in front of me. And once I knew what tardive psychosis, tardive dysphrenia and tardive dysmentia were I began to search for treatments for my providers to research further and approve. And the Lacosomide is panning out. And right now online I am listening to one of my favorite jazz musicians play some pieces of his own and some by Jelly Roll Morton. And perhaps as physical recovery increases I will physically be able to be present at the next concert. And tomorrow with Access A Ride and a family member out to a museum. So the conclusions were positive. And I would think the researchers will find the same thing and hope that they can for others as well..