Apr 11, 2014
well I did it I did my first treatment.. It was not as bad as I imagined and not as good as I hoped.. when they removed the hook-ups they infiltrated my fistula causing my arm to swell immediately with blood that leaked from it My are swelled so much ! Iced it and got the ostrich egg down but now my arm is swollen form the crook to the top of the muscle, I can not bend nor straighten it all they way and it is turning black and blue with many other colors.. They say this does not happen often but it does happen to new fistulas especially. The pain was un freakin bearable !!
Now I need to rest the arm skip sat, app. and try to go tues I hope the swelling will be down by then.. I was told if I stop urinating our have trouble breathing go to er and watch for infection..
I do not know, I do not like it this for sure but I can do this too spend More time with my family.. I can go thru just about anything for them..
I look forward to hearing what UCSF has to offer..
As for the dialysis it's self It is not terrible It does not hurt only before and well I do not know about after I only know that it hurt like hell for me :( geez how do I go back and let them poke this arm again !!
Love you my MH family I miss you all Hopefully someday I will be back to myself and will be able to rejoin in the community..