May 16, 2008 08:55AM
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what i laughingly call "ovarian epilepsy" started again a few days ago. the bearing down pressure and spasm-like "pain" (not sure if that is the right word - pain), is unreal. i cannot sleep throughout the night (which usually leads to some distracting activity - namely nocturnal eating... though i am working on playing with my blackberry instead). it is impossible to explain this sensation - no one seems to know what i am trying to say. given the "crowded house" of the pelvic/lower abdominal region, i cannot say for sure where the sensation is coming from exactly. it feels uterine but could be bladder.... then again, could be bowls, i guess. it seems to occur cyclically but has been known to occur randomly in the month. the feeling is a body shattering spasm that sometimes feels like a frustrated and broken orgasm. there is no pleasure in this but since it often seems to involve the deeper parts like perhaps cervix, vagina and/or perineum, it feels "sexual". i have attempted sex (when dating) during these flare ups and have even tried masturbation to relieve the "pressure".... if it works at all, it doesn't for long.... i am not sure if this is just a distraction or a zen-like way to "become the pain", or if i am on to something. but if i can be honest, engaging in sex and/or masturbation for reasons other than the desire for intimacy or pleasure, truly bothers me - shames me even. if for some reason unbeknownst to me, this is some psychosomatic thing (though i doubt), having to engage in activity that shames me after, doesn't seem like the best course of action/treatment.
i've read online of others who describe something similar - like blue balls for women. like a frustrated urge to release pressure. whether blood is pooling in pelvic veins or an actual organ is in spasm, i do not know. all i do know is that i pray for the bleeding of menstruation to start since that usually (though not always) relieves/ends the pain.
this month i noticed a new sx - much more frequent and urgent need to urinate. i wouldn't say i have to void in excess of what liquid i take in, but i am going more than i ever have before. it does not hurt to go at all so i have never suspected an infection. i have had a bladder infection in the past and this does not appear to be the same. but then again, who knows!!
i just started one of my jobs and am not eligible for insurance for another 4 months which means i am going to be in pain and a sort of agony for at least that long. sigh.
maybe 6 months ago, when this started to get truly out of hand (the first time i noticed this feeling/pain was when i was 18 - i am now 29), i went to my ob and she did an internal, STD testing, and a transvaginal ultrasound. i recall the tech saying something about follicles but said my test was negative for any disease... the STD test, thank the LORD, came back clean. so what IS THIS!??????????????? as much as i do not want to be sick (because i don't), having chronic pain with no etiology and therefore no relieve or support, is awful. physically and psychologically.
my pelvic region feels full and heavy. the gnawing vibratory spasms distract and hurt. i feel so strange. perhaps this is because it isn't my gallbladder or elbow that is spasming, but my sensitive, female and "private parts". oh, and for the record, my external genitalia is not affected.... if only is WERE that easy!! LOL i cannot "get at" where the pain/sensation is. advil does nothing and have even used klonopin to relax.
i am so frustrated and i feel alone.