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Chapter 2

May 17, 2008 10:17PM - 2 comments

So where was I, LOL! I had been having the headaches, the seizures were getting worse, I was having bouts of confusion, weakness, muscle fasciculations, and extreme fatigue. I had been diagnosed with fibro,major depressive disorder, chronic pain, a goiter (I was on synthroid to stop its growth) and now I needed treatment for the migraines. I went to a neurologist, and I was sent for an MRI and EEG. The EEG only showed temporal slowing (not sure what that means but it mmusnt be very important) and the MRI showed a pineal cyst (approx 1x1cm in size). I had been on topomax but due to its side effects I was changed to neurontin. I had been able to work but as the seizures progressed and the fatigue, pain,confusion and weakness increased, buy March of 2007 I was placed on disability.
I am an RN and I work in critical care on the night shift. One night at work I went into a staring spell and became very confused for a short period.  I had 2 very sick patients. One was on a ventilator and one on an insulin drip. If I had, God forbid, doen something stupid where one of my patients was injured, I'd never have forgiven myself. I talked it over with my GP and we decided it would be better if I went on disability. That was over a year ago. Since then I have seen 2 neurologists, 2 epiliptologists a neurosurgeon, and 2 different therapists. I have been "officially"diagnosed with Psychogenic seizures, which is a conversion disorder. (I have stressors that I am unable to processes in an approprate way, so my body converts it into staring spells and seizures.) So yeah, thats about where I am. I take handfuls of meds, stare and shake, I can no longer work, which is cause me to lose my home due to lack of income. I have been denied for SSI/disability and most days I just wonder what the hell Im still here for. Bahhh, sorry that was me feeling depressed...But I have been trying to start each day positive.....im trying  :)

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by wasy, May 21, 2008 05:45PM
I am so sorry to hear about your  situation I just spent a bout of 17 days in the hospital bit of course they say the couldn't find anything wrong with me other than that i am suffering from migraines which I have never had a headache in my life. I was told in the beginning that I had, had a stroke at the age of 33 a non-smoker and not on any birth control, I was very confused and so was my family I have gained back most control of my walking I still have spasms in my left arm but getting better with time. I now am suffering from insomnia I have never had sleeping problems before. It was like I woke one night and a greater force took over my body I no longer had control.My Husband noticed alot of differences in me and so did my 12 year old son. It was like I lost my spirit I am normally a very happy go lucky person and then I went through this great depression it was so foreign to me to feel the way I was feeling I just want everything to go away sorry for chatting on, and I can't say I know how you feel because I don't but I know how I feel and it is very different so I can imagine your feelings... I hope it will work it's self out for you. Just thought i would respond .........

by Jules77733, Aug 27, 2008 08:47PM
Hey, I was just wondering why were you taken off of Topamax? Did it have anything to do with the discovery of the pineal cyst?

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