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My life in a nut shell for the past 2 months

May 18, 2008 11:00AM - 2 comments

This has been the MOST frustrating almost 2 months of my life!!! I have gone from a healthy, active busy mom to a person who can barely take care of herself let alone her family. Since I got out of the hospital at the end of March I have had 3 relapses where I am out of comission for at least a week with dizziness, weakness on left side, stuttering and twitching but thank god no more seizures. Right now I am dealing with another round of it and to be honest I am sick of it. None of my dr's will take me seriously because of what some stuipd *** at the hospital diagnosed me with. I am thanking god I have a Neuro appt with a GOOD dr at UCLA next month but it is really trying my patients having to wait and still feel like **** all the time. When I am not having my issues well the major ones anyway I am exhuaseted, have memory issues, tingling in my left arm and leg and balance problems. And sadly those are my good days. On my bad days I can't drive or hardly get out of bed or off the couch because the dizziness just about knocks me to my butt. And when I start feeling better then the knock me on my *** headaches kick in so when it one thing it is another. I had to miss my sons field trip (another one) because of how I am feeling right now, I am just thankful my husband had the day off and was able to go with him so his little heart was broken again. I feel like such a huge disapointment to my kids and my husband and to myself. I never asked for this, and now that I am dealing with whatever this is I can't get any help from anyone in the medical field because they think I am nuts. That is a very hard label to live with, even though I know it isn't true and NOTHING in my medical history lives up to the diagnosis they gave me. They just didn't know what was wrong with me and instead of admitting they didn't they label me with a mental disorder. Even though they had no proof to support it and only spent maybe a total of 15 minutes with me the whole time I was in the hospital. Even my own GP is just humoring me, I asked her how do you go from being fine one minute to not being able to speak or move your own body and do it to yourself?? Espically when I have NEVER had anything like this in my life. I was fine, picking my kids up from school talking to a parent waiting for the bell to ring and a dizzy spell hit me so bad I almost fell over. 20 minutes later I am in the back of an ambulance and can't speak or move and twitching. 2 days later the seizures kicked in. When I wouldn't agree to stay on the mental health floor for 2 days they kicked me out. I had to leave, in the condition I was in they made me go!!! Feels good to get all this out I have held it in for to long. I just hope I am feeling better by next weekend I have my daughters birthday party to host!!

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by NeedAnswers85, Jul 30, 2008 07:58AM
omg. i got your post. im sorry I havnt responded sooner I actually forgot I signed  up on this.

Anyway. What did they diagnose you with. My Gp keeps telling me I am bi-polar with severe anxiety and panic attacks. I know how my body feels. I have been bookmark healthy until about 2 years ago. Now my heart rate is out of wack and possibly seizures. My neuro says atypical migraines. wtf i have had these since i was 13 years old and never had these symptoms. I am also getting frustrated. I cant work or perform daily activities unless its one of my good days then i try to get as much done as possible.  I dont get dizzy really, Just feel like i have no energy and get real moody. or irritable.  i use to be non stop. i can barely go to class 3 hrs a day, i feel like i hadn't slept in 34 days. I am becoming a worry wart. The dr told me i was too in tune with my body to relax....wtf...who says that..im sure if it was their child they wouldn't say that... all m test come back negative...but i still have chronic pain in my neck and shoulders. my neck pops and cracks with little or no movement at all.  last time i checked that isn't normal. Well write back as soon as you can...maybe we can help each other out...lol...

by Nichole28, Jul 30, 2008 08:53AM
I finally saw the Neuro in June after waiting 3 months to see him, he diagnosed me with complex migraines with neurological symtoms. So I guess massive headaches have been causing this even though when it all started I only had a small pain in my head. I am currently doing a 72 hour EEG to check and see what is going on with my brain waves, I got it put on yesterday and I get it off on friday. I would tell your GP to go shove it and get a 2nd opinion but I know once you are pegged with something it is hard to get others to help you out. I am just glad to have a diagnosis and not feel like I am crazy anymore, the dr's I saw while in the hospital in march diagnosed me with somatization disorder assholes. My symptoms have gotten better since march but I have a headache every day, I am always tired no matter how much sleep I get, I have memory issues I still twitch on occassion. I would really like my life to be the way it was before March 24th. Hopefully we can both get more answers and more help for what we are dealing with

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