May 18, 2008 11:00AM
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This has been the MOST frustrating almost 2 months of my life!!! I have gone from a healthy, active busy mom to a person who can barely take care of herself let alone her family. Since I got out of the hospital at the end of March I have had 3 relapses where I am out of comission for at least a week with dizziness, weakness on left side, stuttering and twitching but thank god no more seizures. Right now I am dealing with another round of it and to be honest I am sick of it. None of my dr's will take me seriously because of what some stuipd *** at the hospital diagnosed me with. I am thanking god I have a Neuro appt with a GOOD dr at UCLA next month but it is really trying my patients having to wait and still feel like **** all the time. When I am not having my issues well the major ones anyway I am exhuaseted, have memory issues, tingling in my left arm and leg and balance problems. And sadly those are my good days. On my bad days I can't drive or hardly get out of bed or off the couch because the dizziness just about knocks me to my butt. And when I start feeling better then the knock me on my *** headaches kick in so when it one thing it is another. I had to miss my sons field trip (another one) because of how I am feeling right now, I am just thankful my husband had the day off and was able to go with him so his little heart was broken again. I feel like such a huge disapointment to my kids and my husband and to myself. I never asked for this, and now that I am dealing with whatever this is I can't get any help from anyone in the medical field because they think I am nuts. That is a very hard label to live with, even though I know it isn't true and NOTHING in my medical history lives up to the diagnosis they gave me. They just didn't know what was wrong with me and instead of admitting they didn't they label me with a mental disorder. Even though they had no proof to support it and only spent maybe a total of 15 minutes with me the whole time I was in the hospital. Even my own GP is just humoring me, I asked her how do you go from being fine one minute to not being able to speak or move your own body and do it to yourself?? Espically when I have NEVER had anything like this in my life. I was fine, picking my kids up from school talking to a parent waiting for the bell to ring and a dizzy spell hit me so bad I almost fell over. 20 minutes later I am in the back of an ambulance and can't speak or move and twitching. 2 days later the seizures kicked in. When I wouldn't agree to stay on the mental health floor for 2 days they kicked me out. I had to leave, in the condition I was in they made me go!!! Feels good to get all this out I have held it in for to long. I just hope I am feeling better by next weekend I have my daughters birthday party to host!!
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