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Totally fed up.
May 23, 2008 05:02AM
- 5 comments
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This what I posted earlier this evening to the group....
Got my latest blood results. Free T4 24.2 TSH 0.06 Free T3 4.7 ....6 weeks ago they were Free T4 25.7 TSH 0.06 Free T3 4.9 My surgeon told me 6 weeks ago I was Hyper and to reduce the dose from 150mcgs down to 125mcgs. When I spoke to her yesterday she said, Oh it's all normal now so just continue along on 125mcgs....I am dumbfounded...I told her I was still having hyper symptoms and my nerves feel like a cat is trying to claw its way up[ my back and onto my head all day every day. She said that the pathology said I was normal....I said but 6 weeks ago you said I was hyper straight off.....She didn't know what to say. She then said go back down to 100mcgs I said, but I was HYPO at Free T4 18.3 TSH 11.24 Free T3 3.9
I just don't know what to think. Also my calcium has gone through the floor again, so back up to 4 x 600mcgs. She said maybe we will test for Vit D in 6 weeks... I got a bit annoyed and said why can't we test it now? Err...ummmm...Ok says she. Geez Louise!!!
So does anyone else think I am hyper, should I drop down to 100mcgs (which made me hypo to death! previously)
I feel like a guinea pig in a lab!
This is how I feel about the medical profession..............%$%######3@@@^%43*&(^^^^%$#@@#$!!!!!!!
I spent 15 years fighting them and now I am going through it all again! I cried my eyes out last night, hiding in the toilet so no-one could hear me. I miss my life! I am so fed up with all this bloody thyroid rubbish! (pity I can't swear, all you'd see is **** ) My everday doctor (G.P) wanted me to take Valium.....my surgeon just has no idea WHY i need so much calcium....Like HELLO!!!!! any body home!!!!!! read all about it you ning nong doctors. I know that they are flat out busy but just saying take less thyroid meds and more calcium meds just doesn't make me feel better mentally! (not to mention physically!) I'm at my wits end.....I am a strong person but feel I need to collapse in the street and get taken to hospital before anyone realises I am NOT WELL! I am too scared to drop down to 100mcgs after Jan and part of Feb's experiment made me totally wasted.
I turn 45 next Friday....and I feel like I have wasted the best years of my life 30 to 45 is a long time....bah...think I'll get drunk...only takes one glass to do that these days since my thyroid is gone!
Got my latest blood results. Free T4 24.2 TSH 0.06 Free T3 4.7 ....6 weeks ago they were Free T4 25.7 TSH 0.06 Free T3 4.9 My surgeon told me 6 weeks ago I was Hyper and to reduce the dose from 150mcgs down to 125mcgs. When I spoke to her yesterday she said, Oh it's all normal now so just continue along on 125mcgs....I am dumbfounded...I told her I was still having hyper symptoms and my nerves feel like a cat is trying to claw its way up[ my back and onto my head all day every day. She said that the pathology said I was normal....I said but 6 weeks ago you said I was hyper straight off.....She didn't know what to say. She then said go back down to 100mcgs I said, but I was HYPO at Free T4 18.3 TSH 11.24 Free T3 3.9
I just don't know what to think. Also my calcium has gone through the floor again, so back up to 4 x 600mcgs. She said maybe we will test for Vit D in 6 weeks... I got a bit annoyed and said why can't we test it now? Err...ummmm...Ok says she. Geez Louise!!!
So does anyone else think I am hyper, should I drop down to 100mcgs (which made me hypo to death! previously)
I feel like a guinea pig in a lab!
This is how I feel about the medical profession..............%$%######3@@@^%43*&(^^^^%$#@@#$!!!!!!!
I spent 15 years fighting them and now I am going through it all again! I cried my eyes out last night, hiding in the toilet so no-one could hear me. I miss my life! I am so fed up with all this bloody thyroid rubbish! (pity I can't swear, all you'd see is **** ) My everday doctor (G.P) wanted me to take Valium.....my surgeon just has no idea WHY i need so much calcium....Like HELLO!!!!! any body home!!!!!! read all about it you ning nong doctors. I know that they are flat out busy but just saying take less thyroid meds and more calcium meds just doesn't make me feel better mentally! (not to mention physically!) I'm at my wits end.....I am a strong person but feel I need to collapse in the street and get taken to hospital before anyone realises I am NOT WELL! I am too scared to drop down to 100mcgs after Jan and part of Feb's experiment made me totally wasted.
I turn 45 next Friday....and I feel like I have wasted the best years of my life 30 to 45 is a long time....bah...think I'll get drunk...only takes one glass to do that these days since my thyroid is gone!
sounds like your parathyroid has an issue. thats the guy that deals with the calcium. I think you should see a specialist, endocrinologist... not sure if i speeled that correclly. hang in there
Will your Dr let you do a mix .. 125 say 3 days a week and 100 the other 4 or something like that, etc? And I agree you need more tests for the parathyroids .. I had 11 vials drawn at my first workup. I, too, get the anxiety you speak of with a TSH <1.0 so I actually am on Synthrohid at a non-optimal dosing for cancer supression but a dosing that gives me quality of life. I will not take any tranquilizer for a medicine-induced anxiety unless my cancer is severely being disguarded by my taking Synthroid 75 vs. 100 wich I cannot endure.
In your case maybe a mix of med dosing may help? But, I'm not a Dr., only a fellow "thyroidian" like you ... [[[ hugs ]]]
Cheryl
In your case maybe a mix of med dosing may help? But, I'm not a Dr., only a fellow "thyroidian" like you ... [[[ hugs ]]]
Cheryl
I think it is important to have a dr. you trust, both an endocronologist along with the surgeon....
i am going through the opposite...surgery mar. 21 and lethargic...on 112 mg. synthroid...along w/ tons of vitamin d and calcium....i go for my blood workup weds. and asked my general dr to be the captain...cause i have found one hand doesn't know what the other is doing if there isn't anyone monitoring it all...lots of mixed messages.
i would switch drs. if i were you to one you trust....or get a really good endocronologist...
ask people where they/you live and get a referral.
i live in miami beach and love my endo....his name is dr. andrade at mt. siani hospital.
anyone from miami out there?
lili
i am going through the opposite...surgery mar. 21 and lethargic...on 112 mg. synthroid...along w/ tons of vitamin d and calcium....i go for my blood workup weds. and asked my general dr to be the captain...cause i have found one hand doesn't know what the other is doing if there isn't anyone monitoring it all...lots of mixed messages.
i would switch drs. if i were you to one you trust....or get a really good endocronologist...
ask people where they/you live and get a referral.
i live in miami beach and love my endo....his name is dr. andrade at mt. siani hospital.
anyone from miami out there?
lili
Hmm... you left your words of wisdom under my inquirey, earlier. Thank you... I appreciate your input. =)
I wondered, as those mentioned above... do you see and endocrinologist? If not, I suggest taking that route as well. They seem to more intune to how the endocrine system works... or as I've said... they know the nitty-gritties, of the thyroid. My GP seems a little unsure of the specifics... and has even disclosed such to me.
The only issue I've had with the Endo, is that it seems difficult to get an appointment. There's usually a wait... but, they are pretty good about calling me, when there's a cancelation. And, they are also exceptional, about calling me back, the few times I made inquiries. Of course, this during my first bought of hyperthyroidism...
I thought I was fine... as did the Endo... and diagnosed me with a temporary bought of Hyperthyroiditis (which can be caused by a virus). Apparently that's not the case... and I was recently told my thyroid is over active again... so, I'm doing a balancing act, of sorts, between my GP and the Endo... until I can get in to see her, end of June.
Anyway... it's late, I'm tired. And I'm rambling incessantly. I shall cease now...
Good night.
I wondered, as those mentioned above... do you see and endocrinologist? If not, I suggest taking that route as well. They seem to more intune to how the endocrine system works... or as I've said... they know the nitty-gritties, of the thyroid. My GP seems a little unsure of the specifics... and has even disclosed such to me.
The only issue I've had with the Endo, is that it seems difficult to get an appointment. There's usually a wait... but, they are pretty good about calling me, when there's a cancelation. And, they are also exceptional, about calling me back, the few times I made inquiries. Of course, this during my first bought of hyperthyroidism...
I thought I was fine... as did the Endo... and diagnosed me with a temporary bought of Hyperthyroiditis (which can be caused by a virus). Apparently that's not the case... and I was recently told my thyroid is over active again... so, I'm doing a balancing act, of sorts, between my GP and the Endo... until I can get in to see her, end of June.
Anyway... it's late, I'm tired. And I'm rambling incessantly. I shall cease now...
Good night.
Hi
You look HypeR by the Labs and I know what thats like as I suffer with Hyperthryoidism and Graves Disease.
I cant tell you what dosage to take as I am on Anti_Thyroid Meds to BLOCK the thyroid until I am given Rai on the 12th June.
My Endo took 5 months to get in to see her and yes, I am a Melbournian too (Western Suburbs).
My suggestion is to get back to that Doctor you are seeing and ask him WHY the levels are normal ???
If your Labs are done by Dorevitch then these are the Ref Ranges.....
FT3 (3.6 - 6.5)
FT4 (10. - 19.0)
TSH (0.50 - 4.00)
These are the ranges that I work off when I have Dorevitch Labs done.It all depends on each individual Lab.
For MIA it is only the FT4 range which is different and that is (10.0 - 20.06)
What may seem like 'normal' to him may not be 'your normal'.
I tend to feel 'normal' (if there is such a thing lol) when I am at around 15.0 with the T4 but as I said...I am HypeR not HypO.
All the best
Debbie :)
You look HypeR by the Labs and I know what thats like as I suffer with Hyperthryoidism and Graves Disease.
I cant tell you what dosage to take as I am on Anti_Thyroid Meds to BLOCK the thyroid until I am given Rai on the 12th June.
My Endo took 5 months to get in to see her and yes, I am a Melbournian too (Western Suburbs).
My suggestion is to get back to that Doctor you are seeing and ask him WHY the levels are normal ???
If your Labs are done by Dorevitch then these are the Ref Ranges.....
FT3 (3.6 - 6.5)
FT4 (10. - 19.0)
TSH (0.50 - 4.00)
These are the ranges that I work off when I have Dorevitch Labs done.It all depends on each individual Lab.
For MIA it is only the FT4 range which is different and that is (10.0 - 20.06)
What may seem like 'normal' to him may not be 'your normal'.
I tend to feel 'normal' (if there is such a thing lol) when I am at around 15.0 with the T4 but as I said...I am HypeR not HypO.
All the best
Debbie :)
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