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My brother, My son, My mother, Myself

Sep 16, 2009 01:36PM - 2 comments
Tags:

Autism

,

mother

,

son

,

scared



My brother is autistic and was diagnosed around Jr. High.  He is 22 years old now.  Ten years younger than me.  He has always been the baby.  I always spoiled him as a child.  He was like my own living doll when he was born and I was determined to be the best sister/mother I could to him.  I had already moved out when he was diagnosed, but my mother suffered from guilt over his situation and so babied him even more.  He has no chores at home.  He gives my mother part of his SSI check for rent but keeps his area of the house a pig sty.  He is very high functioning.  He can cook and wash clothes.  He suffers from depression and I wonder if part of it is because he does not have any purpose in his life.  He has nothing he has to acomplish in his day, nothing that is expected of him.

My son was just diagnosed Autistic spectrum, ADHD, and ODD and I'm looking at my mothers situation vs my situation.  What am I going to do the same.  What am I going to do different. I want what is best for my son.  I want him to have a full and happy life.  I want him to experience his first kiss, his first fight, a break-up, a make-up, graduation, finding his passion, holding his children in his arms.  He has so much inside him that I can see already.  I want him to be able to share it with the world.

I'm scared but determined about the future.  I would fight the hounds of hell for my children.  I think fighting the instinct to over protect might be harder.

Keep us in you're thoughts and prayers.
Sunsine1976

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by sleepsound, Sep 17, 2009 01:03AM
Hi there......i've just read your entry and had to reply .......my son has aspergers syndrome dx at 8yrs and is 17yrs old......it is difficult they are normal teenagers with the added baggage of AS..my son sees himsefl as nothing wrong, which is good in one way but not in another. He cannot look after himself very well yet ...i suppose i'm quite hard on him but its a hard world out there. He left school in Jan this year , went to college couldnt cope too much of a change so has been ding nothing apart from becoming a master of the xbox. He does not understand the concept of work , his dad and I decided ti is no route to go down...so today he has an interview with Enable , which is a group who train people with disabilities for life outside school , work, they get them work placements , go with them , support them  so that they become valuble members of society and feel good about themselves and have a sense of purpose.

take care...its a scary world out there...but go forth they must.

sleepsound x

by surromommy, Sep 30, 2009 02:36PM
Hello,

We have spoken on and off but I just now found out about your son. I thought I was the only one (out of my friends). How old is your son & why did it take so long for his dx? My son Austin was diagnosed with classic autism at 20 months old and since then his dx went from mild to severe 6 months ago. He will be 4 11/29. They aldo added the ADHD and OCD. Right now we are battling with the decision to use meds with him. How old was your son when you started? Austin just stims all day long and has some self abusive behaviors :-( He bites his arms and starves himself, really... He isn't eating and hasnt for the last 2 weeks. Last time he did this it went 6 months and they were gonna tube him :-( He currently lives on pedia sure!

Anyways, I just wanted you to know about my son, maybe we will be able to help one another :-)

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