Case Study for Vimpat For Tardive Dystonia in Potential Publication, Tardive Psychosis, Tardive Dysphrenia and Tardive Dysmentia Seeking Accomodations

  The case study will potentially be published. My psychopharmocologist has spoken to at least one major researcher on glycine. There is a potential for me to give testimony. There I must stop as the rest is confidential. What did I do today? Finally go into the outside world with the help of Access A Ride. I must do the reassessment soon as everyone does. I got denied at the home attendant hearing and plan to take it to appeal. My mother went with me to see two museums. I spoke to another passenger in the car. In holding backing spasmic activity, as I am mentally recovered she understood my disability as physical and I explained it as such and we had a nice conversation. What else is new? Well this time there were 3 people with disabilities in the cab. The third is my mother. She is going to see a psychiatrist this week. After a year of agitated mixed states and anxiety attacks that had actually occured all her life but only now did I realize what they were was I able to explain it to her in a way that made sense as one year ago (an anniversary date of when my stepfather passed on) she had an agitated mixed state that raised her blood pressure to the point where she had to rest. What's my position now? There isn't any. I'm glad she is seeking help and it will be up to the psychiatrist she sees to decide what medications she needs at what doses and exactly what is going on. I in return decided to let the past be just that and what may have been directed at me as a child and was unnerving since she understand what it was it is time to let go of any negative emotions. As for in general now that research psychiatrists are working on understanding what's going on with me I have to step back and let them define it but it appears within strong potential that the case study on the Vimpat will be published. Its in good hands now. But as you can see despite having 3 unknown adverse side effects of medications, my goal is to see them identified treated and prevented. I know when and if they are identified they are extremely rare or why would I encourage a family member (as well as other people I know judiciously) to seek help.
  The experience as I stated is like the book "Awakenings" as the dopamine level rises and falls from the various treatments for it (ginkgo, Piracetam, Vimpat, Clonidine, Klonipin and some muscle relexants all within my provider's strict supervision as well as the Phase II study antipsychotic glycine for schizoaffective disorder of course). The strange death like dysphoria of tardive dysphrenia. The body dysmorphia, psychomoter agitation ranging to dissociation of tardive dysmentia mirroring the rage like awakening of catatonic states before medication existed (My providers agree with these descriptions). But why do they improve at times? Because they are treatable. No one has ever said that before. Its time to say so. I intend to continue to advocate for treatments. Last week I had a wandering episode from tardive akathesia because I took the ginkgo (which boosts dopamine in clinical studies) too early and it ran out. I had a flood of emotions of my whole life. But then I experienced the dreaded "matchgirl" persona which mirrored choking spasms and dysphoria which is tardive dysphrenia. But another one that since it only occured before in dissoactive dreams I didn't know what it was. I was seeing the cathedrals I did in France and England as child, could smell the musty odor of them (synathesia) and hear Gregorian chants (auditory hallucinations) but as is typical of Parkinsonism my knees collapsed. Thus the dissociation mirrorring the spasmic activity. Its neurological. That much is known in me. But it wasn't a year ago. Its an "awakening" for many. As is my quest for new treatments and to return to the outside world. And my mother who spent many years helping many people as a junior high school teacher is seeking recovery of her own. So its a positive experience for all. And one many may learn from.