Sep 26, 2009
I JUST WANTED TO SHARE MY STORY BECAUSE I AM SO DESPARATE SCARED. I have seen a chiropractor, herbalist, acupuncturist, been to physical therapy, and I am so desperate, I have even seen a witch doctor. And no results and instead of getting better I only feel worse.
Sometime in November one day I went out with my boyfriend, my sister and her boyfriend. At night we went back to my sisters’ house. It was raining and I was driving. My tires skid into a puddle of water and I got a flat tire and I crashed into a pole. As I ran into the pole I felt my head and neck moved back and forth with great force. I never did go to the doctor that night. After the accident I felt fine. A couple of days later I had a minor cold. I had drippy nose and I coughed a lot. I coughed for several days and took medicine for the cold. One day I took medicine and went to bed. I woke up in the middle of the night feeling nauseated and coughed a lot. I threw up so much that I threw up blood. I was scared and my stomach hurt a lot. I went to the Dr. and I told him what happened and he sent me to have a test done over my stomach. I went back with my Dr. after I had my test done and he said I had severe acid reflux. He told me it was minor. He gave me pills for that.
After a week I felt normal again. My cold was gone. Around two days later I had the worst migraine ever. My migraine lasted all day. I took Tylenol and it helped a little. I also put ice on my head. After a couple days I started getting throbbing headaches. It was less painful then the migraine I had. My headaches hurt so much that the front of my head felt tingly and became numb at times. With my headaches I also felt a strong pressure on my chest. I felt like it was difficult to breathe. The pressure would go and come back in times whether I was at home, at school, driving, etc. My mom mentioned it was heartburn. While I felt this I would drive my car. For a couple of days I thought my car had a burning smell. I thought I smelt gas or something similar to it. While I was driving I felt like it was difficult to breath and my heart was beating really fast. I thought I was going to have a stroke. At times my hands became numb. I opened the windows but that didn’t help. A couple of times I stopped driving when I was on the road and parked somewhere because I ran out of breath and could not concentrate on the road. At times I also burped a lot and had a strange taste in my mouth. It tasted like gas. When I burped I tasted it and smelt it coming out from my mouth. I told my parents and they drove my car for a week. They told me they felt and did not smell anything. They said the car was fine. I drove my car again and felt the same thing. One day I was at home and felt like I could not breathe. My parents took me to the clinic. The doctor and nurse checked my oxygen level and blood pressure. It looked normal. They also took an x-ray of my chest and an EKG. It all came back normal. I told the Dr. about the taste and smell of gas I had coming out of my mouth. I told them that I thought it might be carbon monoxide. He decided to do a blood test to see if it was a possibility. A week passed by and I got a call and my blood test came back normal. All I had was low potassium, but this was not anything major. I kept having the same symptoms. More weeks passed by.
I went to rent a movie one day with my boyfriend. Inside the store I felt out of breath. My hands started tingling, so we decided to leave. When we got in the car I felt lightheaded and out of breath, like someone was pressing hard against my chest. Beside my hands feeling tingly, I also felt my face, chest, and legs feeling tingly. It also felt like my veins and the inside of my body was cold. My boyfriend told me I looked very pale. I felt like I was going to pass out. So I told my boyfriend to take me to a different clinic then the one I went to last time. When I got there, once again, they checked my oxygen level and blood pressure and it all came back normal. They also did another x-ray of my chest and an EKG. These tests also came back normal. The Dr. told me what I had were panic attacks. He gave me medicine for my panic attacks. A couple weeks have passed by and I felt better. I learned to control my attacks. The Dr. said I had a lot of stress, even though I did not feel it. I told him I have a calm life. After the Dr. told me this, I dropped two classes out of four from college.
I felt a little better until I freaked out. My boyfriend and I were at my house getting ready to eat Chinese food at a restaurant. I had a bad headache and I felt my chest pressing again. The inside of my chest felt cold. All at once I felt like a lot of tiny needles from the top of my head falling down until I felt the inside of my head completely empty and numb. It felt like a balloon floating. I was so scared I thought my skull or brain was going to fall. My boyfriend calmed me down. From then my head has been numb. It is just the inside of my head. I felt like my head is going to fall off, so I held my head with my hand a couple of weeks.
One day I went to stay with my sister at her home. I began to have a headache so I went to bed. I tried to sleep but my headache got worse that it woke me up when I was barely falling asleep. I felt like pins and needles were scratching and cutting the inside of my head, esp. on the back of my eyes. I could not stand the pain. My sister took me to the emergency room. I waited about 6 hours and the pain was unbearable. I never cried so much in my life. When I saw a Dr. He put an IV on me because he said I looked dehydrated. He gave me pills for the pain and I went home. I took them and they sort of helped.
A couple days later, I felt pain around my eyes, cheeks, ears, and nose. I also felt like something cold was dripping from the inside my head. My mom thought it was mucus. She thought it could be a sinus infection. So I put on nose spray for about two weeks. The headaches got worse that I could not sleep at night. I decided to go back to the clinic and the Dr. gave me sleeping pills, Vicotin for the pain and he decided to give me a CAT scan to see if I had a sinus infection. I got blood drawn out to see if my thyroid was normal, to check my blood count, and for other tests. I took the pills and I felt less pain. I could sleep now at night. In about a week, I went back to the Dr. and he told me my CAT scan was normal. I told him I still have pain. I told him I felt like I had something thick and sharp, needlelike sensation, poking the back of my eyes and cheeks. It felt like something was pulling my eyes out. It was like wires were wrapped around my eyes. The Dr. told me he was going to do an MRI. I went to have my MRI done and I did not get my results until two weeks later. During one of those weeks, I went to vacation with my family. When we got there my head started to hurt horribly, painfully bad. I felt that I had something falling from the top of my head. It felt like many sharp pins and needles, at once, were falling and piercing and cutting all the way through the inside of my eyes, nose, the sides of my ears and my tongue. When I felt this, it also had a burning sensation. It felt like the inside of my head was on fire. I had this feeling all day and all night. The pain was so bad I was shaking and could not stop crying. The next day in Mexico I decided to go see a neurologist. He told me based on my symptoms that it sounds like it could be epilepsy with a complicated migraine. He sent me to the hospital to do an MRI and to have an EEG. I did these tests and went back to him. He told me everything came back normal. I told him I felt the inside of my head completely empty and numb, like there was just a hole inside my head. My head felt wobbly. I also felt like a lot of tiny needles were falling down from the top of my head. When this happened I felt the needles or whatever sensation it is giving me shocks or static, or electricity. I felt the shocks inside my head and also at the bottom of my feet. It felt so weird and painful. The Dr. told me, once again, based on my symptoms that the closet thing I could have is epilepsy. He thought I might get seizures. He gave me medicine. He gave me Topomax and Keppra for epilepsy and some medicine for the pain.
When I got back to USA I went to the clinic for my MRI results. The Dr. told me my results came back normal. He told me to not take any more of the medicine I was given in Mexico because I do not have epilepsy. He said this medicine was not necessary and it could ruin my digestive system. He sent me to have a urine test and I had a minor infection. He gave me pills for that. He also gave me floxentine pills. He thought that everything I had was caused by stress, but I believe its something else besides stress. He said he was going to fax some papers so that I could see a neurologist and have an EEG done. I still have not seen a neurologist nor have my EEG done yet. But I should soon.
I only took the pills the Dr. gave me for a couple of days because my stomach hurt a lot. I also lost my appetite. I hardly ate food. I also could not sleep during those days. I went back to the Dr. and he told me to stop taking all the medicine I was given. He gave me Nexium pills for my stomach. He told me not to take any other pills except Tylenol or Ibuprofen for my headaches. He also draws blood to see if I had any stomach problems. I started taking my pills and my stomach felt better and I could sleep at night now. Since then until now I have felt different sensations inside my head, but being completely numb and empty. My head has felt completely numb for around two months. One day I felt like there were wires inside my head. I felt like there were pins and needles, I felt like my head was on fire. I felt like I had air or my head was cold inside. I had a sensation like wires were pulling my skull or my head out of my head. I had a sensation like water falling from the top of my head. It felt cold. I also had itching and tingly sensations inside my head. Almost every day I have different sensations inside my head. Some days I would have ringing in my ears and my vision would see white spots for just a second.
Recently, my head feels like the numb sensation I mentioned. I am sometime still feeling like the sensation that something is falling from the inside of my head, sometimes a cold sensation. This sensation I have also felt in my neck and now I also feel my neck empty or numb. With this my neck hurts a lot. It feels like my head is heavy and wobbly and makes my neck and shoulder hurt. I also feel like my body feels heavy, like it is tired. But I can move my body well, function well; see well, do all the normal stuff. I never had a fever either.
Now it is July 2007 and I have gotten new symptoms. I get chills at night inside my whole body and sometimes during the day, I feel congested, my chest gets really tight. My throat also hurts. Sometimes I can’t swallow my food. My throat feels like it wants to go to the back of my neck. I also can’t sleep because I have to wake up every 20 min. to go pee. I think I have a bladder infection. One day I couldn’t sleep the whole night because I felt like I had water trapped inside my chest, I tried to sleep but I felt like I couldn’t breathe and it woke me up over and over again. I burped a lot. I also have ringing in my ears. My ears hurt sometimes too. My work had a health fair and I had a test done for my ears. I had to do a balance test and I had to close my eyes and I feel over to the side twice. So the Doctor told me I might have a severe ear infection and that I should get it checked out. One day I freaked out at work because I had a lot of pressure in my head and I felt like a pop sensation, like it was expanding and I had the sensation of something cold falling from my head. After that I have gotten big horrible headaches and a lot of pressure in my head. It feels like a pump, pumping air into my head and it just wants to shoot up. My neck hurts a lot. It feels strain, wobbly. I think my head has so much pressure because of my neck feels weak. My head shakes a lot and when that happens, my body does too. I went to the Doctor again and he gave me tests to see if I had a throat infection and a bladder infection. He told me I did have a minor infection in my throat. But he also told me I had a severe bladder infection. I told him how I have been feeling. He set up an appointment so that I could see a throat and ear specialist. He also set up an appointment so I could have an EEG. As I mentioned before I saw a neurologist before and he told me I had stress (I know that part of It is stress because I have no idea what is going on with my body or where or what the cause is and It so difficult to live like this) and he said it would go away in 3 weeks but it has been longer and I felt like I have gotten worse and that is why I have not got an EEG done before. So the doctor gave me antibiotic for my bladder infection and just in case I have an ear infection.
July 26, 2007 around 7:00 p.m. I went outside to walk around the block with my boyfriend. As I was walking I felt my head very cold and had a sensation of something inside my head dripping down like liquid and I freaked out. When I felt this, I felt my head getting number and air pushed inside my eyes. It felt like a balloon expanding, then crushing and suffocating my head, and then I felt something moving around and falling down from the top of my head. It felt like my head had sharp stickers stuck inside and then they would come off and tear my head apart. I thought my brain was going to fall down or my skull just wanted to slip down. I felt a lot of pressure on the back and on the front of my head. I also thought I was leaking blood or fluid.
It is now February 08, 2008 and I feel worse. My head is so bad it feels like it is tearing apart inside. It feels like a balloon that is blowing up and up, to the sides and all around and suddenly it pops and water or something cold just falls to the back of my head. When this happens it feels like it is pulling my spinal cord or something close to it up and then down. I also feel my body shiver and at the same time the pressure is pulling my neck. I feel cold and then a lot of fiery heat around it. I feel like I need to put something around my neck to hold it because the nerves around it hurt so badly. Every time this happens it feels like something is tearing the inside of my head more and more. I JUST NEED ANY KIND OF INFORMATION TO GO TO ANY HOSPITAL ANYWHERE AROUND THE WORLD.
It is now February 20, 2008. It is 2:00 am. I was sound asleep until I was waked up by a pop sound. I felt a pop pressure in my throat and it felt swollen and popped and when this happened I felt pressure pulling on my ribs and on my chest. My chest shook a lot for about half an hour and it felt really cold, like a cold ice sensation and my chest was shaking and I had hard time breathing. After my chest stopped shaking I felt the inside really hot and warm. My ribs and chest hurt a lot. I do not have any insurance. I wish I did.
Saturday, April 5, 2008. I lost my job about a week ago. I thought I could make it through without getting fired but I was wrong, all the sensation and pain I have been feeling in my body beat me. I am desperate. I have no health insurance. I am feeling worse. I am out of options. I do not know what other tests to run or what else to do. I feel so weak. My body feels like its tearing apart. My body feels so bad, and I know my body is telling me that something is wrong. Sometimes I don’t want anyone to touch me because it is painful; it even hurts to wash my hair or if I brush my hair or if someone pokes my body.
Thursday, July 30, 2009: 12:50 AM. I still feel the same symptoms. The inside of my head with lots of pressure that is pushing on the sides and it feels so cold. This pressure starts from my head, and then goes down lower; it is so strong it feels like its pulling my chest and my inside around my abdomen. When this happens it feels like it ripping my inside or moving everything inside me around. It is so painful when I lay my head on the pillow I feel more pressure on the base of my head. I can hear the throbbing, shaking sound in my head. It is so bad, I am afraid to yawn because I don’t want to feel more pain. This ditrimental pressure is constantly pushing and pulling on my forehead, sides of head, on the side of my nose and my eyes. I have this horrible water like sensation that flows from my head and then goes to the back of my head down through my spine. It happens several times and when it does my body reacts and I squeeze my body for a second as if I was in defense mode. If feels like as if someone were pinching my spine. I also feel like many wires wrapped around the inside of my neck and squeezing it. The wires sensation feels like it is attached to the sides or around my neck and then pull up into my head and when this happens my stomach hurts and it’s hard to breathe. I feel so dizzy and my ears feel like there is something leaking out of it. My body feels like its tearing my shoulders apart and so much pain. I feel like the inside of my body is completely numb.
Saturday, August 1, 2009. I have another sleepless night. I can't live like this anymore. All I want to do is sleep but my chest hurts so badly. It is 1:40 am and it feels like someone crushed or hit my chest and ribs and like someone is squeezing their hands around it. My chest is so cold and when I put my hand on it is hard to breathe. I feel pressure from the front on my chest and then it goes all the way to the back of my chest. My shoulder blades hurt too. It feels like someone is pushing down on them. Like someone is Putting on them some strain and weight. I also feel like lots of wires are wrapped around on the inside my neck and pulling my veins and hold on tight to my chest and pulling my body out of place. I have shooting pains throughout my body. The worst constant symptom that I feel every day, is similar to several persons were pinching really hard on the inside of my head all around and it does not go away. I sometimes try to sleep at night and when I put my head on the pillow it feels like someone is pressing really hard on the back of my head and squeezing it really tight and then my face also starts to hurt, around my cheeks and neck, pressure starts to build up.
I have a Drs'. Appointment on August 31, 2009 and I do not know if I could hold on that long. I wish I could switch bodies with the Drs. If only for a few minutes, so they could see how I feel. I have been gasping for air and coughing a lot. I hate this, I want to exercise but it’s hard to breathe, even if I do 5 minutes of walking or on the treadmill. Before the car accident, I would go to the gym everyday and I have for several years, I would never gasp for air like I do now and I can tell the difference which is worse. I was in good condition. I have felt like this off and on along with my other symptoms that I posted on July 30, 2009. The doctor appointment I had for august 31 got cancelled. He moved to another hospital, so I am going to see him in December. Please help me GOD. Send me someone to help me out. It’s getting harder and harder to breathe.
I am not sure if the MRI was done with contrast and doctors have not done one of the cervical spine. I could have a nerve pinched or even a syrinx which would actually be in the thoracic spine. I need to get my occipital nerves checked out. This causes numbness and tingling. But I also think I have more going on too. It could be the low lying cerebellar tonsils or tonillar herniation, doctors do not recognize this because it is minimal and it can cause a lot of the similar symptoms that I am experiencing. It could be sternalcleoidaastoid syndrome? It is rare and usually treated by a myofacial pain specialist.
I have a copy of my medical reports and pictures of my MRI and also of my EEG.
I HOPE AFTER I HAVE THESE TESTS DONE SOMEONE WILL FIGURE OUT WHAT IS WRONG WITH ME. I AM SO SCARED. I WISH I COULD JUST SWITCH PLACES WITH SOMEONE SO THAT THEY COULD KNOW HOW IM FEELING. IS THERE ANY WAY THAT THE MRI (WHICH I TOOK TWICE) AND THE CAT SCAN COULD HAVE AN ERROR AND I AM WONDERING IF IS IT 100% EXACT? I JUST HOPE NO ONE IS GOING THROUGH WHAT I AM.
Medicines that I have tooken: I took 5 of these medicines below at the same time.
Naproxen 500 mg
Uniclar nose spray
Keppra Levetiracetam 500 mg
Talpramin Imipramina 25 mg
Topomax 100 mg
Lorazepam 0.5 mg
MetoCLOPramide 10 mg
Nitrofurantoin Monohydrate Macrocrystals
Floxetine 10 mg