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PDD-NOS or echolalia speech disorder
Dec 02, 2007 02:38AM
- 2 comments
My son Reilly is 35 months old and approaching his 3rd birthday. Reilly has been seeing a speech therapist for 4 months and the therapist has recently identified that he has echolalia which means he repeats words when said by the parent but does not comprehend the question. Reillys comprehension of words and its meaning is impaired and he often hand leads to get what he wants or help himself. Reilly said mummy when he was about 12 months and then would not say my name until recently after speech therapy intervention.
I have concerns that Reilly may have PDD-NOS, he is seeing a peadiatrician who claims that he is too young to be diagnose with autism at this stage but he is also saying that Reilly gave him eye contact and played with a toy in his office which are not specific to autism. Reilly may give a strager eye contact more readily upon meeting them, however his focus and general eye contact is limmited overall and will more times than not respond to his name when called. Reilly will play with toys and has an excessive infacination with trains. Reilly does not present any signs of a stim and will interact with you in play or if he wants something.
Now for the more conerning behaviours. Reilly winges and cries a great deal and will mostly not seek my attention for help when he has hurt himself. Reilly will back into a corner or squirm on the ground when distressed. Reilly will regularly bang his head on the ground walls or other peoples heads. Recently Reilly has developed a new behaviour where he will mouth his arm from the inside of his wrist to his elbow - up and down with saliva from tears etc. When trying to calm him down, his behaviour escalates and he refuses a cuddle or being picked up. I just sit on his bed and wait for him to come to me after pacing around on the floor or banging his head. Reilly will throw a tantrum when: being corrected, when told NO or when interupting an activity or TV program. When Reilly is not distressed he will give a hug upon request, however this was tought to him. Reilly has sleep problems and will wake at all times through the night. If we put him back into his bed he will head but the floor and sit on the ground. After a great deal of trying to get him to sleep in his own bed after waking up we allow him to get in with us but he will not let us put our arms or hands around or on him. His legs and body are all over us during the night and I often wake up very sore.
Reillys grand parents are afraid to baby sit him or take him out. They have taken him out once where he head but his grandfather and sqirmed on the floor and would not allow him to pick him up or hold him. They have not taken him anywhere since this event. Reilly will give his grandparents a hug but he wont do this upon every request. The child care centre has written a report advising that he tends to parallel play and not interact like other children do but he does tend to make attempts to play at times. Reillys group leader advised that he wonders off when others are meant to sit on the mat and will not sit to eat his food at the table with others. Reilly loves puzzles and peg boards, knows all his colours and can count to ten. Reilly can use a screw driver but he wont use a pencil like a screw driver. Reilly will imitate the dog by barking at the fence when the neighbours come home, eat dog food and drink from the bowl.
Reilly ate all his home made solids as a baby and then refused to eat at 20 months where he only wanted his bottle. Reilly has an iron deficiency and after giving him a syrup from the chemist to motivate his motabolism he will only eat bread, biscuits, yoghurt or chicken nuggets. Reilly is infactuated by his father and often pushes his mum away when he is home. Reilly prefers his father do things for him over his mother. Reilly will cry when his father goes to work and say daddy when he comes home but not run up to him if he picks him up on the occaision from child care. Reilly does not have an attachment problem when his mother leaves him at child care, I can generaly give him a kiss and go and upon return he will run up to his mother.
My understading of PDD-NOS is that the symptoms are less severe in intensity and frequency and the child does not necissarily have all the characteristics of other PDD's. If Reilly only has a speech disorder then why are all these other concerning behaviours present and why cant I help him naturally when he is upset or distrressed. Could this be PDD-NOS and does any one elses child have the same problems?
I have concerns that Reilly may have PDD-NOS, he is seeing a peadiatrician who claims that he is too young to be diagnose with autism at this stage but he is also saying that Reilly gave him eye contact and played with a toy in his office which are not specific to autism. Reilly may give a strager eye contact more readily upon meeting them, however his focus and general eye contact is limmited overall and will more times than not respond to his name when called. Reilly will play with toys and has an excessive infacination with trains. Reilly does not present any signs of a stim and will interact with you in play or if he wants something.
Now for the more conerning behaviours. Reilly winges and cries a great deal and will mostly not seek my attention for help when he has hurt himself. Reilly will back into a corner or squirm on the ground when distressed. Reilly will regularly bang his head on the ground walls or other peoples heads. Recently Reilly has developed a new behaviour where he will mouth his arm from the inside of his wrist to his elbow - up and down with saliva from tears etc. When trying to calm him down, his behaviour escalates and he refuses a cuddle or being picked up. I just sit on his bed and wait for him to come to me after pacing around on the floor or banging his head. Reilly will throw a tantrum when: being corrected, when told NO or when interupting an activity or TV program. When Reilly is not distressed he will give a hug upon request, however this was tought to him. Reilly has sleep problems and will wake at all times through the night. If we put him back into his bed he will head but the floor and sit on the ground. After a great deal of trying to get him to sleep in his own bed after waking up we allow him to get in with us but he will not let us put our arms or hands around or on him. His legs and body are all over us during the night and I often wake up very sore.
Reillys grand parents are afraid to baby sit him or take him out. They have taken him out once where he head but his grandfather and sqirmed on the floor and would not allow him to pick him up or hold him. They have not taken him anywhere since this event. Reilly will give his grandparents a hug but he wont do this upon every request. The child care centre has written a report advising that he tends to parallel play and not interact like other children do but he does tend to make attempts to play at times. Reillys group leader advised that he wonders off when others are meant to sit on the mat and will not sit to eat his food at the table with others. Reilly loves puzzles and peg boards, knows all his colours and can count to ten. Reilly can use a screw driver but he wont use a pencil like a screw driver. Reilly will imitate the dog by barking at the fence when the neighbours come home, eat dog food and drink from the bowl.
Reilly ate all his home made solids as a baby and then refused to eat at 20 months where he only wanted his bottle. Reilly has an iron deficiency and after giving him a syrup from the chemist to motivate his motabolism he will only eat bread, biscuits, yoghurt or chicken nuggets. Reilly is infactuated by his father and often pushes his mum away when he is home. Reilly prefers his father do things for him over his mother. Reilly will cry when his father goes to work and say daddy when he comes home but not run up to him if he picks him up on the occaision from child care. Reilly does not have an attachment problem when his mother leaves him at child care, I can generaly give him a kiss and go and upon return he will run up to his mother.
My understading of PDD-NOS is that the symptoms are less severe in intensity and frequency and the child does not necissarily have all the characteristics of other PDD's. If Reilly only has a speech disorder then why are all these other concerning behaviours present and why cant I help him naturally when he is upset or distrressed. Could this be PDD-NOS and does any one elses child have the same problems?
Have learned some things between my daughter's therapists and the people on this newsgroup. Sensory integration therapy does wonders. If your son is acting up, some kids react wonderfully to a sensory vest that is weighted. Something about the weight can calm kids when they are overstimulated or acting funny. Helps them get past some of the touch issues. Haven't tried it yet on my daughter, but the sensory vest thing, her occupatoinal therapist is bringing next week for us to try out to see if we should buy one for ourselves. There are some web sites that sell home made ones, that cuts the cost down a little.
Heh, to give eye contact to someone is better than giving them an eye... okay it's almost 4AM and I've got insomnia really badly, so I'm a little punchy. I figured something out recently. Humor. You need humor to be a parent. Alright, so my jokes are bad. You especially need humor to get through all the therapy sessions and doctor visits. And humor to raise your child who has developmental issues who is probably throwing more tantrums than the averge toddler/preschooler because they can't communicate their wants and needs so well. I have also found that using humor to tell my daughter no is working. Not that she understands my words, but I try to mime things out and use the sign language she knows. When I say no TV, I pet the television set like a dog and tell it that we have you after lunch only and that we will play with you after lunch. I think other people might think I'm nuts, but my daughter understands that when I pet the TV, I'm acknowledgin that I understand her request but that I am politely declining it. I guess it's humor. NOt sure.
My daughter is learning about sensory stimulation through sensory integration therapy, tailoring her sensory diet. Well, my motherinlaw has discovered she likes the soft feel of this certain blanket on her bed, and she found a dog bed with the same material. She is buying my daughter a doggie bed to lounge about on while visiting her at her house. I think it is hysterical. I also think it's funny that her second son (my brotherinlaw) thought he was Snoopy growing up, had to have a dog bowl to eat his breakfast out of. She bought him a dog bowl. And here she is buying my daughter a dog bed. Life is a riot sometimes!!
Like you, am waiting for diagnosis. First visit to developmental pediatrician will be in March. I don't expect a diagnosis for awhile. I am told that they only diagnose kids who are blatantly obviously autistic. If his developmental pediatrician is not diagnosing your son right away, I guess that means he isn't too developmentally behind, although his behaviors sound frustrating to handle in addition to the regular frustrating behavior that a normal 3 year old has.
Is Reilly going to go to more therapy after age 3? Our state has this 0 to 3 program and then they transition you to either the school system to have developmental preschool or to different therapists. I'm nervous because your kids have to go through more assessments. what if they need the preschool program but don't qualify? I guess if your child isn't talking by age 3, they will definitely qualify. Not sure what your state has.
The wierd thing is is I am learning about other people that have autistic children now. My husband's current boss and his former boss both have middle school aged boys with autism, both mainstreamed in private school. I have a friend in a moms group who has an 8 year old with autism who is mainstreamed in regular public school and has an assistant to sit in class with him which a private school could not offer. I have also found out another mom in our moms group is going through our state's 0 to 3 program and her son possibly has PDD or autism and can't talk at all like my daughter. How do all these people have children with autism or PDD or developmental delays? Is it that prevalent in today's world that I know so many people or is it just wierd coincidence, statistical anomoly?
Heh, to give eye contact to someone is better than giving them an eye... okay it's almost 4AM and I've got insomnia really badly, so I'm a little punchy. I figured something out recently. Humor. You need humor to be a parent. Alright, so my jokes are bad. You especially need humor to get through all the therapy sessions and doctor visits. And humor to raise your child who has developmental issues who is probably throwing more tantrums than the averge toddler/preschooler because they can't communicate their wants and needs so well. I have also found that using humor to tell my daughter no is working. Not that she understands my words, but I try to mime things out and use the sign language she knows. When I say no TV, I pet the television set like a dog and tell it that we have you after lunch only and that we will play with you after lunch. I think other people might think I'm nuts, but my daughter understands that when I pet the TV, I'm acknowledgin that I understand her request but that I am politely declining it. I guess it's humor. NOt sure.
My daughter is learning about sensory stimulation through sensory integration therapy, tailoring her sensory diet. Well, my motherinlaw has discovered she likes the soft feel of this certain blanket on her bed, and she found a dog bed with the same material. She is buying my daughter a doggie bed to lounge about on while visiting her at her house. I think it is hysterical. I also think it's funny that her second son (my brotherinlaw) thought he was Snoopy growing up, had to have a dog bowl to eat his breakfast out of. She bought him a dog bowl. And here she is buying my daughter a dog bed. Life is a riot sometimes!!
Like you, am waiting for diagnosis. First visit to developmental pediatrician will be in March. I don't expect a diagnosis for awhile. I am told that they only diagnose kids who are blatantly obviously autistic. If his developmental pediatrician is not diagnosing your son right away, I guess that means he isn't too developmentally behind, although his behaviors sound frustrating to handle in addition to the regular frustrating behavior that a normal 3 year old has.
Is Reilly going to go to more therapy after age 3? Our state has this 0 to 3 program and then they transition you to either the school system to have developmental preschool or to different therapists. I'm nervous because your kids have to go through more assessments. what if they need the preschool program but don't qualify? I guess if your child isn't talking by age 3, they will definitely qualify. Not sure what your state has.
The wierd thing is is I am learning about other people that have autistic children now. My husband's current boss and his former boss both have middle school aged boys with autism, both mainstreamed in private school. I have a friend in a moms group who has an 8 year old with autism who is mainstreamed in regular public school and has an assistant to sit in class with him which a private school could not offer. I have also found out another mom in our moms group is going through our state's 0 to 3 program and her son possibly has PDD or autism and can't talk at all like my daughter. How do all these people have children with autism or PDD or developmental delays? Is it that prevalent in today's world that I know so many people or is it just wierd coincidence, statistical anomoly?
My son will be 4 in April. Your Reilly sounds like in many ways similar to my son. We just had our first long awaited appt. over at Riley Childrens Hospital in Indianapolis, IN. Actually..our appt. was at their autism treatment center. We spent three hours there meeting with two doctors. My son was diagnosed with PDD-NOS at that appt. on 2-14-08.
The doctor told me over there that the best thing you can do is get early diagnosis and start them on therapy and down the right track. When your son is three I would certainly take him somewhere to be evaluated.
Best of luck to you and your son.
The doctor told me over there that the best thing you can do is get early diagnosis and start them on therapy and down the right track. When your son is three I would certainly take him somewhere to be evaluated.
Best of luck to you and your son.
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