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I'm Piccled!

Jun 11, 2008 03:12AM - 2 comments
Tags:

picc line

,

neuroborelliosis

,

lyme



So here I am, up at 2:00.  At least I got close to 5 hours sleep and only woke up twice during that.  Here's the full version of yesterday's events...

We got out of here on time at 7am, just in time for rush hour traffic all the way up there.  The roads were horrible!  Between the traffic load, construction, and a bad accident on 287 (several people had a really bad day, fortunately they seemed to be ok), I didn't think we'd ever get there.  I'm, of course, freaking the entire trip (good thing I was driving so it kept me distracted).  Serious anxiety about the whole procedure, coupled with anxiety about being late.  We got there on time, in spite of everything.  

We get there, go to the wrong building, wander over to the right building, and then it begins.  Filled out a boatload of paperwork.  The nurses there were really nice and sticklers for keeping things sterile.  Didn't help with my weenieness at all tho.  I was skeered!  

First try, lotsa lidocaine and no go.  The catheter caught on something and crumpled.  They pulled it out and I peeked.  Bad move.  Second try, more lidocaine, no go.  Third try in different spot.  More lidocaine.  Still no go.  Fourth time in yet a different spot and an unbelievable amount of lidocaine.  And Voila!

It was the strangest sensation.  I could actually feel the catheter move inside my body as they pushed it along.  Not the most pleasant feeling in the world. *skeeve*

Then came the xray which we waited about an hour for.  That was ok.  Everything's where it's supposed to be.

Had to wait awhile longer for them to bring over the Rocephin drip.  That wasn't bad.  Only took 1/2 hour to do.  Instant post nasal drip tho.  Although, if that's the only side effect I get from it, I'll be happy.

No handout to take with me regarding care/precautions, but I got a pretty good verbal overview from the nurses.  No heavy lifting.  No repetitive movements.  No tennis (certain angles can snap the line).  Keep it dry and cover it during showers - that's going to be interesting.  Keep my fingers off of it.  No cat box duty (that's hubby's job now.  HA!).  Take it easy for a few days while my body adjusts.

Left the hospital at 2 and immediately started looking for somewhere to eat as neither of us had eaten before leaving the house that morning.  Got home around 6 after considerably more traffic, construction, tailgating, yelling at cars, etc.  Hubby was driving.

We finally get home, more or less in one piece.  Then the storms hit.  Thunder, lighting, high winds, huge amount of rain.  The electric went out sometime around 7:30.  Apparently, the whole area was out.  With no idiot box to entertain me and being exhausted, I went to bed around 8:30ish.  The electric came on around 1ish this morning, which woke me up.  Glad for it tho.  Would be at a real loss with no computer, lights, or coffee at this hour of the morning.

Really don't have an idea how many holes they put in me yesterday.  I can see 5, but the dressing covers a bunch more.  Really sore and bruised.  The underside of my arm feels swollen.  Shoulder's sore.  In spite of the heat, I put a hot pack on it last night and it feels somewhat better.  Something of a learning experience to try to sleep with this thing tho.  I can feel the dressing pull at certain angles and, of course, that wakes me up.  I'm still somewhat paranoid about doing damage to it.  Hope that passes soon.

So here I am.  Piccled.

The care package with my supplies is supposed to show up today.  Visiting nurse is supposed to show up today too.  With any luck, the package will get here before the nurse does.  Getting the dressing changed and she's showing me how to do the infusions.  This otta be fun.

Hopefully, this new antibiotic will help deal with what's been going on in my brain.  Btw, if you haven't read my posts before, I have what's called neuroborelliosis, which is basically lyme disease that has gone into the central nervous system.  Peripheral neuropathy (tingling, buzzing, pinpricks, etc), serious brain fog, seizures, tremors, etc.  It's not fun.  The lyme has also seriously screwed up my endocrine system (including thyroid, which is why I'm here), gotten into my joints, and is doing nasty things to my GI system as well.  I'm also being treated for babesia and bartonella, which are also transmitted by tick bites.

Will be adding a photo of my new appliance once I figure out how to work the camera on the cellphone.

Comments
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by timus, Jun 17, 2008 08:11AM
Gee Whiz and I thought that I had it bad,just enlisted so I didn't know your background.Who the hell come up with all these fancy names (neuroborelliosis,babesia,bartonella) why not (crackle,bubble and squeak) something simple.When I figure out what i'm doing around here,i'll get back to you......Timus.

by Nyxie63, Jun 21, 2008 05:19AM
Hi!  Welcome to the board. :)

LOL!  After awhile you just get used to the terms.  It's a heckuva steep learning curve at first tho.  All the terms flew over my head - didn't even ruffle my hair on the way by.

Neuroborelliosis is simply a $10 way of saying I have a lyme disease infection in my central nervous sytem.  I have bugs (bacteria) in my brain.  Still haven't decided if it's cool or creepy.  Probably a little of both.

So what brings you to our happy little family?  

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