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Test today

Feb 12, 2015 - 11 comments

I'm going in this morning to have an ultrasound done on my side. I'm so hoping they can find out why I'm having this pain. I've had countless blood work done, a CT scan on my stomach area, an upper scope, a cath on my heart and everything is coming back normal. The scope showed severe inflammation and old bile. No wonder I stay sick to my stomach almost all the time. I had my gallbladder removed around 8 years ago and both my GI and primary Dr think this may be a bile dict problem or possible scar tissue, maybe both. If this ultrasound shows nothing my next step will be an MRI on my back. Something my GI recommended just in case this is a back and nerve problem. My primary Dr is treating right now and hanging in there with me. She also prescribes my medication. I know I'm very lucky that I haven't been forced in to pain management, yet. This has been going on for a year with no answers but I plan to keep up the fight and do what I can to get answers. I have the most wonderful daughter and mother, and my husband. If it were not for my daughter and mom, mainly, I don't know if I could have made it through this last year. My daughter is always there for me. She gives me great advice and never judges me for needing pain medication. I hate these new laws! I'm being under medicated like millions of other pain patients. Again, I realize how lucky I am to even be getting treatment considering I do not have a diagnosis yet. This post is not only for me so I can write down my feelings and what I've went through but also for any of my friends here that are struggling too. Being in chronic pain can effect every part of your life. It can cause depression, or make it worse in my case since I already had it. It can make anxiety worse and I've had that also for as long as I can remember. My daughter deals with chronic pain also. She has arthritis and she's only in her 30's. It breaks my heart to see her in pain ,but she is so strong! I could not be more proud of her. Yoga, meditation and exercise are her saving grace most of the time. I know I always have her, my mom and my husband by my side. I'm so grateful for that. I hope this morning goes well. I want and need answers but at the same time I'm also afraid of those answers. My daughter always tells me that knowledge is power. She is so right!

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Avatar universal
by remar, Feb 12, 2015
I went in this morning for the ultrasound and the Dr took a look at it. He said it looked normal. We were sent home with a copy of the video and it said "Limited" ultrasound. I'm not sure what that means and if they could see the bile ducts or not
They did tell me they would not be able to see scar tissue with an ultrasound. So, I guess my next step is to set up an appointment with my GI Dr so he can take a closer look at this disc to see what he thinks. Maybe he will want a more in depth one. If he does not them he will most likely give me the orders for an MRI on my back to see if this is a back and nerve problem. I'm glad the test is over. I was happy that they found nothing abnormal but we still don't have any GI Drs stick with me then I know I can do this, find answers. I'm so worried that if I keep getting these tests and nothing is showing up that my primary Dr will give up on me and quit prescribing my medication. I keep thinking about what one of the members here said. If they don't see actual blood they don't believe you're truly in pain. Anyway, I am glad I got this test done. I just have to go on from here.

495284 tn?1333897642
by dominosarah, Feb 12, 2015
Talk with your doctor and tell him your fears.  You have every right to do that.  We have to be our own advocates.  I wish i had some answers for you but i dont.  I do have a whole bunch of hugs filled with love sent your way, to you, Tara and your momma(you get to hug your hubby on your own!!)   sara

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by clean_in_ks, Feb 12, 2015
Hi girl....you don't know me from Adam (LOL) but I just read this.. and because I am a chronic pain patient myself...wanted to share something.

It is true that scar tissue doesn't show up on ultrasound....I just had a CT Scan and an MRI done this past week and was told the one of the reasons for the CT Scan was to actually look for the presence of any scar tissue from a previous surgery I had done on my back.

CT's are less costly and much quicker than an MRI.  My apologies if you already know all this, but it would just seem like in your case, skipping from an ultrasound to an MRI might be leaving out a step that could possibly provide you some answers.  Plus, if you are in an immense amount of pain, laying still for a CT is MUCH easier than an MRI...lol  

Hope you get some answers....I'm on a "get some answers" journey myself...
Connie
  

3197167 tn?1348972206
by clean_in_ks, Feb 12, 2015
I'm sorry......I just re-read your first entry and you said you already HAD a CT........ignore me.....my apologies~

Hopefully they can determine what is actually CAUSING the severe inflammation and a way to help you expel the old bile....hope so~

Avatar universal
by remar, Feb 12, 2015
Sarah, my Sweetheart. Thank you so much for always being there for me and for Tara. I'm going to take your advice. I see my primary in about 3 weeks, which I mentioned above. I'm going to be completely honest with her about my fears. We have a pretty good relationship but with these new pain medication laws her hands are kind of tied. I understand he own fears because she, along with every other Dr, is being watched very closely.
I've had this going on for just a little over a year now. I haven't talked much about it until recently. Thank goodness we have a pain forum here at MH. Well, thank goodness we have MH and especially you Sarah.
How have you been lately? I hope you're doing well. It's always so good to hear from you. I can't thank you enough for your support. You really are a true angel.
Oh, did Tara tell you she's going to England March 1st? She will be spending the first week with a very dear friend of ours and he will be showing her the sites. After that week she will be going to a place called the Gaunts House to get her yoga certification! She'll spend two weeks there and come back to spend the last week with our friend and my Mom. My mom will be going  over on the 12th. I'm going to miss both of them like crazy but we will be using web cam everyday. I would go but I do not fly. Yes, I'm the biggest chicken ever when it comes to flying. Ha ha!
Sorry for the very long message. I don't get to talk with you much so when I do it usually ends up being a long message.
Please fill me in on how you're doing and what you've been up to lately.
Thank you again for being there to support me. I now have the confidence to be direct and up front with my Dr.
Take care my dear friend. Oh, and you can give my husband all the hugs you want. He loves getting hugs from pretty ladies!
Much love and the biggest hugs to you.

Avatar universal
by remar, Feb 12, 2015
Clean-in-ks. Thank you so very much for your advice. Yes, I did have a CT scan done last May. I went to the hospital because I was in so much pain,at my husbands insistence. I think they were looking more for blockages in my intestines and also for an aortic problem. I'm going to have to talk to my GI Dr about his again.
When I went for the ultrasound today they said that test and the MRI test would not show scar tissue. Now, you really have me thinking and wondering if the CT scan could have missed something. I do remember having the contrast dye and I also remember it took only a couple of minutes. Is that a normal time for a CT scan?
I found a place called Metro Imaging, it's where I went this morning for my ultrasound. Since I have no insurance I was able to get a huge discount. It helped so much! They gave me a ballpark cost on the MRI , in case I need one, and it's going to be very affordable. It seems like I've had so many tests already but since I have no insurance I have to take small steps and choose carefully what tests I can have done and when I can have them done.
Can I ask what if anything they found with your tests? Did you have them done because of pain in your back? If so, can I ask if you're in pain management and how that's going if you are? I'm sorry about all the questions. You're the first person I've come across here on MH that's going through the same thing as me. I'm really hoping you find answers soon. It's so frustrating isn't it? Please know that I'm always here to talk, listen, and support you.
Thank you so much fro commenting on my post. I really appreciate it.
Take care.
Corena

Avatar universal
by remar, Apr 06, 2015
Still no answers for this pain. Thank goodness my primary Dr is sticking with me still through all of this. Next is the MRI. I've been saving and just about have all the money to get it done. I want answers so badly! Yet, I' so scared about what they may find. What if I do have back issues, how will I handle it, what if they recommend surgery? That really scars me because of the stories I've read and the people I know who have had back surgery and it failed. I know I'm getting way ahead of myself again. First, I need to find out if this is indeed what the problem is and them I'll deal with whatever is going on. I have the best support team ever. My Mama and Baby Girl, Tara. I also have my wonderful friends here at MH. Many who have been my friends since I joined almost 7 years ago. Many days the pain is unbearable but I know I can make it through. I think about all of the people who are in so much more pain than I am and it just breaks my heart. Thank all of you again so very much for being there to support me. It truly means the world to me. Much love to all of you.

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by dominosarah, Apr 06, 2015
Oh my dear forum momma......Yes you are getting way ahead of yourself!  The fear of the unknown is much scarier than actually knowing what is going on.  When you find that out then you can make a plan with the doctor.  I know this is all easier said than done!  You have a good primary doctor who is on your side and will work with you.  That is a huge plus.  When you feel overwhelmed sit back and take some deep breaths, that will help.

Is Tara back??  I miss talking with her.

I am sending my love to you all~

Avatar universal
by remar, Apr 06, 2015
I called today to schedule the MRI. It's time that I did that so I can go and get it over with.
You're so right Sarah! I know I'm getting way ahead of myself and I have to stop doing that.
Yes, Tara has been back for a week. She had an amazing time in England. The yoga training was very intense but she made it through that just fine. I think by the end of the second week, her last week there, she was ready to get out of there. It was getting hard on her being in the same place with the same people. She was anxious to get out and see all of the beautiful sites. You should check out her FB page to see the pictures. Buckingham palace, Big Ben and her most favorite, Stonehenge! That was a dream come true for her to see that. She also got to go to London. It was an incredible experience for Tara. She was not ready to come home but I reminded her that now since she has her yoga certificate she can teach anywhere in the world so there will be many trips possibly all over the world.
Thank for always being there! You are a true angel and have a way of making all of us feel so much better.
Did you have a nice Easter with your family? I hope so. Fill me in on how you've been doing lately. I think about you often and also think about sending you a message but I know everyone here wants and needs your time.
Take care my sweet friend. Much love to you.

495284 tn?1333897642
by dominosarah, Apr 06, 2015
Send me a message!!!

495284 tn?1333897642
by dominosarah, Apr 06, 2015
Send me a message!!!

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