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Rheumatoid Arthritis and Me

Nov 20, 2009 - 4 comments

Restless Legs Syndrome




autoimmune disease

I have developed rheumatoid arthritis from having knee surgery on both knees.  I am in hellish pain especially in the winter  months.

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by corky1969, Mar 11, 2010
Hi- I'm soo sorry you are in so much pain! My mom has Conjestive Heart Failure, PAD, and Restless Leg Syndrme. She takes a drug called Neurotin and it helps so much with this! GOOD LUCK;)

by busykitties, Mar 11, 2010
Thank you for your kind and helpful information corky1969.  I am presently taking Lyrica which is horrendously expensive but seems to help even nerve pain at this point.  I will look into Neurotin as well.  Thank you and God bless that you are not suffering.  

by TrudieC, Mar 11, 2010
busykitties, what other drugs are you on?  Have you been on Plaquenil or any immune suppressants?

by busykitties, Mar 11, 2010
No, I have not heard of Plaquenil actually either.  I am on Syrequel for the depression of pain and the pain itself in my muscles, joints and especially the nerve pain I endure.  Also, Tylenol 3 with Codeine helps too with the Syrequel.

I swim everyday at the YWCA and that helps but only for a while of course. The hot tub really helps when it is super hot. It literally kills all pain out of my body for a few hours.  The only other thing I have tried to do that works is a massage.  It calms everything down and it lasts for at least a week or two.  Unfortunatley, I pay out of pocket and a massage costs for me, $100.00 per hour.  I have graduated where I need one and a half hours.

A massage is really worth it when I can scrape the money together.

The one thing that irritates me to no end and that is people touching me, poking at me without my permission.  I hate being touched at all now as my nerve pain is so sensitive.  Does anyone you know have nerve pain Trudie? It is awful.
I don't mind loved ones touching me to help me feel better. It is strangers and/or acquaintances that touch me very hard like...they always poke my shoulders and back.  I freak.

Thank you very much Trudi and Corky too for the information.  Hope you will be well too. God bless you both and all pain suffers...there must be a cure somewhere.

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