Jun 17, 2008 - comments
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Hi all. I guess I've never really put my thoughts together about this "journey" since I laid out my story on the day I joined. Frankly, I'm really having a tough time these days. I'm half-way through chemotherapy -- just finished A/C, on to Taxol in 3 weeks. Tomorrow I will meet with the genetic counseling people to get the results of whether or not I am a gene carrier for BRCA1 or BRCA2. If it's positive, then I am faced with the decision of a prophylactic right mastectomy and oopherectomy as soon as my chemo is finished at the end of September. Or trust that chemo, etc is working on the right breast and I can preserve it and keep an eye on it every 6 months. Then 5-7 weeks of radiation, then 6 months of "cool down" time for my skin to heal. Then bilateral DIEP reconstruction. That means a year from now, I'll probably be humpty-dumpty back together again. This seems interminable. I am lonely, though I have a lot of support. I don't know, it just seems no matter how many people I have around, there is still a pit of loneliness that doesn't go away. Does anyone have any words of wisdom, support, humor? I want to live a life that is not constantly focused on this damn cancer. I'm trying. I really am. I have my wonderful children, and a supportive husband (and a crummy ex-husband). My mom has been amazing. I hate feeling like a burden to people. I guess the cancer is a burden, not me. I have a hard time separating that out. Thank you community of support. I need it.
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