Pelvic Organ Prolapse Journals
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Pelvic Organ Prolapse

Dec 05, 2009 - 8 comments
Tags:

pelvic organ prolapse

,

rectocele

,

cystocele

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enterocele

,

pop



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For those of you who are either wondering if you have pelvic organ prolapse or have already been diagnosed and are having a hard time deciding whether or not to have surgery, it's truly a good idea to find a urogynecologist to get the facts. There is no right or wrong with whether or not to have surgery, there are good options available for each choice and the bottom line is it is such a personal decision. Typically when the symptoms get  too annoying or painful to handle, many women opt for surgery. Often younger women want to wait because they want to have additional children. I had a grade 3 rectocele/cystocele/enterocele repair done in 2008 and have never regretted if for a second. I won't lie, it is a pretty rough surgery if you are having a combination of prolapses repaired, but if you do your research prior to surgery and know what to expect and have everything set that you will need after surgery ready to go b/4 you go to the hospital, the heal curve flows easier.

Sher

                                     NO ONE CAN HELP US AS MUCH AS WE CAN HELP OURSELVES


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by alltomuch, Jun 17, 2010
Oh my GOSH!  I have been looking online for days for help with this issue!  I have not found anything nearly as hopeful as your site!!  I am scared stiff!  I have been having a lot of problems for years and like many, been told to take a laxitive!
Last week I went in for xrays and they told me that EVERYTHING was trying to fall out!!  My sigmoid colon, my small bowels, bladder and of course I already knew my uterus was prolapsed, 6 children and how could it not be??  Now I am waiting for a call from my doctor who said he is sending me to a colorectal surgeon!!  The xray tech's, altho not supposed to tell, did tell me that they thought I would need about 4 or 5 differant surgeons!!  I am so scared of surgery!!  I know, I sound like a big baby.. but I just lost my Mom to pancreatic cancer 3 years ago and after they did her surgery... she NEVER healed, in fact all the staples gave and we literally had to try and 'hold her together with tape and bandages for the gapping incission from her breastbone to pubic bone that leaked quarts of fluids for two months until she passed away!  I was horrified!!  I still have those memories so fresh in my mind that any surgery is stressing me out!!!  
Anyway, here I go blabbing on... I seriously do not know what to do or where to go.. I do not have insurance and that worries me a lot too.  Not only do I think I will get less than the best care and surgeon because I don't have insurance, but I am sure that the bills will devastate our family, we are a paycheck to paycheck household with 3 teenage boys still at home!!   I need all the information I can get, and you sound like you know so much about this!!  
I don't know what to do..... I feel that I am just too scared to do anything at the same time scared not to!!


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by alltomuch, Jun 17, 2010
please..please..if you can send me email or pm me so we can talk I would be so greatful!!  I know this is a lot to ask, you are probably much to busy...... this is just all to much!!!

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by sherrieP, Jun 17, 2010
Just did a quick scan of your message alltomuch, zooland here this AM, but I will get back to you this morning for sure! Hang in there just a bit longer, I'll get back to you as soon as I can.
Sher

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by sherrieP, Jun 17, 2010
One more quick thought, see a UROGYNECOLGIST, they fix all of the 5 kinds of POP-you should not see different surgeons for each procedure-I'll get into the reason in more detail when I get back to you.
Sher

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by sherrieP, Jun 17, 2010
And I am never too busy to help someone with POP, especially in crisis mode! I'll do everything I can to help you out. Send me your email in a PM and I'll be able to forward other info on that as well.

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by halo2009, Aug 04, 2010
im so glad to have all the info you have on here as with alltomuch im scared to i've had 7 surgrys for endometrios 1 to put my colon ovarys and other stuff put back in the right place they were all in wrong possition i was only 20 or 21 for that. have ic-interesrial cystits. and now the obgyn spec said i have pop and need surgrey lap with posiable utern susp.all in one visit he checked with only ultrasound that was in patient room first time seeing this dr and noticed with in a min that uteris and 1 ovary are attatched and fell ovary down laying on talebone and uteris in front down to floor aswell im a very anxious paranoid person and tend to get manic with things and this is one its overwelming i just turned 30 couple mths ago i know ive had many surgreys and shouln't be this scared i became so used to them but something about this one puts a red flag up it was to quick i thought i can't exlpain what is going through my mind since i was told in june about this wondering what to do and is he able to see just on ultrasound and not wanting further test mri ect. the symptoms on ur other post is all me exactly but the peeing yrs ago i'd pee all the time but last 3 4 yrs i can't at night i would literally fall asleep on toliet going to pee only sprinkels come out even during the day i sit there 5 min to keep getting as much out as possiable 4 reliefe.sex always had problems with the pain,the pulling had 4 yrs lower back tailbone and lower stomach very painful and feels full heavy like i had infection or something.and can never have bowl movements really like once a mth if lucky got checked for it there was blokage its been yrs ago nothing helps laxatives maylox i mean nothing and read that was a symptom of pop..anyway sorry so long again don't know what to do going crazy over this seems like something always new comes along for me its depressing for me if anyone has any info or opions or anything please let me know what u think if it all sounds right can he see that on just ultrasound and what should i do maybe befor the surgrey as i cancelled last week for it till i understood more as he never had explained any of it to me nor gave me pamplets or info.this site has been the only site with help and info ive looked for days found nothing seen this site and already got great answers and alot of info on here thanks sherrip and everyone on here

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by sherrieP, Aug 04, 2010
Hang in there halo, buried right now and zoo day tomorrow but I'll try and get some info off to you tonight. I am so glad you canceled this surgery, you need to get more info so you understand what to expect prior to surgery for POP. You need to see a  urogynecologist for sure! I'll get back to you as quick as I can, hold on a bit longer. In the meantime, send me a PM with your e address and I can send some other info as well-we don't do any self-endorsement stuff on MedHelp and there are a couple of things I can tell you about by email.

Sher

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by sherrieP, Aug 05, 2010
The symptoms you have are certainly classic POP symptoms but they may also be even worse because of the endo tissue gluing everything together. Again I truly feel you need to see a urygyn, every one that I have met has been a compassionate women' health advocate and typically take their time explaining things or else has their nurse practitioners explain things. I wouldn't let the no MRI thing worry you, if you see a urogyn they will do the tests they feel they should to get complete info. It is so infuriating that a physician wanted you to have POP surgery without a pamphlet or explanation-this is the kind of dr you need to RUN from. Both the constipation and urine retention are extremely difficult to treat without a pessary to hold the organs up (which I have to wonder if you could even tolerate after all of the surgeries you've had plus the endo scar tissue). What you could try for the constipation (and know that the more constipated you are, the harder it is to pee.....what a loop....) is get a buffered form of vitamin C at a health food store and take 1000mg a day, if that doesn't help you could up it to 2000mg a day. If that doesn't help you can also add probiotics (I take 2000mg C a day plus 8 probiotic capsules, but then I have pretty bad IBS). Typically with C if you take enough it will give you loose stool but each person is different so no way of knowing if it will help or not. Laxatives are not a good idea, you just keep needing more. Often with POP, nothing helps the constipation/urine retention until surgery is done.

On one of the other posts you sent me you commented on going on disability or not, all I can suggest is you not make any redical decisions until you find a physician who will listen to you and answer your questions. Once you find that dr, it will be easier for you to be more calm about this situation. Right now you are extremely upset because you have so much discomfort and don't see any hope. I do believe that once you find the right dr, you will have hope again.

Keep me in the loop Halo with what you find out.

Sher

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