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getting scared, but staying optimistic!

Dec 08, 2009 - 1 comments
Tags:

rhuematologist

,

rheumatology

,

Neurology

,

Joint Pain

,

Arthritis

,

peripheral neuropat

,

neuropathy

,

Multiple Sclerosis

,

Raynauds Phenomenon

,

unknown illness

,

alopecia

,

muscle wasting

,

muscle weakness

,

circulation

,

purple leg

,

balance problem

,

gait problem




I'm 16; i have no idea what is wrong with my body. Something started going seriously wrong in uly 2009. My hair all fell out, and at the same time i became generally weaker and weaker and felt sicker and sicker in general. My legs would turn purple when i stood, looking like lava lamps, and i couldnt stand too long. I soon was having trouble getting up stairs, then more and more. when i would, i would recieve lightning-bolt pains down my legs. next, i couldnt keep my legs not elevated because the same pains would occur. my hands and feet numb and tingle. They turn blue. Now i cannot get up stairs other than crawling. I'm extremely sensitive to the cold, and my joints are in constant pain. They swell especially in the knees and in the fingers, but there is less swelling than pain and stiffness. I dont think there are many joints in my body i can actually think of that i can truthfully say i dont have some degree of constant pain. My fingers, wrists, knees, hips, and neck are the worst. I have loss of sensation throughout my left side. My hands have a tendancy to shake. Since July, i've noticed a major difference in vision. My muscles are wasting away in my legs, and as the process of pain, numbness, color changes, and etc. proceeds into my arms as it has started to, i worry about the upper body strength that i have always been known for, especially for being such a tiny person.
Every day is a struglle no one knows, but i strive to achieve my very best success in life.
for now, i decorate my elevator key, and alternate wigs as often as i want(even accessorizing with antique broaches.)
My Hats With Hair!
i've seen a neurologist, and i anticipated my rhuematology appointment in 14days, the 22nd of December.  :)
-Katlyn Constance

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by LeemaBean, Sep 03, 2010
So what did your doctor say to you?  There are so many things going on with you, that it is difficult to pinpoint any one disorder.  

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