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Starting Manganese for Tardive Dyskinesia, Tardive Psychosis, Tardive Dysphrenia, Tardive Dysmentia

Dec 28, 2009 - 4 comments
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manganese

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tardive dyskinesia

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Tardive Psychosis

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Research

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Tardive Dysphrenia

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treatment

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Tardive Dysmentia

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Tardive Myoclonus

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Tardive Tourretism

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Tardive Dystonia



147673?1368235647
  Please note that before I even considered taking manganese as a supplement for tardive dyskinesia I asked my psychopharmocologist who then did some research on his own. He did find that it remained under current clinical study (the original study it was part of as well as the field of orthomolecular psychiatry has shown not be of much use, I know because it was suggested to me by a doctor in this field decades ago before my current recovery, I continue to take a full regimen of b vitamins and vitamin c, they may have been helpful supplements healthwise but they cannot treat schizophrenia nor any other psychiatric disability, it is however within clinical potential that since taking vitamin c I have less colds each year, no supplement of any kind or vitamin or mineral in a higher dose than reccomended by the FDA should ever be taken without a clinically approved provider's supervision and permission). It should be noted there are many scams and fraud online as well as offline, natural remedies are not regulated as they should be, however they have been researched and developed into medications from asprin to Lovaza (from fish oil) which is an anti-cholesterol medication but also an experimental mood stabilizer to Rozererm (from melatonin) which is of course a sleep aide. I was warned about maganese toxicity and although the dose I take is higher than normal it is well within the W.H.O. standards which in medicine are the standards for safety.
   The question is why dose the manganese work? That one is not hard to answer because just like many standard anti-Parkinson's medications that treat tardive it raises dopamine. That may be why manganese toxicity (so far found in industrial accidents but higher than W.H.O. approved doses could risk that possibility) have Parkinson like symptoms. The dose I take is well within the W.H.O. approved dose so that is not an issue. The manganese did work and on the neuropsychiatric aspects of tardive as well. There had been flare ups of tardive dysphrenia on Christmas that included thoughts that life was not worth it while walking by a graveyard. I knew enough to take the Vimpat which stopped that but adjunct treatments were needed as well. As for side effects, there was some nervousness and visual hallucinations. Those are exactly the same side effects I got from Mirapex which is a standard anti-Parkinson's medication used for tardive dyskinesia. What treats tardive dyskinesia (and the experimental criteria I am under standard clinical study for tardive psychosis, tardive dysphrenia and tardive dysmentia) can if it boosts dopamine potentially cause psychosis. So I remain on guard for that. If I start to experience that it will be discontinued and any calls will go to my psychopharmocologist (and of course I will not be posting, when psychotic its essential to use care online). What I am seeking to replace the Flexaril (which I have built up a marked tolerance to) and the Clonidine (which I have built up somewhat of a tolerance to) are of course more FDA approved medications to augment the Vimpat. What I am hoping for is the researcher of the criteria tardive dysphrenia (whom I had corresponded with) who is the director of a well know research university (which of course I won't name for confidentiality purposes) for a standard consult. Although of course I was advocating for these criteria to be identified, treated and prevented I also need to follow up with the people who are understanding them. That may or may not occur but a researcher such as that would know of the full range of treatment. And like everyone, I follow my provider's instructions and as well continue to avail myself of oppurtunities to continue to recover and with that and accomodations so I can physically improve and also enter the outside world more. I saw a small museum with my mother today and also am networking with the person I met with M.S. on the Access A Ride van and hope to continue to generate positive results.

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by braccio, Dec 30, 2009
Have you ever experienced complete relief of symtoms of bipolar only to have them recur 16 years later, then relief again, and have them recur 16 years after that?  I have been in a depressive state for about 3 years now; taking 2500 Depakote, 60 Cymbalta, 100 Lamictal and 100 Geodon.  Nothing seems to touch the depression  My psychiatrist seems to think that increasing my MS may help, but I'm still on all the other meds.  I really haven't felt like myself in 3 years.  I manage to muddle through the days, but my memory is foggy, and I don't have much happiness in my life.  I don't really look forward to anything; I just want too feel like I did before!  Anyone have any ideas?

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by ILADVOCATE, Dec 30, 2009
Depakoate doesn't work well on depression as it does on mania. I believe 100 mg. Lamictal which is a mood stabilizer that does work on depression as well is a subclinical dose though only a psychiatrist would know for sure. Cymbalta is of course an anti-depressent. Geodon is an antipsychotic used for bipolar. But all of them together would tend to create cognitive confusion. You should speak to your psychiatrist about having your medications adjusted. And here are two sites that might be of help as well:
http://www.psycheducation.org/depression/meds/moodstabilizers.htm
http://www.psycom.net/depression.central.bipolar.html
Discuss all this with your psychiatrist. Sometimes a person needs to change mood stabilizers until they find the right one. I've been on 30 of them in my life time until I found the right one
each person responds differently to each medication of course.

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by Kathy153, May 10, 2013
Please look into Truehope's EmpowerPlus Advanced, or Nutra-Tek's Daily Essential Nutrients ! My 29-year-old son has been taking nothing but these (currently, the Daily Essential Nutrients) for the past 1 1/2 years, after taking Depakote, Lamictal, Risperdal, Effexor, Abilify, Lithium - and probably others I've since forgotten -  for 10 + years to treat his "schizoaffective disorder, bipolar type" illness. On the psych meds, he was always sleepy, headachy, nauseous, and not very happy, despite the efforts of a good psychiatrist. Since tapering off all of them, he has lost weight (which he needed to do), no longer thinks about 'cutting' or has auditory hallucinations, no longer throws up almost daily, and is looking forward to going to graduate school in the fall.
My mother has tardive dyskinesia, after taking Navane for too long; her doctor didn't bother to try a newer, possibly safer med when they became available, in my opinion. I've tried EmpowerPlus on her, but have seen no improvement, TD-wise. I'm switching her to Daily Essential Nutrients because, unlike EMP+, it does not contain phenylalanine, which may increase TD, according to some studies. I am also interested in Manganese for TD; there is some in both these formulas, but nowhere near amounts I've read about as effective for TD.

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by ILADVOCATE, May 10, 2013
Yes thanks for the information. I had to discontinue manganese which I was allowed to try with my psychiatrist's supervision because it made me psychotic. It also has some side effects of concern and should not be taken above the W.H.O. dosage as regards a supplement. Any decisions I have made as regards supplements as well as medications were authorized by my psychiatrist who is a psychopharmocologist. As they are medication specialists they are aware of options other psychiatrists might not be. I also see a neurologist who is a movement disorders specialist as well to follow up on the tardive conditions aspects of which are clinically complex as well as the atypical catatonia.
   In the meantime research continues on a new generation of antipsychotics the NMDA receptor modulates. One is still in study as a primary antipsychotic  (stand alone). Others , including this one showing potential promise of being approved are being researched as adjunct (additional) antipsychotics to what is currently in use:
http://www.hsc.nihr.ac.uk/topics/bitopertin-for-schizophrenia-primary-persistent-ne/

  


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