Dec 28, 2009
Please note that before I even considered taking manganese as a supplement for tardive dyskinesia I asked my psychopharmocologist who then did some research on his own. He did find that it remained under current clinical study (the original study it was part of as well as the field of orthomolecular psychiatry has shown not be of much use, I know because it was suggested to me by a doctor in this field decades ago before my current recovery, I continue to take a full regimen of b vitamins and vitamin c, they may have been helpful supplements healthwise but they cannot treat schizophrenia nor any other psychiatric disability, it is however within clinical potential that since taking vitamin c I have less colds each year, no supplement of any kind or vitamin or mineral in a higher dose than reccomended by the FDA should ever be taken without a clinically approved provider's supervision and permission). It should be noted there are many scams and fraud online as well as offline, natural remedies are not regulated as they should be, however they have been researched and developed into medications from asprin to Lovaza (from fish oil) which is an anti-cholesterol medication but also an experimental mood stabilizer to Rozererm (from melatonin) which is of course a sleep aide. I was warned about maganese toxicity and although the dose I take is higher than normal it is well within the W.H.O. standards which in medicine are the standards for safety.
The question is why dose the manganese work? That one is not hard to answer because just like many standard anti-Parkinson's medications that treat tardive it raises dopamine. That may be why manganese toxicity (so far found in industrial accidents but higher than W.H.O. approved doses could risk that possibility) have Parkinson like symptoms. The dose I take is well within the W.H.O. approved dose so that is not an issue. The manganese did work and on the neuropsychiatric aspects of tardive as well. There had been flare ups of tardive dysphrenia on Christmas that included thoughts that life was not worth it while walking by a graveyard. I knew enough to take the Vimpat which stopped that but adjunct treatments were needed as well. As for side effects, there was some nervousness and visual hallucinations. Those are exactly the same side effects I got from Mirapex which is a standard anti-Parkinson's medication used for tardive dyskinesia. What treats tardive dyskinesia (and the experimental criteria I am under standard clinical study for tardive psychosis, tardive dysphrenia and tardive dysmentia) can if it boosts dopamine potentially cause psychosis. So I remain on guard for that. If I start to experience that it will be discontinued and any calls will go to my psychopharmocologist (and of course I will not be posting, when psychotic its essential to use care online). What I am seeking to replace the Flexaril (which I have built up a marked tolerance to) and the Clonidine (which I have built up somewhat of a tolerance to) are of course more FDA approved medications to augment the Vimpat. What I am hoping for is the researcher of the criteria tardive dysphrenia (whom I had corresponded with) who is the director of a well know research university (which of course I won't name for confidentiality purposes) for a standard consult. Although of course I was advocating for these criteria to be identified, treated and prevented I also need to follow up with the people who are understanding them. That may or may not occur but a researcher such as that would know of the full range of treatment. And like everyone, I follow my provider's instructions and as well continue to avail myself of oppurtunities to continue to recover and with that and accomodations so I can physically improve and also enter the outside world more. I saw a small museum with my mother today and also am networking with the person I met with M.S. on the Access A Ride van and hope to continue to generate positive results.