Jan 12, 2010
On December 22nd of 2010 i recieved the best Christmas presant of my life so far, doubting anything will ever top it. I finally was given a diagnosis after 6months of not know. I went through doctors telling me they think i have Leukemia, or Lymphoma, Lupus, and others. All tests came back negative, praise the Lord. Then my doctors shipped me all over to various specialists. The last and most important proved to be Rheumatology specialists. They examined me excellently, and gave me a diagnosis that made sense once explained. I am so very happy. My diagnosis: Ehlers Danlos Syndrome, Hypermobility Type
i'm even more rare inside the disease because i fit all 5criteria of hypermobility. :)
EDS hypermobility type is a connective tissue and chronic pain disease that has no cure. Sufferers tend to be in constant pain. This is because of the muscle, ligament, &joint laxity. They are so strechy that i frequently dislocate parts of me, and sprains are daily. The chronic pain seems smaller over the years in areas such as sprains, for the body just gets used to the pain. I have arthritis as a result of the EDS.
THE PLAN: muscle relaxers & arthritis pain meds, then, intensive physical therapy to retrain me how to walk. they say it will be painful, but i feel it will be worth the pain, dont you?
love to you all,