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Diagnosis: EDS type 3

Jan 12, 2010 - 2 comments
Tags:

EDS type III

,

Arthritis

,

Chronic Pain

,

diagnosis

,

Ehlers-Danlos Syndrome

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joint hypermobility

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hypermobile joint syndrome

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Ehlers Danlos Syndrome

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Hypermobility Type

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EDS hypermobility type

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paresthesias

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rubber-man disease

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rubber-man syndrome

,

Life

,

chr



On December 22nd of 2010 i recieved the best Christmas presant of my life so far, doubting anything will ever top it. I finally was given a diagnosis after 6months of not know. I went through doctors telling me they think i have Leukemia, or Lymphoma, Lupus, and others. All tests came back negative, praise the Lord. Then my doctors shipped me all over to various specialists. The last and most important proved to be Rheumatology specialists. They examined me excellently, and gave me a diagnosis that made sense once explained. I am so very happy. My diagnosis: Ehlers Danlos Syndrome, Hypermobility Type
i'm even more rare inside the disease because i fit all 5criteria of hypermobility. :)
EDS hypermobility type is a connective tissue and chronic pain disease that has no cure. Sufferers tend to be in constant pain. This is because of the muscle, ligament, &joint laxity. They are so strechy that i frequently dislocate parts of me, and sprains are daily. The chronic pain seems smaller over the years in areas such as sprains, for the body just gets used to the pain. I have arthritis as a result of the EDS.

THE PLAN: muscle relaxers & arthritis pain meds, then, intensive physical therapy to retrain me how to walk. they say it will be painful, but i feel it will be worth the pain, dont you?

love to you all,
Katlyn Constance

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by cowfd, Jan 27, 2010
It will definitely be worth the pain! Make sure you work with a therapist that understands the disease, because only they can really do what's right for you. It took me a long time to find one that truly got it. Now I use him for everything.

I wish you all the luck - with hard work, persistence and some pain, you can get to a maintainable level to enjoy life. I managed to get to a good enough point to have a child (she's 2 1/2) and even keep up with her for the most part - anything's possible, just keep your chin up!

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by ContradistinguishingSymptomaticKat, Feb 05, 2010
Thank you so much! I'm glad i read this; the advice was really helpful. i told my mom. I CAN'T WAIT FOR THAT MAINTAINABLE  LEVEL. So, what was it like for you before physical therapy and how have you improved? jw. you dont have to answer if you dont want.
-Katlyn Constance

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