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Intro.....

Jul 02, 2008 12:27PM - 3 comments

I have been having problems with my gut for several years now.  In 2001, I had surgery to remove adhesions that were causing obstructions.  After that 2002, I had a hernia repaired at the incision site.   I didn't have any more problems until Fall of 2006.  I again began having obstructions.  These are extremely painful and very costly.  Each time they admit me so that they can give me pain meds, IV fluids and wait for it to resolve itself.  Generally this takes 4-5 days.  At that time the surgeon said that there was nothing they can do for me.  They placed me on a regiment of daily laxatives, which I can no longer tolerate, so I take them every 3-4 days.  Not always do I end up having a bowel movement, but things move around and it buys me a day or 2 more, before I gave to take more laxatives.  In August 2007 and in September I had 2 more extremely painful events but chose to stay in bed rather than incur expensive hospital bills, when there is really nothing they can do for me.  However, since these last 2 events, nothing moves...  I am too uncomfortable.  Basically, as long as I don't eat....I'm ok.  But as soon as I do, I'm uncomfortable.  I have to schedule life around when I can take the laxatives.  I have lost about 55 pounds and I expect that to continue since things are not getting any better.  Given that the first opinion was "take laxatives", I sought another....  the second is recommending removal of my large colon.  The doc says that basically it is not working and is diseased.  I can continue to live like I am, or she can remove it.  Each day.....in the morning .....I think, I can deal with this.....by lunch, I am hungry, and might have a little soup and then by the afternoon...  I'm thinking....I can't deal with this....  

To further complicate things, the last surgeon "tacked my intestines to my abdnomen wall", and I just got a recall notice for the Bard Composite Kugal Patch that was used during the hernia repair surgery.  I am scared...totally...  and this is not helping my gut.  I don't know what to do!  Every decision I make seems like its a bad one.  I refer to myself as the "side affect"  - if something can go wrong, it will.  Can anyone out there help me with this decision??  What happens to a diseased colon if I just ignore it and keep taking the laxatives??  Today, I had Soup for lunch and I'm extremely uncomfortable...  Am I just a wimp....maybe I'll get used to the pain...it's only been since August???  I have heard of people doing the laxative regiment for years....  maybe i just haven't found what combination works for me yet?  Anyone ever have this proceedure???  One thing that scares me is that she said that I would have 3-6 bowel movements a day.  This seems incredible since I only have them once every 5-10 days.  I don't want to end up with a bag....  I'm afraid that surgery will make things worse......    If only she didn't imply that this was optional!!!   I am the primary EVERYTHING...44 year old Mom of 3 who drives and pickups for all school/after school events, is the bread winner, insurance carrier, homework monitor, plus all the stuff around the house...Basically, if I'm not doing it...it's not getting done.  


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by kitnkate, Jul 07, 2008 05:16PM
I have had similar problems. I had a twisted bowel in 2005 then adhesions, adhesion removal and another resection. You are not alone! I know its hard to decide about surgery, but if you let it go like I did it will be an emergency and then a lot worse than a planned surgery. Please take care!

by bloodybloated, Jul 12, 2008 09:45AM
Make sure you get every test going - a full GI study including transit study (sitz marker) and rectal study.  also get an MRI - that way they get a good picture of what is going on.  I hope to have a colectomy october as i am taking around 30 senna tablets daily sihce i had a sigmoid resection last june2007.  that operation totally screwed my bowel up.  i actually visit another really good forum - HealingWell.com - there are no such forums in the UK which is where i am.  it has a great forum called Ostomies - check it out as there are lots of people who have been through stuff.

take care now
karen x

by savesouls, Aug 12, 2008 08:33AM
Hi,

I just found this forum as I am having to have a colonoscopy in a weeks time.  7 years ago I had 7 foot of my large intestine removed due to an intussuseption ( bowel telescopes in on itself and pulls inside out ) .  This had been going on for 6 years, undiagnosed.  Ended up anaemic and vomiting blood, passing bloody jelly type lumps and loosing a a lot of blood in the toilet.  Was rushed up for emergency surgery and lost 7 foot of damaged bowel.  Since this op my bowel motions not really the same.  Had very smelly poo to begin with, ( some unkind teenagers in a public toilet said  "whats that stink, it smells like baby poo".  Since then I have had a few bout s of incontinence at night and this last year have been in chronic pain, on tramadol every 4 hours.  The pain is terrible at times, if I lift anything or am at work all week end up rolling around in pain.  Even sitting , lying down cant escape it , stabbing doubled over cant stand up straight.   Have been told I have a cyst in my scar tissue!  Could this be causing all this pain.  The doctor want s to do this colonoscopy, but Im really scared. I am worried my bowel isnt up to this.  It has to be cleared out with a powder drink the night before.  Will my bowel be able to cope with this test?  Any suggestions from someone who has had some of their bowel removed and gone through this test?

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