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I JUMPED THE GUN

Jul 08, 2008 11:34AM - 16 comments

Yes, I spoke too soon. When I reported all was well with my CT Scan, it was based on the nurse's conversation with my husband.  My ONC called this morning with the real news.  The hematoma that is located somewhere around my FORMER cervix is growing.  They want to go in and make sure it is benign.  He wants me to come to his office as soon as he can get me in to do a vaginal examination to see if he can feel it.  If he can feel it, he wants to go in with a needle, through the vagina and drain it. He said the Radiologist told him that it is liquid. When I groaned about that...he said the only other alternative would be another surgery. I am still weak from the first one, another one is not what I desire at this juncture.

This is not happy news.  I am planning a trip to Georgia this weekend to see my folks for a family gathering.  Furthermore, my husband is getting ready for another stem cell transplant that may take place 5 hours from our home in Little Rock.  I need to be in decent health to take care of him for at least 60 days.  Most of it living in a hotel near the hospital that specializes in Multiple Myeloma patients. I don't need to be drained of what energy I have built up.

Is there ever much good news about this cancer?  I think not.
Teresa

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by msjazz, Jul 08, 2008 11:39AM
No Teresa, it doesn't seem it is lately. I hope he can resolve it the easiest way possible for you. But you do need to take care of you. Would laproscopy be an alternative between the 2 he gave you? Let us know as soon as you find out a date. In my prayers always,   Donna

by Teresa222, Jul 08, 2008 11:41AM
Thank you Donna.

Oh and by the way, has anyone been in this situation? If so, what happened?
Teresa

by TrudieC, Jul 08, 2008 12:10PM
My, my, life is certainly throwing you some curve balls.  My thoughts are with you and your husband.  

Trudie

by butterflytc, Jul 08, 2008 12:57PM
The highs and lows of cancer. Geez Louise!
So sorry Teresa for both you and your husband. Sure hope you get some good news soon. Take care of you, so you can take care of hubby. Enjoy the weekend with family, breath, relax, and try (not easy I know) and put off thoughts of doc til you come home.
keep me posted
butterflytc

by bohan54, Jul 08, 2008 03:27PM
Teresa,
You and Donna are getting the one two punch.  I do not believe either one of you will be knocked down, tho.  Somehow we find a way to make things work, even if we have to jump through flaming hoops on one foot!
Seems like your doc could do some sort of local anesthesia for the "draining" procedure??
Take care,
Sharon

by Sandymac, Jul 08, 2008 04:21PM
I can only add that my thoughts are with you. I'm so sorry you're having to deal with this. It sure does NOT sound like a happy little procedure!! Please just know that I'm tinking of you,

Take care,
Sandy

by Sharon2714, Jul 08, 2008 10:44PM
i can only add my prayers for peace for u
heavenly father please hold ur servant in your loving arms
it seems u are given more thann ur fair share but i have this feeling that
God believes in u and in ur strength
god richly bless u indeed
love
sharon

by Jan214, Jul 08, 2008 11:51PM
Dear Teresa,

I am so sorry.  Had chemo at 9, slept all day and am just now seeing this.  I don't know what to say.  I thought you were finally catching a break.  I don't understand why your husband has to go to Ark of all places. Nothing against Ark., but it isn't like you all go to some podunk hospital.  

If they do the needle thing, did he say how long of a recuperation time there would be?  Even if you were in the clear, you still shouldn't try taking care of a sick husband all by yourself.  Don't you have any family down there? Does your church have an affilitation down there that could help out?  
Teresa, you know you have to take care of yourself, not only for your own sake, but for the sake of your family and husband as well.  You won't be able to help your husband if you are feeling poorly.  Whatever happens, I pray that it is a big old nothing.
I will talk to you tomorrow when  I hope I make more sense.  
Nite,
Jan

by Teresa222, Jul 09, 2008 11:06AM
Jan,
The reason we have to go to Arkansas is that the Multiple Myeloma Institute is located there.  All the newest research, drugs and trials are begun there.  Sam Walton of Walmart donated millions to get it started back when he was diagnosed with Multiple Myeloma.  He was in his eighties when he was diagnosed and later succumbed to the disease. Vanderbilt works closely with them for the patients who decide to go there for additional opinions.  The treatment in Arkansas is more aggressive than Vanderbilts for the most part. Therefore, we have to travel one of the worst roadtrips one can make from Nashville, IMO.

The cyst I have was a result of my initial surgery.  That is what we hope anyway.  I did find out later yesterday that I will be put to sleep if they can get to it vaginally.  I don't know what they will do if they can't. I guess we'll cross that bridge when we come to it.

Thank you for your kind words.  As I told you yesterday, I hope and pray this treatment is easy on you.
Teresa

by kmccarthy, Jul 09, 2008 11:19AM
Hi Teresa,

I am so sorry I didn't see your message when you originally posted it. I, too, had a hematoma post-op. My doctor was willing to let it be for a while, but watching it nonetheless. The thing ended up going away on its own without any intervention. I pray that yours does the same thing, and if not, that God gives you the strength you will need to get through these coming days. All of you are in my prayers daily.

Kelly

by Teresa222, Jul 09, 2008 11:29AM
Kelly,
Mine had tripled in size in the past two months.  He must think it will start causing problems if we don't get it out.
Do you remember where your hematoma was located? I have almost constant discomfort and sometimes actual pain in my abdomen since my hysterectomy. I don't know how I would know now if something serious has transpired since I have discomfort all the time. My hysterectomy was last October. I would think all the pains would be gone by now.
Teresa

by survivor_susie, Jul 09, 2008 12:06PM
I'm so sorry that you're still hurting.  I hope they can simply drain this. Recovery from a drainage should be very, very quick. I've had drainage procedures for other problems, and there wasn't even any soreness afterward.
Best of luck to you.  

by JC145, Jul 09, 2008 08:59PM
I can only offer prayers and good thoughts coming your way.  I pray you find your strength and that your pain eases some so you can take care of your husband.  You certainly have a full plate .. God Bless You.  

Judy C

by marie3B, Jul 09, 2008 09:55PM
Teresa,

I am sorry I did not see this sooner.  I hope it is easy to drain and comes out to be benign.  I had a scare on my first scan in the same area. Ct report described a nodule on the vag cuff.  Turned out to be scar tissue according to the gyn/onc that did the debulking.  I wish there was something I could do to lighten your load right now. Love, Marie

by gma718, Jul 09, 2008 11:50PM
Dear Teresa - My prayers go out to you and your husband....life can really dish it out sometimes...Take one day at a time..put first things first..see what happens with your situation..maybe you can get some help from the local cancer society  regarding your husband and yourself...listen to the Dr and if necessary to remove it right away than dont put it off and then if it can wait a little than proceed with taking care of your husband now..maybe some local cancer centers or resource center can help set up some volunteers or maybe ask family or any close friends..reach out now when you need it...people are always willing to help ..just ask!!! Good Luck and Keep me posted..Love, Gia

by crecco, Jul 10, 2008 12:58AM
Ok, I can tell it is getting close to bed time. I just posted a comment to you and forgot to hit post.
I am sorry that you have got so much going on right now. It does sound as though your husband is in good hands, so you need to focus on yourself for just a little bit. I am hoping that they can get you taken care of with no problems and that it turns out to be nothing much at all.  But with all that you have coming up, try to get some rest now or you will be worn out before you even get to Georgia. I am keeping both you and your husband in my thoughts and prayers.
  Love Chris

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