Feb 19, 2010
Right now there has been a stand still as regards neurological recovery because I have availed myself of the best of treatment both clinically identified and experimental and also natural remedies (as approved by my providers). The difficulty is when you have two sets of psychosis facing each other, one being standard schizoaffective psychosis (which as I've posted many times the glycine has mitigated) and tardive psychosis/tardive dysphrenia. That and tardive dysmentia being clinically related to tardive dyskinesia are responsive to dopamine boosting agents that can bring on standard psychosis. I am well aware of this as my psychiatrist rejected Mirapex for use and also Namenda (as it interacts with glycine and works in the reverse manner). The use of manganese was a disaster as it in boosting dopamine created (standard) psychosis and mania (and once when I accidentally took more there were some of the signs of manganese toxicity) so that had to be stopped asap. On the other hand it worked. So basically the same rule applies. Even if a natural remedy is approved by your provider, its still an unknown quantity. As for what I am doing that would of course be the correct thing which would be to see the research neurologist who first documented the criteria "tardive dysphrenia" and seek more FDA approved treatments to augment the Vimpat. Of course there is no guarantee he will be aware of any new treatments (though that can change over time as research progresses) nor that I will respond to them but its difficult to work on recovery a disability that has not been officially named or identified. That of course can change.
Things have been difficult for the family as my mother is going to have a gall bladder operation (she of course is asking the proper questions of the doctors who will perform the operation, thanks for any input) and continuing her own mental recovery Today we took a birding walk at a well known migratory stop over. Things were a bit quiet due to the heavy snow and ice but it was interesting all the same. We were both progressing as regards recovery, my mother as regards nerve compression (for a while she could hardly walk in the cold, she still can't walk up stairs) myself as regarrds the breakthrough dissociation of tardive dysphrenia (darkness and cold bring it on). The collage I did documents the various aspects of what is going on, the mental glycine recovery, the dissociation of tardive dysphrenia and some of the minor depression/cognitive blunting of the Vimpat (like any medication it has side effects, again this is a literal first use but it works in me as a mood stabilizer as well). But much has been done to arrange this consultation so they can document exactly how it is treating me and exactly what it is treating. So whatever happens what I experience will be clinically identified and with one treatment identified that the family (again a relative who is a researcher in audiology) helped identify to my neurologist that's a big start. My psychopharmocologist and movement disorders specialist have been more than helpful in writing letters of documentation as regards the home attendant appeal and the restoration of my Access A Ride coverage in full. I appreciate their assistance as well as accepting any input I have given towards establishing a fuller understanding of the identification, treatment and prevention of some of the adverse side effects I've experienced as well as working towards newer treatment modalities (such as the NMDA receptor modulates) with a safer side effect profile and fuller recovery rate. So many people are at work. Especially the researchers. And we all look forward to and will benefit from their results..