medical blurb about me

33 yo female.  Visual disturbance in January of this year (double vision and blurriness) and many small incidences of blurriness since then.  Scrunching up my left eye while I take a picture seems to trigger it, but heat seems to be a big part of it.  It has been triggered by heat only (hot hot bath) and now that it is summer, focusing one picture is enough to set it off and at the end of the day it is often a little blurry with no camera. MRI in feb was clean as was all bloodwork and an echocardiogram.  Visual Evoked Potential had a delay.  Small difference in color vision as well - may be a loss or perhaps they were always different.  Neuro says it looks like a mild optic neuropathy.  MRI again in late August and this time we will have cuts of the optic nerve (PCP looking for a tumor and didn't order them).  See him again the next week.  A family friend who is a neuro offered to help - he seems to think I should be on some meds and that some more tests should be done.  Sent him my medical records and should talk to him soon.  He lives across the country so we will just be talking over the phone and I will not be an official patient, but I think it might be helpful.  Right now I'm trying to find out more to prepare for the visits and ask the right questions.   This was dismissed as an ocular migraine and I really had to push to see a neuro, so I guess I still feel as though I have to be really on top of things to make sure things happen the way they should.