Apr 03, 2010
Thought I would post this here... just in case a miracle happens and someone knows what this is or I figure it out myself!
I'm a 31 yr old female that had an episode of aura migraine in 2008 - I had the aura with flashing lights in my right eye (first time I've ever had that although I've suffered headaches and migraines most of my life) and the entire right side of my body went numb. The numbness went off after about 20 minutes. Everyone figured I was having a migraine due to meds I had just started taking (which were immediately stopped, Citalopram/Cipramil). Please note the medication was an antidepressant but I am not depressed or anxious any more - this was all due to my thyroid problem that I didn't know I had at that time.
Since then the numbness came back back little by little and is now currently with me all the time - the intensity varies but it's always there. Some days it's mildly irritating and other days it is deepy painful and leaves me bed-bound. I also experience blurred vision in my right eye a few times during the day. Occasionally the numbness will 'spread' over to my left side but it's not the same as on the right, it's a much lighter numbness.
On my right side I have altered sensations, and it is usually colder than my left side and is weaker, especially with repetitive movements. I've lost the fine motor movement on my right also. I feel like I am wearing a glove and a tight sock on the right side (but sort of like that over the whole side, including my face and head). Even the inside of my mouth and tongue are affected.
It effects the way I walk as I can't feel the ground beneath my foot properly so constantly in fear of falling over.
I suffer terrible migraines with the pain centering around the right temple. I feel mildy dizzy all the time with vertigo at times. I suffer with very bad brain fog and a 'spaced out' feeling in my head, leaving me feeling very detached and like I am watching real life on TV. Fatigue is a very bad problem for me all the time.
Occasionally I will experience crawling sensations on the LEFT side of my face. I have low-normal blood pressure that goes as low as 90/60 at times. My fingernails often turn blue (possibly related to my thyroid condition?).
I've had two MRIs scans and one CT scan, all completely clear with no leisons or anything abnormal. So I'm at a loss as to what is causing this problem.
I have autoimmune thyroid disease which I am optimally treated for (have tried many variatons of the meds) and the meds have resolved lots of things for me but not enough to get a good quality of life back. I've looked in food intolerances and adrenal insufficency but not come up with anything. I'm still investigating some possible vitamin deficiencies but so far most things are coming back ok (I supplement with B12 to be on the safe side).
A short course of steroids made the symptoms LOTS worse and it spread to my left (that reduced once the meds were withdrawn). It's also much worse in the week leading to my period. Occasionally when my thyroid meds are too high it will make it worse also.
Misdiagnosed with Chronic Fatigue Syndrome in 2007.
Underactive thyroid diagnosed by symptoms and antibodies, currently treated with thyroxine (Free T4 and Free T3 top of range).
Conditions ruled out so far: Celiac Disease, Addison's Disease, Pernicious Anaemia, Hypoparathyroidism, MS, ALS, Transvere Myelitis, Stroke.