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I ALWAYS FORGET THE CAMERA!

Jul 21, 2008 06:49PM - 4 comments

Well...Jan and I both forgot to take the camera today.  Both of us were disappointed that we could not post photos of our time together at Gilda's Place.  

Jan is so petite.,..she made me look like the Jolly Gray Giant!  Cory and I ate as many of the homemade snacks we could manage to get down between all the talking about absolutely everything we could squeeze in.   I have a common bond with Jan and so many of you in this illness and yes, suffering.  Jan has had such a hard time with keeping food down.  It breaks my heart to know she feels so bad, so often.  I guess I was downright lucky that the chemicals didn't do that to me.  I just hope and pray that her body will stop reacting to the chemo in such a harsh manner.

Well.... now let me tell you about Gilda's Room.  First, it is a wonderful place.  It's large, modern and very well managed in the Nashville branch. They have beautiful artwork provided by the many cancer patients who go there to escape the non-sick world. Yes, it's strange to say that, but it's true.  People with cancer gather there to be around other people with cancer who understand their plight.  There is a library, meeting rooms, two large kitchens filled with delicious homemade goodies for those who drop in. I had some of the best chocolate pound cake I've had in years while Jan and I talked. Oh yummy..and it is FREE. There are classes in art, music and just about anything you would want to learn.  As you can tell, I was very impressed. But........................

They've hardly heard of ovarian cancer there if you want to know the truth about the situation. It's all breast cancer.  In all of their library, I found only three books on our disease.  I understand why this has happened.  Breast cancer does strike a lot more women that OVCA.  But, daggum it! I think we should be given equal time at the very least. After all, it's named after Gilda.  It's apparent that more money has been spent worldwide on breast cancer research.  I understand that too...but it does not make it easier accepting the fact that our cancer in all these years, has not had the cure rate success that other cancers have had.  It's like our treatment is stuck in the dark ages as the others move forward.
I guess I have the wrong cancer, huh?  Have any of you felt that way lately?

When September rolls around, all of us can do something to improve OVCA awareness.  I am not sure what I am going to do, but I WILL do something to help others.  It may be an activity or it may simply be sending money for research.  But, I WILL do something.

Well, we don't have pictures of Gilda's Place or ourselves.  I'm sorry for that.  I'm also sorry that we have the unpopular cancer.
Teresa

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by JC145, Jul 21, 2008 07:17PM
It is so nice to hear about your visit.  How wonderful to actually meet others from this forum.  I am amazed that at "Gilda's" of all places, ovarian cancer takes a back seat.  There are Ovarian Cancer walks all over the US in September.  I went to Pgh last year for one.  I don't have one close to me here in Pinellas County, Fl.  I will be wearing my teal jewelry, shirts, etc thru September as much as possible.  Thanks for sharing your day.   Judy C

by TrudieC, Jul 21, 2008 07:34PM
Sounds like a wonderful visit.  I know you guys have been trying to get together for some time now.  That is appalling that Gilda's place would not be totally oriented to ovarian cancer!

by marie3B, Jul 21, 2008 08:19PM
Gilda would be very disappointed that ovca still is in the shadows.  She tried so hard to get us the attention we need.  We just have to do all we can to educate as many as we can.  I am happy you and Jan got together.  You are two women I have grown to love and depend upon in a very short time. Love, Marie

by Sandymac, Jul 21, 2008 10:48PM
Sounds absolutely lovely.. So glad you were able to "hook up" but also really surprised at the lack of information on Ovca.. I agree, something absolutely must be done !! Wonder why it still lurks in the shadows compared to Breast, Colon , and even Prostate for the guys.. ??? But glad you had a good time...

Love,
Sandy

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